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Losing My Doctor

Rusla

By Rusla
in Doctors

Recommended Posts

Rusla Enthusiast
Rusla
Posted

Finally, I find a decent doctor who knows about Celiac disease. Everything is going swimmingly and I go see him last Thursday at his office and he doesn't say he is leaving. There are six other doctors in the clinic and he was the most popular. He did work a great deal out of the hospital but no office there.

Well I find out this week that he is no longer at the clinic and the other doctors will refuse to take his patients.

I am so lost and have no idea where I will find a doctor who doesn't pull the "oh you can't be celiac" or hasn't a clue to what I am talking about routine. I am so very sad and the list of doctors that are taking patients, forget it they have been on the taking patients list for years meaning they are probably lousy ones.

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Ursa Major Collaborator
Ursa Major
Posted

Rusla, I am sorry your lost your doctor. I know it will be tough finding another one who actually understands. Don't give up, and I hope you'll find another great doctor soon.

Carriefaith Enthusiast
Carriefaith
Posted

I am really sorry :( So you do have that list of doctor's taking patients in Calgary? I went to see one of the doctors still on the list and I really liked him. I've went in a few times now and I'm considering him my new doctor. I'm going to PM you.

lorka150 Collaborator
lorka150
Posted

I'm sorry you are losing your doctor and I hope that Carriefaith's info can help you.

For what it's worth, I don't have a doctor - instead, I just go to my internist. It helps a lot, we have regular appt's, and so on. Maybe you can just work with your GI or if you have an internist, also?

LyndaCanada Rookie
LyndaCanada
Posted

Wow, that's awful! I'm so sorry. Do you think maybe if you contacted your local Celiac Association chapter they might have a list of good doctors? Where did your doctor go, is he still praticing in Calgary or what?

Is this your GP that you mean or your GI doctor?

To be honest, my GP was completely useless in helping me with my diagnosis, she was the one that told me "I couldn't possibly have Celiac Disease" because of my negative blood test after TWO positive biopsies. I depend soley on my GI doctor now.

Do you have a good GI doctor you go to in Calgary? You should try to get into the GI clinic in Edmonton, it's really awesome. They have a whole office building next to the U of A hospital.

There are at least 6-8 doctors that practice out of there.

Good luck!!

Lynda

jennyj Collaborator
jennyj
Posted

I can sympathize with you my doctor left at Thanksgiving, right after I was really sick. I have another doctor that I haven't been to yet but he was my mother's doctor nad he is currently my husbands doc. He is a great man but I don't know what he knows about celiac. I have to see him next Thursday for an earache I can't seem to shake so I guess I'll see whats going to happen with the rest of my problems. Good luck.

kbtoyssni Contributor
kbtoyssni
Posted

Sorry and good luck finding a new doctor. I try to look for someone younger. They may not know a lot about celiac, but they tend to be more willing to learn and try non-traditional things. They would probably still be on the "accepting patients" list just because they're new. I'm not sure if the reason doctors don't believe you is because you don't have an official biopsy, but if I were going to a new doc and they started to doubt me, I'd probably lie and said I had a positive biopsy and blood test. Not that I recommend lying to your doctor... I just get so frustrated with things sometimes it's easier.

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Creative-Soul Newbie
Creative-Soul
Posted

So sorry to hear that...I wonder why he didn't say that he was leaving? I hope you find an understanding doctor soon!

  • 4 weeks later...
floridanative Community Regular
floridanative
Posted

That totally sucks Rusla. I'm so sorry to hear this news....why didn't the guy at least say he was leaving? How odd - maybe he was fired. I'll be thinking good thoughts that you find an even better doctor but I know how frustrating the search can be. Good luck and keep up posted on your progress.

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    • rei.b
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      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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