Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated Lipase

malosp

By malosp
in Related Issues & Disorders

Recommended Posts

malosp Newbie
malosp
Posted

Hi there,

I am new to this forum but not to celiac disease. I have been pretty good with my diet for the last 13 years and was very healthy.

Just recently I have been experiencing some of my old gluten symptoms. Nausea, stinging in my intestinal track, weight loss, headaches, a hung over feeling etc.

The only lab that was elevated was a slightly elevated lipase.

Does anyone else have an elevated lipase with gluten intolerance. I think I may have inadvertently gotten gluten from some meds I was taking.

Any take?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I did a the time of my diagnosis, I have not had it drawn since, but it was elevated. I don't have the labs on me now, but I can get them tomorrow and see because I think there was another lab which was elevated.

jesscarmel Enthusiast
jesscarmel
Posted

i had elevated lipase and amalayse when i had pancreatitis which the dr said was caused by the undiagnosed celiac.....

Jess

Guest cassidy
Guest cassidy
Posted

Someone posted about this a few months ago and several people responded but I don't remember much more about it. You might try searching here to see what you find.

When I had my celiac panel the only thing that came back high was lipase. I never got an explanation and I get gluten-free that very day so I didn't persue it. I'm pregnant and they have practically taken 1/2 my blood out in the last few months and all the tests have been normal, so I would think that my gluten-free diet got it under control because that is the only change I made.

malosp Newbie
malosp
Posted
  • Author

Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

  • 3 months later...
djf3 Newbie
djf3
Posted
Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

djf3 Newbie
djf3
Posted

Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
DVK Apprentice
DVK
Posted
Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

I think I was the origial person who inquired about this months ago, I was told I was having Pancreatis, However after months of being sick and having the same ranges as you with elevated lipse, once I found out I had Celiac Disease, and starte watching my diet, things went to normal.

From my understanding Lipase is produced in a fw places and us with celiacs can have problems with our pancreas if we dont watch our diet, however ours is coming from Leakage in the GUT, its standard to happen but more in celiac disease so Its not too worry about, I did have a CT scan and ultra sound and all was normal but my lipase was up and down for months,

  • 3 years later...
deezer Apprentice
deezer
Posted

I had elevated lipase around the time I was diagnosed

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748
    Juliane
    Newest Member
    Juliane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.