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Dermatisis Herpetiformis (dh)

stomper

By stomper
in Dermatitis Herpetiformis

Recommended Posts

stomper Newbie
stomper
Posted

I need to hear from anyone who has controlled their DH. I have only been gluten free for a month now as that was when I was diagnoised with DH and Celiac, but feel so much better except for the DH. It is still bad especially on my elbows. Red, sore, spots that open and sting with almost any cream I have tried. Any suggestions for help?

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tarnalberry Community Regular
tarnalberry
Posted

until the dh is healed, try eliminating sources of iodine from your diet (iodized salt, seafood, etc - google can help find the list). iodine is necessary for forming the IgA deposits in the skin that make dh what it is. it may take a number of months for the deposits to clear and healt.

MGoers37 Rookie
MGoers37
Posted
I need to hear from anyone who has controlled their DH. I have only been gluten free for a month now as that was when I was diagnoised with DH and Celiac, but feel so much better except for the DH. It is still bad especially on my elbows. Red, sore, spots that open and sting with almost any cream I have tried. Any suggestions for help?

My Dermatologist told me to consult a nutritionist about the gluten free diet as there are a lot of products that contain gluten that you would never think of.You may not be completely gluten free. I've been somewhat on a gluten "reduced" diet for about a month now and i don't get any relief from these bumps. As with eliminating iodine from your diet, it is a viable solution since it effectively eliminates a part necessary for forming the bumps on your skin, but i've read you should consult your doctor before trying to eliminate iodine from your diet as your body needs it for something or other.

hope that helped

Guest Hydra
Guest Hydra
Posted

I am new to this too and have been dx'd with DH and pending Celiac test. Aloe seems to work to control it but not completely yet. Straight aloe right from the plant, not store bought.

lovegrov Collaborator
lovegrov
Posted

If it's really bad I'd talk to my doctor about using dapsone for a while.

richard

almostnrn Explorer
almostnrn
Posted

I know this sounds silly but this was my award winning combo to help a bad outbreak. I originally figured out that it helped after my first biopsy. I was told to use straight vaseline on the biopsy spot and when I did I noticed that it was clearing up my elbow. I then started smearing vaseline anywhere I had an outbreak. Depending on how bad it was I would do it several times a day if I could get away with it. If I am really itchy I use benadryl spray first let it dry and then slime up with the vaseline. Maybe this will help those nasty little spots heal up for you!

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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