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Yogurt, Any One?

Ronnie

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RiceGuy Collaborator
RiceGuy
Posted
It's not the carrier. It's the cobalt. I can't take any form of supplement containing cobalt. In addition to vitamin B12 supplements, I also have to avoid prolonged contact with:

jewelry

snaps, zippers, buttons and buckles

tools, utensils and instruments

machinery parts

hair dyes & cosmetics

pigments in pottery, glass and crayons

joint replacements and dental appliances

shell splinters

cement, paint and resins

printing inks

tattoos

welding rods

electroplating

animal feed

tires

That's in addition to the long lists for nickel and chromium.

I'm surprised and frustrated by being questioned on this. Allergies to minerals and metals is no different that being allergic/intolerant/sensitive to a food. Do you question others who are avoiding minute amounts of food allergens? Is it really implausible to think that too much of these allergens in my system may cause health issues?

Michelle

PS: Sorry, Ronnie, that this thread got hijacked. It wasn't my intention. I was just interested in finding a yogurt that was both gluten and supplement free!

OK. It's obvious that you've done well in figuring out your sensitivities to such things. That is what I (and I think tarnalberry) where simply trying to verify. Sorry if our zealous wish to assist seemed like undue mistrust in your research. I guess it's because many folks seem to make mistakes regarding their health, and like the rest of the caring members here, we didn't want to see you having added difficulties. I extend to you my sincere apologies.

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Michi8 Contributor
Michi8
Posted
OK. It's obvious that you've done well in figuring out your sensitivities to such things. That is what I (and I think tarnalberry) where simply trying to verify. Sorry if our zealous wish to assist seemed like undue mistrust in your research. I guess it's because many folks seem to make mistakes regarding their health, and like the rest of the caring members here, we didn't want to see you having added difficulties. I extend to you my sincere apologies.

It has definitely been an eye-opening experience with regards to sorting out my health issues. Heck, I did the patch test to confirm if I had a latex allergy...latex (and related manufacturing chemicals) came back negative, but I got an strong positive on this other stuff. So one more piece of the puzzle falls into place.

If anything, my attempt at going gluten free is probably adding more difficulties than I need, but, in the absence of positive test results (including an incorrectly done DH biopsy) it seems like trying it can't hurt.

Michelle

tarnalberry Community Regular
tarnalberry
Posted
I'm surprised and frustrated by being questioned on this.

That is what I (and I think tarnalberry) where simply trying to verify.

Just to clarify, I wasn't questioning the existence of the the trace allergies. I just don't fully understand how they work and am truely interested. After your post, it sounds like it truely is a 'level of tolerance' issue, but the level is very, very, VERY low (basically, nothing above what it necessary for basic metabolism). I'm still curious about the pharmokinetics, but that's just me. :)

I've known people with skin allergies (my MIL has a nickel allergy, and hence can't wear gold below a certain purity, for example) to metals, and it's a fascinating thing, especially when you traditionally hear/think about allergies as being reactions to proteins. :huh:

Michi8 Contributor
Michi8
Posted
Just to clarify, I wasn't questioning the existence of the the trace allergies. I just don't fully understand how they work and am truely interested. After your post, it sounds like it truely is a 'level of tolerance' issue, but the level is very, very, VERY low (basically, nothing above what it necessary for basic metabolism). I'm still curious about the pharmokinetics, but that's just me. :)

I've known people with skin allergies (my MIL has a nickel allergy, and hence can't wear gold below a certain purity, for example) to metals, and it's a fascinating thing, especially when you traditionally hear/think about allergies as being reactions to proteins. :huh:

Yes, it is different in that it isn't a protein reaction...is it really an "allergy" as such, or a different type of immune response? It makes me wonder, too, if reactions to foods can also come about from trace minerals, metals, chemicals in our foods rather than an actual response to proteins...could this be why some people react to certain foods, but test negative for allergy on scratch tests?

In addition to my skin allergies, I have OAS (Oral Allergy Syndrome...which is a misnomer since the reaction is not limited to the mouth) related to my severe allergy to birch tree pollen. I have just discovered that the list of possible allergy foods is much longer than listed by my allergist...and includes wheat (whole wheat is also a suspect food for nickel allergy.) So, even if I am not celiac or gluten intolerant, I may still have issues with certain grains based on my known allergies...and will probably benefit from a gluten free diet.

Michelle

plantime Contributor
plantime
Posted

Michelle, thank you for answering! I do not disbelieve you, I just am curious to know more. I react to different metals in jewelry, and cannot have surgical staples, so I fully believe that you have bad reactions to trace metals. I shudder to think of what it does to your insides, when it breaks out your skin so bad!

Felidae Enthusiast
Felidae
Posted

Okay, it may cost a little more but I eat Olympic organic yogurts and sour cream (from BC). I don't know about the B12 content, but they are very good at answering e-mail questions.

Michi8 Contributor
Michi8
Posted

Just got a reply back from Astro (a Parmalat brand.) They said that the only yogurt product they can declare gluten free is Jeunesse. At this time they are still awaiting confirmation from their suppliers so they can make a declaration about other Astro yogurts.

Also, any vitamin B12 in their products is naturally occuring, rather than an added supplement...so that's good news...I know I can safely have Astro Jeunesse yogurt. :) I'll have to contact other yogurt manufacturers to confirm whether B12 listed in the Nutrition Facts is naturally occuring or not.

Michelle

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    • ElisaL
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      By ElisaL · Posted

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    • Wends
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      By Wends · Posted

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But I want to knos if it would be enough to do damage.” NO - this is OCD brain at its best! Hijacking your thoughts and justifying it because of the very real fear of gluten contamination. That’s OCD all over. Like a devil in the driving seat. Fears that are based on some kind of reality are hard to argue with. Boss it back! Recognise this for what it is. OCD using fear of gluten as its excuse to keep you entrapped. Own the OCD in this scenario, don’t let it own you. Normal cleanliness rules apply. Washing your hands before you handle food you’re putting in your mouth is fine. Washing after the gym is normal. Once daily cleansing wipe of your phone etc. Even if you did go rubbing your hands all over surfaces and licking them there might be a trace exposure to gluten possible. But I’m guessing you don’t usually do that sort of thing. Even if you inadvertently were to ingest trace gluten - it won’t be enough to do damage, no. It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. Having said that, there is nuance and personal tolerance threshold. If you’re super sensitive “may contain gluten” labelling is a godsend. But this kind of labelling is more aimed at informing customers with type 1 food hypersensitivity/ allergy reactions. The company is basically legally covering themselves, because there may be a risk of cross contamination. Not to be confused that it means there is cross contamination. In addition to products being labelled gluten free. Many products that are labelled can still contain gluten by the way - in fact any processed products labelled gluten free can still contain the allowable level of gluten (up to 20 parts per million according to Codex). A study was done not too long ago that showed gluten free processed products such as cereals, breads, flours etc. can and some are in fact contaminated and have above the legal allowable amount of gluten in them. 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Avoid ultra processed products, high in seed oils, refined grains, and sugar. Not just gluten can cause a leaky gut. Fructose, alcohol, egg white lysozyme, emulsifiers, added gums, the list goes on. “8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if it’s gluten or something else but our dish washer doesnt seem to make it completely clean.” If in doubt have your own cutlery set, plate and dishes etc. for your sole use that you handwash yourself. Carry a camping fork/spoon set when out and about if needed. “9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.” That’s a classic OCD fear. Nothing to do with gluten as such. OCD brain is using gluten as the excuse here. I personally have the habit of using a cleansing wipe or dust cloth on my phone, nightly, that eases this sort of worry. For example a micro fibre dust cloth will do the trick, keep one on your nightstand? They are antibacterial as particles cling to the cloth. “10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers.”  NO. But again these OCD thoughts are hard to argue with. If in doubt, just a quick wipe with a cloth daily should suffice. Normal cleanliness practice. But if you don’t, or forget, don’t sweat the small stuff. “11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.” Better if it is gluten free, yes. “12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc.” Still safe if do not explicitly contain gluten grains / derivatives AND if within the use by and use within dates. “I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore.” Really hope these replies to your questions help. Just remember, in the midst of overwhelming thoughts and darkness under OCD clouded vision, the light and sunshine is always shining above. Take a moment or two when you are able in each day - even if it’s last thing at night - to meditate. Focus on something that you enjoy and appreciate. Or sit in a quiet space and try to relax and tune in to your higher self. Ask for guidance and soothing from your guardian angel. Over time it works but don’t worry if your brain is anxious. Eventually it will quieten down some. Try to focus on a real food, nutrient dense and naturally gluten free diet, this will help your anxiety and future health in the long run. Please eat real food - not cornflakes and sandwiches. Eat a steak, eggs or fish for example. Gluten exposures may happen, but don’t sweat it, dust yourself off so to speak, and carry on with a natural gluten free diet as best you can. Own your OCD don’t let it own you! Similarly, when it comes to a gluten free diet for celiac disease, own the process, don’t let it own you! You’re 18. That’s great. I’ve been managing OCD since childhood (in my 40s now. Many years of research, trial and error so to speak. Diet makes a difference. To quote Doc Brown to teenagers Marty and Jennifer, ‘ …your future hasn’t been written yet. No one’s has. It’s whatever you make it. So make it a good one.’
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    • KimMS
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      By KimMS · Posted

      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
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