Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions For The Gluten Free Pros


hillyb6

Recommended Posts

hillyb6 Rookie

i have 6 kids we suspect 2 might have celiacs or some sort of gluten intorlance

should i have all 6 tested?

looking in my cabinets im an sad to say almost everything in there has got to have gluten literally

my cabinets are filled with processed foods and snack all proably posion to my daughter the ped

didnt recommend takeing hre off gluten until her gi appointment in end of jan

but were up yet again at 10 pm with a tummy ach and joint pain proably from dinner i am guessing

we had chicken and rice but it was a skillet dinner the frozen kind i havetn dug the wrapper out of the trash

and looked at the awful crap that must be in it

so do you all just throw all the food away or just filter it out she is suppose to be back in school praobly friday and i know her school isnt gluten free i dont know if they even offer that for lunch

so i am guessing i am gonna have to make her lunch what do i make i am sort of

totaly lost as to how to start

i am a gluten dummy, my mom has called me all day since i told her about what they testing dd for

and drove me nuts on what has gluten in it and what doesnt she has bene sick gi wise her entire life

and i ahve since i had my gallbladder out in 99 so i dont think a gluten free diet would hurt us

even if its not celiacs but i didnt know if there was a like a 12 step program for gluten addicts like us


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ann1231 Enthusiast

I gave some of the unopened gluten containing food to a food bank, and then some of it I gave to my son's teenaged friends, some I sent to work with hubby. It didn't take long to get rid of it.

For lunches we pack chicken salad or tuna salad in a tupperware dish and pack a fork with it. Alongside that we usually have some raw carrots, celery with nutbutter to dip it in, bananas, oranges, etc. I've also made big salads and put some leftover chicken breast and cheese in it. Thermos of chili, (watch out for chili beans, they often have wheat in them), We also pack Hickory Farms turkey sausage (no wheat!) sliced thin with some sliced cheese and raw veggies. Basically anything with meat, veggies, fruits, nuts and seeds will work, whatever you and your children like.

Hope this helps :)

Ann

hillyb6 Rookie

i have no idea how to make chicken salad i guess i need to bone up on some things eh

can she have egg salad she does like that

can she have ranch dressing she loves ranch with her carrots

does anyone know if there are gluten free foods at walmart until i can get to one of the other stores we have a huge ice storm comming and i got sick kids , does anyone know if they sell already made gluten free bread in normal stores, does it taste at all like reg white bread?

i found a file on one of the celiac kids sites that list alot of name brand stuff that it says is ok

like chips

SNACKS

Lays STAXX (All flavors)

Ruffles Regular potato chips

Dorito Rollitos

Mission Tortilla chips

Orville Redenbacher

linds Apprentice

I think i can answer a few of these questions for you.

Egg salad= yes if all the ingredients are safe we make ours with just eggs, miracle whip, and mustard all of which are ok.

Ranch drssing= i believe kraft ranch dressing is gluten free. again read the ingredients but they will clearly lable it as wheat, oats, rye, or barley if its in it.

Wal-Mart= we don't have one where I am at but i have heard that the super wal-mart has gluten free things in their grocery store.

White bread= i never found a good store bought one. the best bet is to make your own there are some good mixes out there but none seem to taste like gluten bread.

i believe that the things on the list are gluten free but you can never be too sure unless you read the ingredients. hard at first but you get used to it pretty fast.

i haven't been out to eat but i know that there are some restraunts that have gluten free menus but there is always a rist of cross contamination. someone else should be able to help on that one.

I actually just reintroduced gluten into my diet because i wasn't seeing any changes after months, i had no adverse effects from this but i have read that some people do.

the children who do not have to be gluten free can eat gluten in their lunches at school if you want them too. i would have them wash their hands and brush their teeth when they got home so that there were no cross contamination problems.

I hope this helped some. Also remember that meats, fruits, veggies, nuts, and seeds are all naturally gluten free. along with some others.

darlindeb25 Collaborator

Hillyb--it's hard sometimes to avoid cross contamination in a household that big, everyone will have to help. Everyone needs to understand there can be no double dipping in the butter, peanut butter, things like that unless you label things just for her and they have to learn not too touch it.

My sister is celiac and has lived in a non gluten free home for over 5 years and does very well. I did fine when my kids were still home too. It's not impossible to do, yet it's not easy to retrain everyone either.

You must look for the hidden gluten in everything, including soaps, shampoos, lotions, medicines--it's everywhere. It sounds like you need to be gluten free too and truthfully, it doesn't hurt for others to be gluten free. My dad is celiac too and my mom eats gluten free with him, yet she still eats enough gluten that it doesn't effect her. Your other kids could eat gluten free at home and have the school lunches, etc and be ok. Many of the gluten free items that my sister cooks are very pleasing to her family--sometimes she has to beg them to leave her something to eat too.

Google gluten free and read everything you can. You will be amazed at what gluten is in and you want to find out all the info you can. Feel free to email me anytime with questions.

Deb

hillyb6 Rookie

thanks for the help

i sure hope we can find some white bread that we like cause we both looooove white bread

can a flare up cause low grade fevers ?

taweavmo3 Enthusiast

It is really overwhelming in the beginning.....but in a few months time, you will be a pro too. This site is amazing, and speeds up the learning curve a great deal! I had several breakdowns in the beginning, but with the help of everyone here, the diet just became a way of life that we didn't even have to think about anymore.

Here's a few tips I have. The books by Dana Korn are very helpful for beginners. Also, see if there is a local ROCK chapter (Raising Our Celiac Kids) near you. If not, you can also search for a local Gluten Intolerance Group (GIG). You may be able to talk to some people who live near you, and you might even get a grocery shopping buddy who can show you the ropes in the store.

If you want a medical diagnoses, you have to keep your child on gluten until the biopsy. If the results are negative, you can still do the diet with or without a doctors support.

As far as making your other kids gluten free......I have found that keeping a gluten free house is easiest, but that doesn't work for everyone. My dh and older child could eat whatever they wanted outside the home, but I wanted the house to be a safe zone. Alot of this was to decrease my stress level, especially in the beginning. I didn't want to have to watch everyone like a hawk to make sure they didn't cross contaminate anything, then worry about crumbs, etc.

As far as food goes.....the only bread my kids will eat is Kinnikinnick. I don't like the taste all that much, but it looks like regular white bread, which is important to kids. Kinnikinnick is a brand that you can trust to have tasty food, my kids love all their stuff. And Walmart has been wonderful for us....they have alot of mainstream (and cheap!) gluten free food, and will label it as such. If it isn't marked gluten free, we don't eat it, even if we don't see any offending ingredients.

Hope that helps to get you started! Come here often, and ask questions. You will learn it all in time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bassgirls Newbie

I dont know about white bread. we tried ener-g tapioca bread and my dd hated it. She now eats brown rice bread by food for life which I buy at publix. If your kiddo likes waffles you can try Vans gluten-free waffles which I can pick up wat walmart supercenter or publix nearly the same price as eggos...

lonewolf Collaborator
thanks for the help

i sure hope we can find some white bread that we like cause we both looooove white bread

can a flare up cause low grade fevers ?

Ener-G Foods Light Tapioca bread is about as close to white bread as you can get. It's best toasted, but actually okay just zapped in the microwave for 10 seconds. For easy homemade white bread the Gluten Free Pantry has a boxed mix of Country French Bread that makes delicious bread and rolls (if you bake it in muffin tins). Even my gluten eating kids and hubby love it and I have served it to company.

TCA Contributor

Everyone's tastes are different. We actually can't stand the EnerG bread. I make Pamela's from the mix that I buy on amazon .com. There is a link in my sig line to a list started for newbies a while back. Hope that helps. Kinnikinik also has good breads you can buy frozen at Wild Oats.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.