Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sinus/allergy Chronic


Guest Educator

Recommended Posts

Guest Educator
:unsure: I have been having severe sinusinus, and rhinitus and ear infections (Colesteoma...fatal to diabetics) for almost a year now. I have been told no steriods, no syrups, no cough losenges. What can I take? Have been to 2 allergists, and 2 ear nose and throat docs. I have to carry around a medicine bottle to spit the sputum in as it is to thick to swallow. It sticks in my throat. No sugar, wheat and all that other stuff that goes along with a type 1 diabetic and celiac. HELP, PLEASE!!!! :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Have you done a sinus wash or a sinus spray as a preventative? Helps wash out that bacteria that likes to stay in and grow in the moist nasal cavity. Just a thought.

-Jessica :rolleyes:

Carriefaith Enthusiast

There would be a few options for you:

Maybe you can avoid things (as best as you can) that are causing the allergies.

To help prevent bacterial infections you could add foods that naturally fight bacteria into your diet such as garlic and onions.

There are allergy shots that may help reduce the severity of symptoms.

jerseyangel Proficient

Hi Educator,

I was wondering what happened to you--haven't seen you post in a while. :) Sorry you're so ill.

I would agree with the saline nasal wash--that's what I use. I take about a teaspoon of salt in a cup of warm water. I then use an ear syrnge to flush out each nostril. I do this over the sink (naturally) with my head straight (not tilted back). The water will run out of that side, and also possibly the other. This is good.

I will use the last of the solution to gargle with--you will be amazed how much mucus is cleared away after doing this. You can repeat whenever you feel you need to.

Hope this helps--and that you feel better soon.

Budew Rookie

I had a terrible problem too. I have eliminated many foods over the past year and when I cut all grains the sinus problems completely cleared up. I got relief from the saline but it only helped a bit. Down deep I think it is corn for me. Hope you figure it out. My heart goes out to you, it is miserable.

missy'smom Collaborator

I also have found great success with the nasal rinses. I do it immediately after I wake up in the a.m. but I use 1/4 tsp. salt per 1 cup warm water. There is another thread here on the subject if you do a search.

Guest Educator
I also have found great success with the nasal rinses. I do it immediately after I wake up in the a.m. but I use 1/4 tsp. salt per 1 cup warm water. There is another thread here on the subject if you do a search.

Just a thank you note for all suggestions. The saline did not help. My sinus pockets around my nose under the eyes and above the eyes are ok. The problem seems to be the paritoid gland. It also is a sinus in front of the ear down by the jaw. I cannot take steroids due to diabetes. I have appt. with another allergist that is actually going to test me so that I will know what to stay away from. This is another autoimune problem. I need to live in a sterolized bubble. I have been off for a while because of sterolizing a new place to live and a divorce. I am back now still full of questions. I drink Peptimen by Nestle's, a tube fed patient nutritional drink. Suppose to help with vitamin and meneral deficiencies. My doc wrote a prescription for it and faxed it to Nestle. I have three cases of 24 cans. It was paid for by Medicare. There are ways to get what you need, but it is totally up to you to do all the work cause the docs just don't have time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm sorry that the saline didn't help. I don't know what else to offer--but I do hope that things will get easier for you. I know that you are dealing with a lot, health-wise, and now other things in your life.

Please keep in touch--we care about you here :)

Electra Enthusiast
:unsure: I have been having severe sinusinus, and rhinitus and ear infections (Colesteoma...fatal to diabetics) for almost a year now. I have been told no steriods, no syrups, no cough losenges. What can I take? Have been to 2 allergists, and 2 ear nose and throat docs. I have to carry around a medicine bottle to spit the sputum in as it is to thick to swallow. It sticks in my throat. No sugar, wheat and all that other stuff that goes along with a type 1 diabetic and celiac. HELP, PLEASE!!!! :unsure:

I've had 2 sinus/nose surgeries and I need another. Unfortunately the only thing that works for me is steroids and I absolutely HATE them. I am putting off my next surgery until I figure out if my sinus issues get better without gluten in my diet. So far they seem to be ok, but lately I've had some wicked nasal itch and drip and some asthma, and my chest is starting to get congested from the post nasal drip, so I have a feeling I'm headed back to progeserone UG!!

Good Luck and I really hope you can figure out what works for you!!

hathor Contributor

Have you tried cutting out dairy? This seems to be a very common cause of sinus problems. I used to get sinus infections all the time. Once I stopped the dairy over six years ago, I haven't had a sinus infection again. I've heard from others who have had the same experience or have noticed that they got less mucus-y once this was done.

Another possibility is to do an elimination diet, where you cut out everything people might react to and then slowly add them back one by one. One explanation of the approach -- Open Original Shared Link

You might explore all the medical information on the McDougall site. Looking at your medical history, I think the diet could well help with a number of your problems. Read up there and elsewhere on the work of Ornish and Esselstyn for heart issues, and the recent study (within the last year) about how a low fat vegan diet helps with diabetes.

Guest Educator
I'm sorry that the saline didn't help. I don't know what else to offer--but I do hope that things will get easier for you. I know that you are dealing with a lot, health-wise, and now other things in your life.

Please keep in touch--we care about you here :)

Jerseyangel is a great name for you. You seem to have all the qualifications of being an angel. Your comments are so full of kindness and caring that is always makes me feel so much better after I have read a comment from you. I appreciate you for doing God's work. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.