Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Weekend From Hell

TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

OMG! I have to share my weekend directly from hell. It all started Saturday, when Colin got a bottle of my pills. He got my Lyrica. We are still baffled how he got them, as they were pushed back on the computer desk and he cant (or so we thought) climb the chair! I found one pill on the floor and thought it was odd that I dropped the pill from the nite before, I never do that. weird. Then I noticed all the rest on the floor. Now you have to know that when Colin eats and he is done, he keeps the last bite of food in his mouth for at least a half an hour, not uncommon at all. I know I saw something white in his mouth earlier, I didnt think anything of it, thinking at the time, its just breakfast. Apparently it wasnt! I gathered up all the pills on the floor, and counted 4 missing, one I know he got and I found the outside of a capsule with no powder in it too. Needless to say, poison control... actually it wasnt a big deal medicine. I could have just monitored him at home. However, I got hysterical and they told me to go to the ER where he can be watched, I will feed better. So we went there, spent 4 hours there, had to drink charcoal, he wasnt happy, but nothing happened. Thank god!

Now onto Sunday.. first he falls off his bouncy zebra. Onto the heating grate, now we have a huge fat lip with a cut, a nice gash on the forehead and his finger is sliced pretty good. Bandaged him all up, calmed him down. ok, crisis over.... NOPE...

Later on.. he gets the constipation monster... he is pushing and i take him upstairs, his little bottom right near his anus is on fire red.. he is pushing and screaming in agony. Now if you ever have fed a child or an adult charcoal you know that it gets everywhere.. no way to prevent it... I was wiping his thighs all over everything, he wouldnt stop screaming.. might be impacted, glycerin didnt work, moving his legs, all the usuals.. even though he had mineral oil that morning.. onto the ER again... get him in, there is nothing there, the problem was his little red tushy. It was sooo tender from passing charcoal, the wiping him was hurting him sooo much, he was screaming in agony. Even still today.. I keep hoping for no poopy diaper as i dont want to hurt him soo much.. well now its Tuesday, bandaids are still on boo boos... tushy is still red, except coated with plenty of A&D ointment, the kind like vaseline based.. which helps sooth him..

Thanks for letting me get it out....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Wow, what an exhausting weekend! I'm so sorry! :(

hez Enthusiast
hez
Posted

No one tells you the joys of parenting ahead of time! I am so sorry it was a rough weekend.

Hez

Canadian Karen Community Regular
Canadian Karen
Posted

I hate when things like that happen. <_< It seems that it never rains, but it pours......

Take a deep breath, and remember that it will pass!!!!

Hugs.

Karen

almostnrn Explorer
almostnrn
Posted

I am so sorry you have had such a rough time. When something (or in this case lots of things) happen to your little ones it is just gut wrenching. Just try to remember that someday, years from now, you will be able to look back and say "do you remember when you did that?". I hope this week brings you calmer times!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

LOL, thanks everyone, I am much calmer now. Even looking back at the weekend, I can see it clearly now, where I was a hysterical mess then... Its all ok now. He has a bump and a bruise, but other than that, no harm done now. I am excited though, I FINALLY got a doc to listen to me, all his pediatricians want to do here is give him a regular blood test for celiacs.. ummmm.. duh.. he isnt eating gluten.. what part of that is hard to understand??? When we were at Chop this past week, they are letting us see their GI people for him and they are going to start with a simple gene test, to see even if there is something there at all!!! finally.. someone who listens, its such a good feeling!!

Thanks again everyone.. for letting me rant and rave earlier...

Mtndog Collaborator
Mtndog
Posted

I've been meaning to read this for a few days now. OMG...I'm so sorry! I would have broken down too. Let's hope this weekend brings you much deserved realxation (and a few good laughs to boot!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

Stef

My computer has been down so haven't been on.

What a weekend..so sorry for all your anxiety but glad CHOP is doing the gene test.

Let's see..that's about 5 negatives and ONE POSITIVE...WE'LL TAKE IT RIGHT?

JUDY

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Without a doubt!!!! Its a great positive!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.