Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Ol' Ct?


Mal

Recommended Posts

Mal Explorer

anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Do some research for support groups--here's one for you:

Group: Nutmeg

City: Danbury/Waterbury

Contacts:

Edith Meffley

32 Lewis Dr.

Ridgefield, CT 06877

203-438-6108

Eileen Gallo

17 Pole Bridge Road

Sandy Hook, CT 06482

Internet:

Syd Aronowitz, itsme@erols.com

Updated: 10 Mar 2001

There is a huge support group in Westchester County, NY. Anytime you need some info, feel free to email me at darlindeb25@aol.com I am always available for questions. There is a huge number of celiacs in Nassau County and Suffolk County here on Long Island.

I am also sure there are people in the forum near you--they will let you know.

Deb

jkmunchkin Rising Star

I'm in Westchester (NY). I grew up right on the border of CT, and go to our Wilton office for work once a week.

I just recently found an incredible health food store right in town in New Cannan. They have tons of gluten-free products that a lot of the other stores don't have. It's called Healthfare. There is a store with the same name in Trumbull. I went there once, but I don't think they are connected because the one in Trumbull kinda stunk, whereas this one is incredible.

You should definately check it out.

Katie618 Apprentice

.

bigapplekathleen Contributor

Hey Mallory,

I live right near you! I see that you're newly diagnosed. If you need any assistance in any way, feel free to contact me!

Kathleen

gluten intolerant (diagnosed via blood tests in 2003) but NOT celiac (don't carry the gene)

other food allergies

  • 5 months later...
Vince Newbie

I go to school at Quinnipiac in Hamden. There are no bardstales in all of ct, and it does seem like nobody here acknowledges it. Feel free to talk to me!

JoeB Apprentice

Katie -

I'm in Trumbull, too. That makes at least two of us in town with celiac disease!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
LJW Newbie
anyone?.....it seems pretty dead and unknown about Celiac here in Danbury, anyone near me?

I don't know if you are still out there. I am from Stratford, CT. I went to school in Danbury. I am looking for someone local to share and swap stories!!!!!!!!!!

  • 2 months later...
saaa-wheat<3 Apprentice

I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

JNBunnie1 Community Regular
I'm looking for friendly restaurant suggestions in the Farmington and Old Saybrook areas. I have friends in those areas and it would be nice to go out to dinner somewhere by them when visiting and not have to be such a pain in the ass about it. :rolleyes::D

I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

JoeB Apprentice

We like to eat at Dock and Dine in Old Saybrook. It's right on the water at the mouth of the harbor - the view is great and the food is pretty good. If you have friends in the area, they'll know where it is. You can also find them on the web. I was just there about 2 months ago. I think I had something broiled, probably scallops. When I explained my diet to the waitress, she said she knew about it because one of the other servers had Celiac disease.

Have a good time!

Nutmegger Rookie

My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

JNBunnie1 Community Regular
My screenname gives me away. :) I'm from Manchester. We do have a local support group, but they apparently only meet once a year, which really doesn't do it for me. I'm looking for something more active within 30 minutes or so of Manchester. If no one can make suggestions, any interest in starting something up?

YEAH, since you have to pay dues everywhere else! We should just all make friends and cook for each other once in a while! (As long as there's no creepy stalkers on this forum, LOL)

  • 3 weeks later...
kifert Newbie

Hi--My daughter has celiac, and we live in Ridgefield...Piccolo's here in town is offering gluten free pasta, and they swear that they'll use separate water, spoons, etc. Soul Dog in Poughkeepsie is a hike, but my daughter (who is also vegetarian) loved their veggie and gluten free food.

karen

  • 2 months later...
Ingrid in Ct. Newbie
Hey!! i'm in trumbull!! it does seem like no one in ct knows about celiac! i joined the ct chapter of the CSA... if you want the info for it, i'll gladly give it to you, the group is sooooo wonderful and helpful- meetings have such good food!!!

message me here of IM on aim my sn is suga0456... IM me if you ever need to vent about celiac disease or anything else!! it's always nice to meet someone else who has celiac disease, and whatnot

psipsina Rookie
I live in Portland. I know that the last time I went, the Rainforest Cafe at the Westfarms mall had a gluten-free artichoke dip! I usually avoid any place that does pizza (all that flour flying around the air) but other than that, I'll go pretty much anywhere and get a burger patty no bun. I also ask to make sure they don't toast buns on the grill, though.

I'm originally from CT and I was living up there when I was diagnosed with gluten and other food intolerances from candida (I've never bothered to get the official celiac dx). Rainforest Cafe was the first restaurant I ate at and they were soooo amazing (I actually wrote a letter to corporate I was so impressed). In addition to gluten-free I was also caesin free and sugar free so I was a pretty difficult customer. The chef came to our table and talked to me and then invented a special sauce that I could have on their fish! They were so awesome and didn't make me feel like I was being a pain in the but or like I had 6 eyes or anything. Totally recommend them. I've always had good experiences at Outback too as far as chains go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.