Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Filipino Celiac

jhun

Recommended Posts

jhun Rookie
jhun
Posted

I'm a Filipino diagnosed with celiac a month ago. Haven't heard of the condition all my life until last month. My symptoms are vague and mainly bloating, belching and flatulence. Since I was diagnosed I've been reading alot and browsing this forum everyday and found out that this condition is genetic, I am 100% Filipino and was wondering how did I get this disease.

In the Philippines, a GI diagnosed me with IBS then I saw a second GI who diagnosed me with chronic non-specific colitis, both of them did a colonoscopy. Now, I saw a third GI in the middle east who diagnosed me with celiacs through a german laboratory. I am not biopsy confirmed and my GI doctor said it is not necessary since I have a positive lga and an elevated tTG.

I don't know how I got it since all of my relatives doesn't have this problem at all, I am the only one I know as of now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Celiac is a genetic disorder in the fact that it is related to two main genes: HLA DQ2 and HLA DQ8. A large amount of the American population has one or both of these genes (30-40%), but just having the genes doesn't mean that an individiual will have it....1 in 133 Americans has Celiac. About 90% of Celiacs has HLA DQ2, about 8% has HLA DQ8, and the remaining 1-2% do not have one of the above mentioned genes.

I don't think most of us had heard about Celiac until we got it :) I know I didn't! I didn't know what gluten was!

So, you don't have to have anyone else in your family to have it. There are many board members that are the only diagnosed Celiac. There are many that have multiples.

However, the risk for your first degree relatives is higher to have Celiac than someone who is not related to a Celiac. Celiac experts recommend that ALL first degree relatives of a diagnosed Celiac are tested.

Ursa Major Collaborator
Ursa Major
Posted

Hi Jhun, and welcome to this board. My take on your puzzlement is this:

I don't think people in the Philippines traditionally eat wheat, rye or barley. It is possible that the majority can't tolerate it, but if they never eat it, then they never get active celiac disease. Once you start adopting a diet foreign to your heritage, you may suddenly get sick, because you can't tolerate it. By the way, it appears that ALL Asians are intolerant to dairy. That could be another problem if you have started eating dairy from cows. In fact, all your symptoms could also be caused by dairy.

So, I'm afraid that you'll have to be getting back to a more traditional Filipino diet, and abandon gluten and dairy.

I hope you get better soon!

Viola 1 Rookie
Viola 1
Posted

I have a Chinese lady friend with Celiac. We figured out that many nationalities carry the genes, but don't actually have a problems until they go on a gluten laden American diet.

And of course something will trigger the symptoms, whether it be a surgery, accident or in the case of the female population, a pregnacy.

Bubs Newbie
Bubs
Posted

Many Filipinos also have a Spanish ancestry, and many folk from Spain are also Celts, so maybe that could also be it. I am of Irish/Scottish/Scandanavian descent but only seem to suffer DH - although I have family members who suffer GI problems. As a sufferer of DH I have often wondered if people of Asian extraction have a reaction to wheat in the form of Asian Acne (which seems to me to be becoming a big problem), as having lived and worked in Indonesia (and visted much of Asia too) I have seen the mad, mad rise of the use of wheat and milk products there. Anyway, think positive. I suffered for 30 years before it was figured out that I did not have psoriasis! Life gets beter.

Bubs

I'm a Filipino diagnosed with celiac a month ago. Haven't heard of the condition all my life until last month. My symptoms are vague and mainly bloating, belching and flatulence. Since I was diagnosed I've been reading alot and browsing this forum everyday and found out that this condition is genetic, I am 100% Filipino and was wondering how did I get this disease.

In the Philippines, a GI diagnosed me with IBS then I saw a second GI who diagnosed me with chronic non-specific colitis, both of them did a colonoscopy. Now, I saw a third GI in the middle east who diagnosed me with celiacs through a german laboratory. I am not biopsy confirmed and my GI doctor said it is not necessary since I have a positive lga and an elevated tTG.

I don't know how I got it since all of my relatives doesn't have this problem at all, I am the only one I know as of now.

jhun Rookie
jhun
Posted
  • Author

Hi to everyone and thanks for your thoughts. Hey Bubs you reminded me of my grandmother, yeah she's spanish, at first I was just thinking of my first degree relatives. Could be a possibility that I got the genes from her. She's suffering now from colon cancer, probably she also had celiac disease which led to her complications now. It's hard to get a diagnosis of celiacs in the Philippines since this condition is not well known there.

Planning to see a fourth GI for endoscopy and biopsy. My GI now doesn't want to do the procedure even if I insisted, he said there is no point in doing it. Just for my satisfaction I'm doing this.

Ursa Major Collaborator
Ursa Major
Posted

Are you on the gluten-free diet now? If you are, then an endoscopy and biopsy will be useless, because your villi are healing. It is very likely that you'll end up with a false negative result, and the GI telling you that you definitely don't have celiac disease, based on the 'perfect' biopsy.

So, if you have been gluten-free, don't do the biopsy.

Really, if your bloodwork was positive, and you have responded well to the diet, that should be all the confirmation you need.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted
Hi to everyone and thanks for your thoughts. Hey Bubs you reminded me of my grandmother, yeah she's spanish, at first I was just thinking of my first degree relatives. Could be a possibility that I got the genes from her. She's suffering now from colon cancer, probably she also had celiac disease which led to her complications now. It's hard to get a diagnosis of celiacs in the Philippines since this condition is not well known there.

Planning to see a fourth GI for endoscopy and biopsy. My GI now doesn't want to do the procedure even if I insisted, he said there is no point in doing it. Just for my satisfaction I'm doing this.

Well, it is and has been difficult for most of us in North America to get a diagnosis for Celiac Disease also. As most people originate in some form from European background we all have the potential to have the genes. I am the only diagnosed Celiac in my family. I am from Scandinavian and Italian background. I figure my aunt who has all the same problems I have right down to the teeth is Celiac but never diagnosed.

jhun Rookie
jhun
Posted
  • Author
Are you on the gluten-free diet now? If you are, then an endoscopy and biopsy will be useless, because your villi are healing. It is very likely that you'll end up with a false negative result, and the GI telling you that you definitely don't have celiac disease, based on the 'perfect' biopsy.

So, if you have been gluten-free, don't do the biopsy.

Really, if your bloodwork was positive, and you have responded well to the diet, that should be all the confirmation you need.

Hi Ursa, I've been in the gluten free and lactose free diet for a month now. I am eager to go for the biopsy because there are no significant improvements in my symptoms. I still have the borborygmi, belching and flatulence I had before going gluten-free. Do you think one month will affect the accuracy of the biopsy? My blood test showed like this:

Gliadin lgA (IFT) - (result) pos - (units) titer - (reference range) <1:10

Endomysium lgA (IFT) - (result) <1:10 - (units) qualitative - (reference range) <1:10

Anti tTG lgA/lgG (EIA) - (result) 1.21 "high" - (units) ratio - (reference range) <1.0

What do you think about my blood work? Is it really positive?

happygirl Collaborator
happygirl
Posted

you had a positive tTG, which is highly indicative of Celiac.

a biopsy 4 weeks gluten free will give you two possibilities:

1. if it is positive, then you have another confirmation.

2. if it is negative, you can't know if you are "really" negative....the point is to go gluten free, and your villi heal, so that your intestines and a non-Celiac look the same. Keep in mind, you will now have a "negative biopsy" on your records --- and doctors might say you "don't" have it without keeping in mind the circumstances.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.