Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Soooo Frustrated

ami27

By ami27
in Food Intolerance & Leaky Gut

Recommended Posts

ami27 Apprentice
ami27
Posted

I felt so good when I first went gluten free. Now I'm back to being irritable, weak feeling, fatigued, etc. I'm reading that is very common. It doesn't make me feel any better or know what to do. I've cut out dairy in addition to the gluten. I'm still not any better. So it has to be something else in addition to dairy. How would I go about learning how to do a proper elimination diet? I think that is the route I need to go. I wish this was easy. But, just when I think I have things figured out...more questions come up.

Ami

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

The other common offenders are corn, soy and eggs. Try eliminating these first (I know, easier said than done), and then trying a true elimination diet. When I started my journey on a restricted diet I only ate fish, rice, sunflower seeds, most fruits and most vegetables for a whole year. It worked great though - all my health problems cleared up by the end of that year. I slowly started adding foods back in and now only avoid gluten, dairy, soy and eggs. (And I can handle small amounts of eggs now, after 10-1/2 years.)

ami27 Apprentice
ami27
Posted
  • Author

I'll try that. I have been eating eggs in the morning. I will stop that along with the corn tortillas. I don't consume soy so that shouldn't be too difficult. I really want to feel better. I was just discussing with my fiance' that I'm going to try only eating fish, chicken, rice, veggies and fruit and see how I feel. It's just really frustrating to have to be so restrictive. We have 2 boys also and I have figure out food for them and myself. It's almost like I have to decide 2 distinct meals each time we eat, one for them and one for myself.

Ami

lonewolf Collaborator
lonewolf
Posted

I hear you on how frustrating it is. I spent a year making two different meals most of the time. The good news is that it helped and that I got over most of my other food restrictions. Now it seems that only avoiding gluten, dairy, eggs and soy is a breeze. And I can make meals that everyone eats with no problems.

celiacgirls Apprentice
celiacgirls
Posted

I've re-read some of your posts and it looks like you have only been gluten-free since a little before Thanksgiving. Are you sure you have all traces of gluten and/or dairy out of your diet? I'm asking because after I had been gluten-free for a few months, I noticed I was tired and irritable again. I had been eating out at supposedly safe places then. I decided to stop doing that and be much more in control of all of the trace amounts and cc in my diet. That has helped. My kitchen at home is very close to being gluten-free since my husband is the only one who eats gluten. He has his own bread and toaster but everything else is gluten-free. Since I've done that, I've noticed that when I have eaten in a restaurant, that feeling comes back. And for me, it lasted 2 1/2 weeks. So if you are making mistakes or getting cc'd even every few weeks, I think that could be the cause of your problems.

ami27 Apprentice
ami27
Posted
  • Author

Karen,

Thanks for the info. And you are right I've only been gluten free since the day after T-giving. I was eating out, but have stopped that too. I only eat at home and I take my lunch to work. Both of my boys got A honor roll so I told them I'd take them to Chili's as a treat. We went last night and I sat there and drank water while they all ate. It just isn't worth it to me anymore to even try to eat gluten-free out. So maybe in the past 3 weeks I was getting gluten while eating out and I'm suffering the residual effects. I am not a patient person in case you haven't noticed ;) I felt so good that first month or so. I want to feel that way again! So I'll continue to make the best choices I can. And of course all the wisdom here on this board helps tremendously.

Ami

RiceGuy Collaborator
RiceGuy
Posted

One of the mistakes I first made was not replacing the wheat stuff with enough gluten-free grains and other things. After switching to a whole grain brown rice, and looking up and adding some other grains and stuff, that seems to have helped. I do know however, that there is a lot of damage from years of glutening to repair, so I have to be patient too.

For the fatigue, try a vitamin B12 subligual supplement. The methylcobalamin form is apparently the best according to the research. Just be sure to check the additional ingredients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

I've discovered that I can only tolerate seeds and some nuts in small amounts. Sunflower seeds give me the WORST diarrhea, same with pumpkin seeds.

kbtoyssni Contributor
kbtoyssni
Posted
I'll try that. I have been eating eggs in the morning. I will stop that along with the corn tortillas. I don't consume soy so that shouldn't be too difficult. I really want to feel better. I was just discussing with my fiance' that I'm going to try only eating fish, chicken, rice, veggies and fruit and see how I feel. It's just really frustrating to have to be so restrictive. We have 2 boys also and I have figure out food for them and myself. It's almost like I have to decide 2 distinct meals each time we eat, one for them and one for myself.

Ami

Eventually I would move to cooking one meal for everyone. Cooking two meals is an invitation for extra stress and cross contamination issues.

  • 2 weeks later...
hathor Contributor
hathor
Posted

Here is a description of an elimination diet:

Open Original Shared Link

I'm sorry -- I realized after this post I replied with the same information in another thread you started ...

tarnalberry Community Regular
tarnalberry
Posted

If you had been eating out, that could be part of the problem. Even with a number of places I feel quite safe at, I keep it to once a week at a maximum - and that often is a *rare* occurance, and only when I'm *very* confident of the location and dish I'm ordering. There's just too much risk of contamination.

Additionally, cutting out the exercise could be making you feel worse as well, if you used to be a very regular exerciser. And you might look at how else the macronutrient content of your diet has changed to see what your body is trying to adjust to.

  • 1 year later...
Michelle B Newbie
Michelle B
Posted

Be warned - some people are intolerant to sunflower too

I've been gluten free for years now, with a few hairy moments when I accidentally ate something with gluten in (why, why, don't Kelloggs put it in on the label!) but gluten free for ages.

But now I'm reacting again. Weak, trembling, irritable, diarrhoea, constant upset stomach, headaches, and a massive massive weight gain. Can't work out what it is, so cutting out soya and milk for while.

But I did notice I got a stomch ache after eating crisps - so sunflower oil going out too.

Bit by bit, the food I can eat is going down to carrots and turkey! (Bananas and raisins make me ill too)

It's all getting very frustrating!

Goodness knows what I'll happen when I go on holiday, and will have no control over the food I eat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.