Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Blood Test Result Interpretation


Cynbd

Recommended Posts

Cynbd Contributor

Hi there,

Friday I finally went to my first GI appointment after waiting for three months. I had not seen my blood test results until last week, I was only told that it was very likely celiac sprue by my regular doc and that I needed to follow a gluten-free diet. I went gluten free and feel much better, although I still have some problems. Definitley Lactose Intolerant, and pretty sure stress (IBS) does a number on me too.

GI wants to do an Endo/Biopsy (Said I didn't have to go gluten-free if it would be too disruptive, but that I could for about a week before the test) I am scheduled for April.

These were my blood test results in Nov:

TTG: <3 (Positive is >8) So this was a negative result

IGA: 23 (Positive is >17) So this was a positive result

My B12 was on the low side at: 234 (Normal range 200-1100)

Iron was good

What should I make of these results? Since the TTG was negative? GI Doc said Celiac is questionable since TTG is negative and the IGA isn't the best for conclusive results either.

Any thoughts from the choir?

Thank you all!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast
These were my blood test results in Nov:

TTG: <3 (Positive is >8) So this was a negative result

IGA: 23 (Positive is >17) So this was a positive result

My B12 was on the low side at: 234 (Normal range 200-1100)

Iron was good

I know that the B12 is extremely low. It should be about 1000 in a healthy adult. I have Pernicious Anaemia & GI, and know that you need to keep your B12 boosted to feel well and prevent neurological damage. That can start with any # below 350. You could try sublinguals - and retest again in a few months. I imagine you need a loading dose of shots ( 1 x week for 6 weeks), and then monthly maintainance shots. I needed 14 weeks of weekly jabs , and then monthly and my B12 was 148 when dx.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.