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My Symtons

sparkybear

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sparkybear Rookie
sparkybear
Posted

I'm not sure if my symtons are gluten intolerance, wheat intolerance or not. Any opinions would be welcomed. I read somewhere that people with gluten or wheat sensitivitys (sp?) are more likely to have dealt with eating disorderd because you can feel so bad after eating that you don't want to eat (me for most of my teens) Anyway here's a list of my symtons:-

*constipation

*stomach pains after eating (not severe, but enough)

*lethargy

*bloated feeling after eating

*i have been anemic several times

*bad dandruff

*headaches

*loss of concentration

*dark circles around the eyes

*cannot breath through my nose much

*when i can breath through my nose i have virtually no sense of smell

*Wind/gas

*tingling in my feet (i thought it was my laces were too tight, but evidently not!)

Please help, individually these symtons aren't much but together it's a bit of a pain!

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wowzer Community Regular
wowzer
Posted

I had almost the same symptoms as those and a few more. They have went away since I've been on the gluten free diet. I can breath through my nose again. The dark circles are gone. The tingling is happening less. My itching has went away. You could always try the gluten free diet to see if it helps. Good luck

Jestgar Rising Star
Jestgar
Posted

Hi Sparky,

I didn't have many or very symptoms either, but when I went gluten-free I discovered that a lot of things got better. It wouldn't hurt ot give it a try.

missy'smom Collaborator
missy'smom
Posted

The symptoms you list are enough to warrant a visit to the Dr. I am somewhat self diagnosed but I wouldn't necessarily recommend going about it that way. I've been reading Dr. Peter Green's book and he quoted a patient "I never felt well, and I never felt sick enough to see a doctor." This described me for many years. I had all the symptoms you listed, except the tingling and nasal problems. I would never have thought to put together all the "little odd symptoms" that I had or even thought that some of them were symptoms until they started to dissappear after going gluten-free. I had looked at check lists for different diseases over the years but none of them matched up until a GI Dr. mentioned Celiac to me and I saw the CSA check list and I had almost every symptom on the list. I was shocked. I'm 100% sure I have Celiac Disease even though I don't have a diagnosis and didn't have testing done.

Hope that helps.

sparkybear Rookie
sparkybear
Posted
  • Author

i already have a doctors appointment on friday for a prescription, i will mention it then. Thanks for the comments, it's reassuring to know that these things definatley can be caused by an intolerance, i'll post what my doctor says friday evening :)

sparkybear Rookie
sparkybear
Posted
  • Author

Just been to see the doctor and she agrees that wheat or gluten could be the problem, i have to go back for a blood test a week on Monday, and then it'll take 2 weeks to get the results. She also said that if it doesn't show anything on the blood test, that i should just avoid the foods that make me feel bad. Until i get the blood taken i am going to continue eating wheat cos I've heard it can afect the blood tests if i eliminate it now.

I'm curious tho, what are they looking for in the blood, i thought celiac could only be diagnosed with a biopsy or something similar. Does anyone know, I'll find out when i get the results but thats 3 weeks at least!

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      By knitty kitty · Posted

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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