Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pavlov's Celiac ?

2boysmama

By 2boysmama
in Coping with Celiac Disease

Recommended Posts

2boysmama Apprentice
2boysmama
Posted

:lol:

I'm always one to come up with odd questions. ;)

So....we've been gluten-free for a few months now, and ALL of us are loving it. DH and I are losing weight, Ryan (DS #1) is feeling a ton better - and we don't intend to ever go back to our former ways of eating. The thing is, every now and then I'll see something I used to indulge in - say a cake or pizza. Logically I know how awful I felt when I ate those things and really don't feel tempted (not for long, anyway). But a lot of times my automatic physical response is DROOLING ! :angry: Does that ever go away ? I find it so odd that I would still literally drool over the very foods that used to make me so sick. I feel kinda betrayed by my body when I still have that reaction ! :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

That's pretty funny.

I realized that when I see something yummy it doesn't really register as "food". It's about the same reaction I get when I see a picture of something yummy in a magazine. It's like a 3-D representation of what I could make.

Mango04 Enthusiast
Mango04
Posted
That's pretty funny.

I realized that when I see something yummy it doesn't really register as "food". It's about the same reaction I get when I see a picture of something yummy in a magazine. It's like a 3-D representation of what I could make.

Yeah me too. I think of that stuff as something that looks and smells great, but isn't edible. Like candles or something...

TestyTommy Rookie
TestyTommy
Posted

I had a similar response. When I first went gluten-free, seeing or thinking about gluten-y foods made me incredibly hungry. It went away after a few months. Now, I'm not tempted at all.

NicoleAJ Enthusiast
NicoleAJ
Posted

You all have such restraint. I've been gluten free for two and a half years, and when I've eaten something before being exposed to the sights or smells of gluten, I'm totally fine and don't crave something I know I can't have--I look on it with disgust as the poison it is to my body. However, when I'm hungry, I salivate and wish I could eat that fettucine alfredo or tiramisu. It's not that I would ever cheat, but I think "Oh, if only my diagnosis was a bad nightmare that I could wake up from rather than a reality I must live with daily, then this would probably be the first thing I'd eat."

SchnauzerMom Rookie
SchnauzerMom
Posted

I have had that problem too. When I'm tempted I just concentrate on how bad I'll feel if I given in and that usually takes care of the problem.

kbabe1968 Enthusiast
kbabe1968
Posted

Boy. It's hard, I'm right there with ya. It's only been 18 days for me and the thoughts f never having some of my favorite foods again is daunting. Sad, really. Never again will my lips pass over a piece of Mack N Manco's pizza from the OC boardwalk. Never will I have funnel cake from a street vender again. A hot dog on a soft, squishy white bun.

BUT....as long as I'm careful, I will no longer have razor blades running thru my intestinal tract forcing me to find a bathroom so fast or I'll soil myself either.

No longer will I awake each morning feeling like I never slept.

No longer will it take me 20 minutes to get out of bed because joints and muscles won't move.

I think if you continually think of how sick it made you, you're body will no longer drool. And as you start to find new, wonderful favorite foods, those will amke you drool!!!

Keep fighting the good fight!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2boysmama Apprentice
2boysmama
Posted
  • Author
That's pretty funny.

I realized that when I see something yummy it doesn't really register as "food". It's about the same reaction I get when I see a picture of something yummy in a magazine. It's like a 3-D representation of what I could make.

I was pretty amused by it for a while too. Now my amusement has morphed into minor annoyance. <_<

Hopefully as I keep reminding myself of how awful I felt when I ate those foods, it'll go away. Funny how the body sometimes takes longer to catch up to the brain.

sewfunky Rookie
sewfunky
Posted

I haven't been gluten-free that long, but I've had a similar expereince as a vegetarian. I've been a veggie for 11 years and even today I meat can smell delicious, but the thought of ingesting it is disgusting. Going gluten-free does make me crave pizza or sub sandwiches, but the thought of my stomach turning for hours after I eat it is not appetizing. I'm under the mindset that my vegetarianism was a diet and is now a lifestyle and that one day being gluten-free will become a lifestyle that I don't even have to think about anymore because it will come so natural. Those are my thoughts.

Sophiekins Rookie
Sophiekins
Posted

I indulge my gluteny-food cravings in the only safe way a celiac can. . .tv. Before my diagnosis, I never watched cooking shows, ever. Now, I watch them whenever I can manage to wangle an hour in front of a tv. . .the fact that I can't make (or never will get around to making) 99% of the foods shown on tv is irrelevant. . .it is the safest place for me to explore my inner gastronome.

(I also get friends and family to let me smell their food in restaurants. . .a VERY good friend of mine will even describe the taste, bite by bite. . .for those of you who think this is weird, it's one way for me to experience foods I'll never get to try. . .dim sum. . .neapolitan pizza. . .and it does help with the food cravings). If all else fails and I find myself about to give in to that tempting whatever, I take a physical step back, close my eyes, and run mentally through my 10 most horrible places I ever threw up. Usually by the time I get to number four (airplane bathroom), the temptation is long gone. Gross, but it works. (Seven years and I've never deliberately cheated. . .)

L.A. Contributor
L.A.
Posted

I have become an expert at making gluten-free pizza and cakes :P all due to my cravings.

Generic Apprentice
Generic
Posted

I don't even like walking in the bakery section at the grocery store. The smell is gross to me, it used to make me feel like I would puke. I have since gotten pass that sensation but it still smells gross. I guess I just associate it with poison, it's not even tempting not even in my dreams. LOL I Can't even enjoy it in my sleep. <_<

-Laurie

Yenni Enthusiast
Yenni
Posted

Ooh, I do that too! Pizza commercials make me crazy, and I didn't even like Pizza that much. Cheese does that to me too. Really bad.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.