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Have You Ever Not Gotten Sick When You Know For Sure You've Been Glutened?

emcmaster

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emcmaster Collaborator
emcmaster
Posted

Is it possible?

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Lisa Mentor
Lisa
Posted

Yup, I think that can happen. The longer you go gluten free, the more extensive the healing. In SOME people I think that the gluten needs to build up for a major reaction. In OTHERS, one crumb will do it.

Every one is different.

Ann1231 Enthusiast
Ann1231
Posted
Is it possible?

absolutely. I have to be extremely careful because I can eat gluten and not feel sick or anything. Other times I eat it and I have a really hard set-back. I know I was glutened last week when I ate out at one meal. I felt fine. Then this week I had gluten and have been suffering since. I sometimes have a hard time staying on my diet because I often don't get symptoms.

emcmaster Collaborator
emcmaster
Posted
  • Author

What if you usually react to hidden gluten, like cc? It seems odd that I could react to a crumb or particle and not react when it was a major ingredient...

blueeyedmanda Community Regular
blueeyedmanda
Posted

Sometimes nothing happens to me and others I spend the day in the bathroom. It is almost like the toss of the coin, it is strange.

Kassie Apprentice
Kassie
Posted
Sometimes nothing happens to me and others I spend the day in the bathroom. It is almost like the toss of the coin, it is strange.

same here

rez Apprentice
rez
Posted

Everyone is so different, I couldn't agree more. I've heard of a lot of people thinking they outgrew Celiac because they had no symptoms. My 8 year old was soooooooo sick and then we put him back on gluten for a challenge (after his tTG came back slightly positive after being gluten free for three months), and nothing happened. It took about a month to the day to start getting the reactions. Now he gets the tummy aches again and he has a mouth FULL of canker sores. It's still nothing like they used to be, although we found out he's lactose intolerant from a breath test. We're keeping him away from dairy or using Lactaid. It seems one of his most outward symptoms was a lactose intolerance. We are having him biopsied next week. This is one important reason I want to find out for sure, because sometimes there are no evident reactions. They say most of the people right now are asymptomatic.

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Guhlia Rising Star
Guhlia
Posted

Actually, I get MUCH sicker from CC than I do if I accidentally eat a gluten ingredient. For example, I get sick from just a crumb if I'm eating out, but if I sat down and ate a piece of pizza I probably wouldn't get sick at all. When I did my gluten challenge a year and a half ago I made it just over a month eating gluten every single day at every meal and snack before i started to get sick. When I started to get sick I only ever got really fatigued and slept a lot. I never did get the major gastro symptoms. I just couldn't deal with being so foggy and tired. If I get CC'd I generally end up with stomach cramps and diarrhea. Luckily, I don't stay sick for very long, generally not more than 24 hours. I get mouth sores too when I get glutened, but I didn't get any when I did my gluten challenge.

I think that maybe (just my opinion) this is because my immune system is very strong when I'm gluten free and it reacts to CC violently, but when I'm eating gluten it gets kind of overwhelmed and sort of shuts down. That's just the way I see it.

Maybe you react to gluten like I do.

emcmaster Collaborator
emcmaster
Posted
  • Author
I think that maybe (just my opinion) this is because my immune system is very strong when I'm gluten free and it reacts to CC violently, but when I'm eating gluten it gets kind of overwhelmed and sort of shuts down. That's just the way I see it.

Maybe you react to gluten like I do.

This makes A LOT of sense to me. Thanks for taking the time to explain it!

CMCM Rising Star
CMCM
Posted

In one of my celiac books I remember reading about a similar subject....it said the body actually has an adaptation ability....that when you eat gluten the body can over adapt to the "poison" gluten, hence you may not react, but over time you get overloaded and the adaptation ability breaks down. Something like that, it made some sense to me when I read it. I had always been puzzled by never quite knowing when I'd be affected. Sometimes seemingly not at all, other times quite severely.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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