Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starving All The Time


emcmaster

Recommended Posts

bluejeangirl Contributor
I was one of those lucky celiacs that gained a lot of weight prior to diagnosis. I lost it all pretty quickly, but recently gained about 5 lbs due to a lot (a LOT) of overeating over the holidays. I've gotten back to my regular exercise and healthy eating (I count calories), but I just can't kick the hunger pains. I'm getting a normal, safe amount of calories (approx. 1800 a day), but I'm hungry almost immediately after every meal. I don't believe my body could have gotten used to eating so much since it was about 2 weeks total.

Seeing that I need to lose 5 lbs, I certainly don't want to gain anymore or prevent myself from losing, but I'm wondering if I need to add more calories because I might not be absorbing nutrients correctly, which could lead to hunger? Or am I just having a hard time getting back into the swing of normal caloric intake?

In case anyone was wondering, here's what yesterday, a typical day, looks like for me:

coffee with coffeemate

1 cup cottage cheese, 6 oz. fat-free yogurt, blueberries

lentil and vegetable soup

cannelini bean, turkey sausage and kale stew

large salad with veggies and cubed turkey, 2 T. dressing and a few cheese cubes

grapefruit, english muffin with peanut butter

I'm having protein with every meal, lots of veggies and fruit, and complex carbs.

:)

I don't know what it is about beans but I get really hungry after them. Especially if your just having a serving of them which I suspect you are. I would of got real hungry after having that lentil and veggie soup. I would up my protein even more if I were you to avoid hunger pains. I know advice for people who have a hard time with their stomachs taking a long time to empty is to avoid fats so I kind of agree with what people are saying. Fat slows the digestive process.

Gail


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Oh, so much to respond to and so little time :(

Just a brief note to say that I welcome everyone's comments and I do want to be able to take the time to research everything rather than relying on what I remember from books and newsletters read years ago.

I have heard of the Weston Price people and their recommendations. I have also read scathing critiques of their methodology. I will endeavor to look them up and share. Not that I necessarily disagree with everything they say -- as I recall, they don't like junk food. My memory is too foggy to offer more right now.

There are all sort of bits and pieces of comments now in this thread I think I could spend all next week answering. Are people interested in what I come up with or would my efforts be futile?

This weekend it looks like my research time will be spent trying to figure out if the more expensive chimney relining system is worth it. I spent hours today on the 'net getting nowhere. Just folks saying THEIR system is the best. Completely irrelevant, I know, but right now I have to figure out if the added 1000s of $ is worth it -- why two bids for the same work are nine hundred bucks apart -- etc., etc.

So if you don't hear from me in the near future, do not assume I am licking my wounds in defeat :lol: And let me know if there is any evidence I could cite that would change anyone's mind on this issue and what that evidence would be. My husband has started asking that question on internet forums -- sometimes people just say nothing he can say would change their minds. This at least keeps him from spending hours drafting meaningless responses.

Mango04 Enthusiast
Dr. McDougall in his books (in addition to all the studies he examines) also reports his experience as a doctor on a Hawaiian plantation, dealing with first and second generation immigrants. The first generation, sticking to their traditional diet, was invariably trim and healthy. The second, adopting a Western diet, were often fat and unhealthy. This is what started him off on his life's work.

That is interesting. In fact, that's very similiar to the research Weston A. Price did. It looks as though they likely had similiar findings. I think we might all be agreeing with each other more than we realize.

Look, we've all posted some research, viewpoints etc. ect. that we believe in. (I am glad others here find Weston A. Price interesting :)... and you do recall correctly Hathor - they don't like junk food. :lol:) Each person is capable of reading both sides of the argument and making decisions for themselves.

I don't think there would be much of point in endeavoring to find "scathing critiques" of the Weston A. Price methodology. Reading the research first (even if you decide you don't agree with it) might be more worthwile.

Beyond that, I don't think any desperate attempts to try and change each other's minds are going to help Elizabeth figure out why she's starving all the time.

hathor Contributor
Beyond that, I don't think any desperate attempts to try and change each other's minds are going to help Elizabeth figure out why she's starving all the time.

True :lol: My observations about that subject for what they are worth, based on a lifetime of trying to get down to the weight I'm at right now (and reading the experiences of others too) ...

1. Just the idea of limiting calories can make one feel hungry. I've found it better to eat when I'm hungry and not to get into portion control. Improve the quality of your diet and step up the exercise.

2. Don't try to lose too quickly. If you are coping with a holiday weight gain, realize that where excess calories go first is your glycogen stores. For each pound of glycogen, there is something like four pounds of water associated with it. So just getting a little below maintenance calories can have a marked impact on what the scales will say. This is why there is often rapid weight loss at the beginning of any diet; all that glycogen-related water is going away. Well, the process also seems to work in reverse if you overeat.

-- a confession: I gained over the holidays, primarily due to traveling (hard to eat right, exercise), parties, and food gifts (what do people give vegans? it seems like everyone happens upon nuts. Lots and lots of wonderful nuts, sitting in my house calling to me. My particular bete noire :( ) Anyway, I just went back to exercising and my regular diet (watching for those second servings motivated by taste rather than hunger). The weight came off fairly quickly without the need to count calories.

3. Hunger and satiety can be a complicated thing. For me, it is a function of having enough calories and having enough fiber. If I were Elizabeth, I would eat more and up the fiber. Particularly for breakfast -- the most important meal of the day, if you listened to your mother :rolleyes: -- the fiber and calorie content seems too low. Start out the day hungry and you will spend the day trying to catch up. My experience, anyhow.

About reading original sources -- might I suggest that people actually read the folks I've cited, too. Particularly the effective treatment of heart disease, diabetes, and other disorders by use of a low fat, vegan diet. And what Weston Price actually did and said (judging health by looking at teeth), and not just the interpretations drawn by the Foundation. And modern, more comprehensive examinations of particularly healthy cultures and what they eat. Remember that Weston Price was comparing a primitive diet to one that I wouldn't view as particularly good. The fact that diet A is better than diet B doesn't establish that diet A is preferable to diet C. Also, there are considerable differences in the primitive lifestyle that could explain the health he (thought he) saw -- more exercise (just as important as diet IMO), less stress, more social supports, less pollution/chemicals/additives/etc. about, no processed food.

I can't help asking if those of you that are followers of the good dentist -- have you also pulled out all your teeth that had root canals and pull all new teeth that need them, rather than having the procedure? He thought that many modern diseases stemmed from root canals.

Actual statistics would be good, too. The stats I've seen, to the extent they see any effect on disease and longevity of being vegetarians, show that it is healthier. (Not enough vegans to measure accurately it seems). The effect is understated probably because most vegetarians still eat things that I wouldn't judge to be good for them.

OK, I said I wouldn't go into it. Just letting you know I've done some research on your side. May I urge you all to do some on mine? I will continue to do so. I never stop reading about nutrition and its impact on health. That's how I recently came to be going gluten-free after all. Just within the last few months I've cut out high fructose corn syrup and isolated soy proteins too.

I refuse to give up chocolate, though, no matter what the WPF says. And I won't be throwing out my microwave or pulling any of my teeth, either :lol:

OK, enough of this for now. I have a life that needs tending. All this talk about hunger has made me hungry and I haven't had breakfast yet ...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.