Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Been This Sick In My Whole Life.


Rusla

Recommended Posts

Rusla Enthusiast

I have literally never been this sick in my whole life. When I bought some chocolates at a company that I know the majority is gluten-free the qirl was new and gave me two that were wrong. Well one I had never had before and didn't know what it looked like. I just popped it in my mouth and started to chew.

Well, that chocolate, most of it came flying out of my mouth. It was a horrible jell and tasted like turkish delight that I not only hate but has gluten. Well I have not only spent 12 full hours in bed only to get out and run to the bathroom with the big "D" and I mean big "D" and vomiting. You all know the butt on the toilet head in the pail routine.

Finally, I have been able to leave the room and sit somewhere other than the toilet. Each time is worse than the times before and I never want to be this sick again and I hope no one else is ever this sick, it is horrible.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Viola 1 Rookie

Oh Lord Rusla :o You are having quite a time of it. I'm so sorry to hear that, and over something that should be enjoyable too. I hope it doesn't turn you off chocolates for good, that would be a crime for sure. :(

Stay warm, keep some fluids in you and get as much rest as possible. I sure hope you don't have to work tomorrow!

2Boys4Me Enthusiast

Oh my gosh that's terrible! :(

What's the company?

We don't buy chocolate often, but once in a while we'll get some from Purdy's. (Callebaut's a bit pricey.)

I hope you feel better soon.

Rusla Enthusiast

Yes, Callebaut is very pricey their Gilbert line is not gluten-free. However, where I got the chocolate from was Purdy's. The ones they have that are not gluten-free were all the chocolates I hated in the past and those are marzipan and turkish delight. However any of theirs with vodka are not gluten-free. It was the turkish delight that she gave me by accident. I still don't feel special but at leas I have quit the "P & P" parade to the bathroom. I have a headache too from this. I have had flu's that never did this to me.

tiredofdoctors Enthusiast

Rusla, I am so SORRY that you're that sick. You poor baby. All that because of chocolates that were supposed to be gluten-free.

I hope you're feeling much better VERY soon. Please take care of you. I need to e-mail you, as well . . . have some interesting news to tell you!! There -- that will keep you guessing for awhile!

Talk to you soon,

Love & Hugs to you,

Lynne

Guest cassidy

Sorry you are so sick! From your posts it seems like you are always very careful - it is rough when you are trying to be careful and you still get sick! Hope you are doing better soon.

Guhlia Rising Star

Oh, Rusla, that's horrible. I'm sorry you're so sick. I know how careful you always are. It sucks when somebody else screws up and you get horribly ill from it. Hopefully this will be a short lived glutening and you'll be back to your fiesty old self in no time.

BTW, what's turkish delight? Is it anything like turkish paste? That should technically be gluten free. I haven't found a recipe for turkish paste that wasn't gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Gosh, how awful! I hope you feel better soon. Stupid gluten!

Rusla Enthusiast

Turkish delight is a some kind of jelly yuck covered in chocolate. I don't know if turkish paste is the same or not. Even as a kid I hated turkish delights because they were jelly and only had part of a one that made me feel ill then. I guess a good reason why I hated them. Anyway Purdy's says their turkish delights have gluten in them and unfortunately that is what I got.

Now the good thing is I have quit having to do the 12 foot sprints to the washroom, however back pain is still there and feeling weak and on and off queasy. I have had small versions of this when glutened but usually only one sprint or two to the bathroom with the big "D". This time was 10000 times worse than any other time.

I have noticed with even minor glutenings lately, I will get dizzy and feel like I am going to pass out along with the bathroom dance.

I am so very careful and diligent about being gluten-free because I have noticed the minor glutenings causing me more grief than usual. This was just a half of a small candy.

And our lame governments don't consider this a disability, I can only hope one of them ends up with this and finds out how disabling this is and puts it back on as a disability deduction. I have missed work today because of this very nasty episode, if it had carried on past 2100 hours yesterday, I was prepared by the middle of the night to call the paramedics.

Mtndog Collaborator

Rusla- I'm so so so sorry. Yuck, yuck and double yuck!

Fiddle-Faddle Community Regular

How awful1 I hope you feel better soon and it never happens again! It's exactly the same as food poisoning to the rest of the population, isn't it? I guess that would make sense--your body knew it was poisoned and did everything it could to get that toxin OUT.

I'm actually wondering--any chance that whatever you ate 5-12 hours BEFORE the candy might have been carrying some kind of toxin as well? Lately, things like green onions and spinach seem to be carrying little nasties with them...

Rusla Enthusiast

I ate nothing different than normal. But because my reaction came from the candy about 12 hours later that was my reaction to it, I know that is the only thing it could be.

And believe me everything that came up was chocolate. Essentially as you said that when we get glutened it is like food poisoning because we are literally being poisoned by food. I also had my nasty bowel pains and the gurgling with this that usually accompanies a glutening.

Rusla Enthusiast

Well after and in depth conversation with Purdy's they guaranteed me that none of the chocolates I had contained no wheat or gluten. We figured with the one chocolate that I might have got a chocolate that was the last in the bunch and got too much syrup in it which may have caused a bit of a problem. However, it could have been the flu also. Although i have DH on my head so, somewhere gluten played a part. I am still weak and my ribs really hurt, all that vomiting didn't help.

Ursa Major Collaborator

I hope you feel better soon. No matter what they say about the chocolates, you better avoid them from now on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.