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Gluten-free A Restaurant Cook's Perspective


ConcernedCook

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ConcernedCook Newbie

Hello everyone,

I am a cook and a culinary student and recently started doing research on celiac disease for one of the classes that I am taking. In an attempt to procrastinate from typing a packet of gluten free recipes for the restaurant I work at I started reading this board and I'm a bit concerned about how difficult it is for people to eat gluten free at a restaurant. So, I thought some advice from the other side of the kitchen door could be useful.

First thing first, you have to realize that restaurants want your business. The success rate in the business is too low to exclude anyone. The second thing to realize is that when you tell your server that you are a celiac (or diabetic, or allergic to shellfish, lactose intolerant, don't like potatoes, whatever) and they tell the chef you have just created an unhappy person because they have to generally go off menu and actually think about cooking. Also, you've probably at least annoyed anywhere between 3 and 10 cooks because when the chef isn't happy they aren't happy.

Still, at any QUALITY restaurant, the chef and cooks will quickly get over that anger and start cooking for you. Now, this may involve a quick scan of the food on hand and the creation of some jury-rigged meal, but at better restaurants there may be a standard gluten free option that the kitchen is ready for or other dishes that can be prepared easily and without gluten containing products.

In terms of cross contamination, it is a serious concern at, like I said before, quality restaurants. Usually, we are concerned with accidentally mixing things like raw meats and cooked products, but it is just as easy to be careful about other things as well. Typically new pans are used for every application in order to keep flavor of the products true and cutting surfaces are wiped if not changed after every use. large static pieces of equipment like griddles, grills, and fryers are more difficult to clean, but it can be done in the case of griddles and grills and a pot can be filled with clean oil if something needs to be fried for someone with a dietary limitation. These are all things that a quality restaurant will do for you.

Just a few examples from my restaurant. First, any dietary restrictions are told to the managers, our waitstaff, our chef, the kitchen staff, and are posted on a special board just in case people forget. Second, at our menu meeting, where we discuss daily specials, any allergies concerning each dish are discussed and modifications that can be made to meet dietary restrictions are mentioned. We take this very seriously because we want our guests to be happy and come back. There's a saying that if you give a guest the best experience of thier life they'll tell one friend give them a bad experience and they'll tell ten and it's remarkably true.

So, how can you tell if you have found a QUALITY restaurant. Well, it takes some research. First, I would suggest taking a look at who they're buying thier food from. If you see big 18 wheelers or shabby looking little trucks and vans at the loading dock that's a bad sign. A nice clean truck with the purveyor's name on the side on the other hand is a good thing. Take a look at the restaurant's bathroom. If it's very dirty then think to yourself that they let you see it... you don't always get to see the kitchen if you get my message. Quiz your waiter on the menu, not just about gluten but about products that are used. If they seem knowledgeable then you're probably at a good place. I would also suggest eating towards the beginning of a service period since you will probably get more attention than at the midde of the night when the kitchen is busy or the end when everyone wants to go home. Finally, carry one of those little cards. They may strike fear into the hearts of chefs and cooks alike, but they can definitely help to make your limitations clearer.

My most important piece of advice about restaurants is to tell ten people every time you have a bad experience. If business starts slacking off because they won't take care of people the restaurant will either close or wake up and take notice. If you're feeling charitable tell more than the one person when you have a good meal. I would sure appreciate that.

Anyway, if you have any questions or want to tell a cook how he can better serve you then this is the opportunity. For now, though, it's time for me to type some recipes.


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lovegrov Collaborator

Thanks for the advice.

"My most important piece of advice about restaurants is to tell ten people every time you have a bad experience. If business starts slacking off because they won't take care of people the restaurant will either close or wake up and take notice. If you're feeling charitable tell more than the one person when you have a good meal. I would sure appreciate that."

So true. One of the hottest restaurants in my area a year ago is dead now because they slacked off and started serving substandard meals. When it didn't get better, people quit going.

richard

ConcernedCook Newbie

The telling people thing is so important. I hate to admit it, but restaurants are fairly mercenary and everything is driven by the bottom line so even small numbers of loyal guests leaving is a serious concern.

I also forgot to mention a little bit of philosophy that I recently had a chef share with me. Something that I've taken to heart and I've seen other people embrace too. The fact is, that people who have limited diets seriously drive restaurant choice. Now, the Chef used vegetarians as an example, but I think it can be even more seriously applied to celiacs. If my restaurant can take care of a celiac (as in give them fantastic food that helps to keep them healthy) then they will be loyal to my restaurant. So, the next time they go out to eat with thier non celiac friends they'll bring everyone to me since I can give them a good meal. The friends, well they have to go along with thier celiac friend and I'll give them a fantastic meal too. Still, my one loyal customer has brought me 4,5, 6 people just because they know they can enjoy my restaurant safely and hopefully the friends will come back too. That is just about the best marketing I can buy.

celiac3270 Collaborator

Thank you for all your tips, ConcernedChef.....it was quite interesting to read all that and I agree that telling people about bad experiences -- or good -- can really influence the restaurant's business. The restaurants, particularly, the chain restaurants that serve gluten-free food are getting a lot of attention on these celiac boards because they are accomodating. Names like "Outback" and "PF Changs" just fly around the board and when one in two hundred have celiac, that's a lot of business they are, or will be soon be getting. It doesn't take much; just a few extra cooking things, supplies, and letting potential customers know that you'll accomodate them. Anyway, thanks for posting that -- it was interesting and helpful to read.

hthorvald Rookie

Thanks for your wonderful insight. I recently celebrated my birthday in Truckee, California, at a great restaurant. When making the reservations, I mentioned my celiac disease and asked if they could accommodate my diet. They took the time to read the menu to me, check with the chef, and at the end of the day, I felt comfortable about eating there.

When we arrived, the chef came out and personally spoke with me. I asked him about my dinner choice, which he concurred was safe, but recommended the roasted potatoes vs the mashed potatoes. He said that he had cooked pasta in the same pot and wasn't sure if it was thoroughly washed out or just rinsed before cooking the potatoes. I was very appreciative of that tip.

Finally, he asked me if I carried the cards that explain our diet restrictions. Apparently, he had a patron the week before who also had celiac disease and she presented him with a card detailing how her food needed to be prepared. He thought that was a wonderful idea and suggested that I carry these. I did ask him if that would upset a chef and he said indeed not. That he wanted everyone's business and that he appreciated the opportunity to serve me.

So, that being said, I've ordered these cards and will start offering them to the wait staff to hand to chefs. If they balk or if they can not accommodate me, I will go elsewhere, like any good consumer.

Thanks again for your great, enlightening message.

capawa Rookie

I would love to know where concerned chef works. If he is in St. Louis, I would go to his restaurant in a heartbeat. :D

ConcernedCook Newbie

I'm glad you enjoyed my input. I also had a discussion with two of our chefs this evening after work about gluten-free cooking (one our pastry chef the other the chef in our fine dining restaurant) and restaurant etiquette. It was all sparked by a walk in 8-top (eight people at a table) in the fine dining restaurant which we all considered bad form. So, first off, if you're going to a restaurant with more than 5 people get a reservation. I know, nothing to do with gluten-free, but it is greatly appreciated.

Anyway, when we began talking about the gluten-free side of life, the pastry chef made a very interesting statement. Essentially, she said that if someone goes to the restaurant with some dietary restriction that she would need time to prepare for it. I know, sounds kinda obvious, but it was the time she needed that was shocking. For a nut allergy it was fine to just mention it when ordering dessert. Lactose intolerant? when you sit down at the table. Celiac, well then she needed three days to do anything more than a plate of fruit. So, Hthorvald, telling them about gluten-free when you made a reservation was a good idea and I would encourage everyone to do that.

Oh, and sorry Capawa, I'm not in St. Louis. I'm in Montpelier, VT. Still, anyone in the area is welcome at our restaurants. They are Chef's Table (fine dining) which is where I currently work and the Main Street Grill (casual) both are associated with New England Culinary Institute (there is also a bakery in town, but gluten-free isn't really an option there though I know one of the chefs is working on developing some gluten-free products for them too). There are also a bunch of NECI restaurants in Burlington, VT should you work there which also have similar philosophies. Oh, and thanks for your confidence in my abilities though I have to admit that I wasn't doing anything gluten-free tonight. Maybe I'll pull out a gluten-free special for tomorrow though just for the heck of it.


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judy04 Rookie

Concerned chef,

I'm glad to hear that restaurants are finally hearing about this disease

and I wonder how much is taught in your training? Do better restaurants

keep a supply of gluten-free food, bread or pasta? Also do they go into cross contamination

issues? The town I live in has a culinary school and I wonder if they are teaching this? I haven't had much luck with dining out, wish I could.

ConcernedCook Newbie

Judy,

I can't speak for other schools, but New England Culinary does do some training when it comes to things like celiac. Still, it is by no means intensive. Mainly we are taught what various people can and cannot eat and some of the consequences of getting it wrong. Still, I would rate what I've learned as adequate to allow me to safely cook for a celiac so long as I could ask the occasional question. Cross-contamination is something that we worry about with regards to much of our work actually, though gluten generally isn't normally one of the things that I personally would pay attention to. Now, cooking for someone who was gluten-free would change that, but if I'm busy and there isn't any restriction I'm not going to probably even worry if (for example) a bread crumb gets knocked into the shallots. Still, the layout of most kitchens lends itself to separation of products that have gluten to those that don't. In the case of our kitchen we will very often cut fresh product if there is a dietary restriction of some kind and there is ANY question of the safety of the product.

And, while I would have to say that even the best restaurants don't have gluten-free specific foods on hand specifically for that purpose, better restaurants have the means to create many gluten free things from scratch. Now, you might not get pasta (though, I do know a chef who always carries some random flour substitute so that he can make pasta should someone be gluten free), but you can definitely get something that is both tasty and healthful. If you really want a restaurant to keep gluten-free products on hand then I would suggest that you make yourself a regular at the place. Many restaurants will keep small stocks of specialty ingredientsif they know someone will come in and use them regularly. (I think I'm beginning to sound like a broken record about the whole keep going to places that you know will take care of you thing, but it is true).

Anyway, I hope that helps and I wish that i could tell you if the school in your town was teaching those things. Unfortunately, culinary schools are all very different in thier styles of teaching and the curriculums. Still, of the top 3 culinary schools in the country, NECI being one, we are the least academicaly focused (we're very very hands on) so for us to actually have a sit in a classroom type class on something means that other schools most likely have the same.

Guest ~wAvE WeT sAnD~

ConcernedChef--

First of all, thank you for sharing your valuable information with us. I have yet not to experience a confidently Gluten Free meal at a restaurant.

I was wondering if you could give me some advice. I live in a small town with very few (I doubt if there's even ONE) quality restaurants, such as the three or four star types that have chefs like you who will go above and beyond the call of duty for every customer. I'm glad that some of the franchises (ie, McDonald's) are taking the initiative to begin featuring Gluten Free menus. The only issue is, obviously, many restaurants will, for instance, still fry their fries in the same basket as breaded chicken. I wish I knew exactly how far out of their way a good chef such as yourself is able to go at a local dining place. I realize that at smaller restaurants that making meats, etc separately is difficult. If I encounter a restaurant that isn't as well prepared as the ones you describe, what should I do? How can I fully make sure that the food will be free of cross contamination? I know to a certain degree that there aren't completely definite answers to these questions, but any guidance is very much appreciated.

Thank you for taking the time to speak with us!!!

Help us Beat the Wheat (barley, oats, rye and malt),

ConcernedCook Newbie

Wave -

First off, you might be suprised by the number of chefs at even mediocre restaurants who would be willing to put something together that is gluten-free. Honestly, thier main problem would be a lack of ingredients that they could use. For example, many smaller, less expensive restaurants buy things like pre-breaded chicken fingers. Better places make thier own (it actually saves them money) so if you wanted a gluten-free chicken finger (there are much better things to eat of course, but this is just a simple example) all I would have to do is run to our protein cooler, grab some of the chicken which we use for fingers and toss together an alternative breading (rice flour, salt, pepper, some fresh ground spices) and crack a few eggs to get the stuff to stick and we're off to the gluten free races.

I should also qualify the rest of this by saying that I firmly believe a taking some risk with my food is a good thing and that I am fully willing to feel a little sick for a unique experience. (I have had serious food poisoning a couple of times because of this) Also, I am absolutely unwilling to take any sort of risk with lesser experiences so no rotten burgers and fries from some shack just because I'm hungry. Sorry, I can miss that meal, and my waistline will probably thank me for it.

Anyway, in terms of eating at restaurants that aren't as prepared, well you're taking some risk but there are definitely tricks to finding foods that you can eat. First, and I can't stress this enough, tell your server that you are gluten-free. Do this EVERY time you go out to eat even if you go somewhere every day and they know you. Also, make sure that you inform them that you don't do this out of choice, but because you'll get sick. That will get the chef's attention because he's probably seen too many Atkins folks and will just assume that you're low carb rather than gluten free.

Second, offer to explain your limitations directly to the chef. Servers are often just college or highschool kids and will sometimes flake on bits and pieces of information. Remember, they forget things that you ordered sometimes. Do you trust them to also remember a bunch of rules (eg, no fryer oil which has been used for breaded products).

Next, try to sneak a peek at the kitchen. Sometimes there's a window in the door, or a separate window or you can just sit and have a drink while you wait for a quick glance through the door when someone goes in or out. Chaos is ok, but dirt, grime or anything alarming might be a sign that they won't pay much attention to your needs. You can even ask to peek your head in. That will probably be met by a "no," but it's worth a try.

Ok, now that you've checked out the place and quizzed the staff it's time to take a look at the menu. First, anywhere that says "NO SUBSTITUTIONS" on the menu should be avoided whether you're gluten-free or not. It just says that they're not really there to take care of a customer or that they're using a lot of premade food.

Next take a look at what's on the menu. There are a lot of things that you can learn about a restaurant from the menu. So many that when i go out with non-cook friends I end up giving the Menu Reading 101 class just because they think it's too cool. Anyway, I'm going to break it up into a few sections.

First, vegetables, there are some obvious things to look for. Sauted and Braised vegetables are probably safe for just about any gluten-free individual to eat. Grilled are, in my opinion, probably safe to eat as well despite what the little cards say. Most grill cooks use separate parts of the grill for different things, one area meat, one fish, one veg, one to toast rolls for burgers... so cross contamination is unlikely, but still possible. Fried veg is probably right out since it will most likely be battered with some gluten containing product and be fried in oil that is used for other breaded things.

Next, meats, this is somewhat problematic, but once again you're probably safe with a saute just make sure to tell them to not flour the meat (it's a restaurant trick to get a nice brown crust). The grill is the same for meats as it is vegetables probably safe, but not 100%. Roasted things, like chicken are also probably on the safe list. Even things like prime rib are probably safe, not the gravy it's served with, but the rib itself is AOK. One caveat, you should ask if the meats are rubbed with any spices before being put on the heat. Some spices include flour as an anti-moisture agent so if they aren't ground from whole then you might ask to not have the meat rubbed.

Starches are pretty easy, look at what they're offering and if it's something you can eat then go for it. Of course, feel free to ask questions and make your server sweat.

Sauces... I'm guessing that most gluten-free folks who are eating out are caught by sauce rather than anything else. I'm going to get a little technical here, but hopefully it will help. There are traditionally 5 "mother sauces" that most other sauces are based off of (less so today, but it's a nice place to start). They are Veloute, Bechamel, Espagnole (brown sauce), Tomato, and Hollandaise. Of those 5, only two are gluten-free those being tomato (think italy) and hollandaise (think eggs benedict). The others would only be made gluten-free by places catering to the gluten-free market. If you see some french name for the sauce on the plate then ask your server what it's mother sauce is. They might not know, but the chef should and if you hear any of the first three types then stay away. Ok, another sauce that you might see is beurre blanc (or beure rouge) which is a butter sauce and should also be safe. Ok, last one, pan sauces which if made correctly should be fine. Still, some places don't make them right. So, here are a few questions to ask of your server, "how is the sauce thickened?" If they say roux then say no to the sauce. "Do you use beurre manie(a flour, butter thickening agent)?" A yes equals a no-go. Finally, "Does the sauce use Demi-Glace?" With a follow on of "How do you make your Demi?" First, demi is a thickened, reduced veal stock and is a cooks secret weapon in making things taste good. Now, there are a lot of ways to make the stuff and most don't involve gluten products, but some do and better to be safe than sorry. Overall though I would lean towards pan sauces, hollandaise, and beurre blanc as they are the most difficult to crosscontaminate.

Now, armed with that knowledge, you can pick and choose from the menu and at least give the cooks some gudelines about what you want to eat. I guess though I could have summarized this all by saying ask questions and lots of them.

So, I have a question to ask of you all. I know cross contamination is a worry, but how sensitive are you in terms of cooking vessels? I have been known to go through 100+ pans in an evening and every one of them (Ok, sometimes one sticks around for a bit and gets re-used to make a sauce if I'm really busy) goes into the dish pit to be scrubbed, washed, rinsed, and sanitized before it is brought back to me. Is that clean enough? Also, we use stainless steel, cast iron, and aluminum pans. Is there one that you have found safer?

celiac3270 Collaborator

As long as they're well-washed, the pans should be okay. One surface to avoid is teflon--really difficult to remove all the gluten from. It's good to hear that you use that many pots and pans instead of reusing everything multiple times........

ConcernedCook Newbie

Well, I do my best about not re-using, but like I said sometimes convenience wins the argument. Still, in the case of allergy issues, celiac, etc I always use a clean pan. Also, I personally try to avoid using teflon ever. I recently heard a study where it is one of the top two contaminants in the human body with the other being nalgene (as in the bottles) so I've given up my teflon pans (not my nalgene bottle) in favor of well seasoned cast iron and I'm steadily convincing the other people I work with that it's an awesome replacement. I have a standing bet with them that I can cook anything in cast iron and not have it stick. Unfortunately, I haven't lost yet and they've gotten wise to it so no more fleecing of my co-workers with that little bet.

crc0622 Apprentice

Unfortunately, due to the same thing that creates that wonderful seasoning, cast iron is a no-no for us! The gluten won't be scrubbed away (and what good cook would scrub their cast iron, anyway?)!

Stainless steel and anodized aluminum is good - easy to scrub clean.

Thanks for all the great info. I do tell everyone I can possibly tell when I have a good experience, Celiac or otherwise! And I try to let management know when a Chef does a really good job, too, even if it means a phone call the next day. They should know how much it is appreciated when their staff goes beyond the call of duty!

Celeste

ConcernedCook Newbie

Thanks for the info about cast iron. Actually, they are the pans that I usually re-use anyway. Also, FYI in many restaurants cast iron pans tend to get scrubbed and reseasoned every day since it keeps them more sanitary and our burners get hot enough to season a pan in about thirty seconds. Regardless, I will pass the word. Stainless steel and aluminum only for celiacs.

I've found it very interesting by the way, I am fixated on whether the plates I am putting out are gluten-free or could be easily made gluten-free. It seems to be about 25% are gluten-free as is and could be guaranteed to be safe with some extra care, 25% could be made gluten-free easily (eg. change a breading to use another type of flour), and the rest are pretty labor intensive to make gluten-free (eg. pasta). Also, the folks that I've been working with have become very conscientious too. As a matter of fact, one of the guys used chickpea flour last night to dust his lamb rather than wondra just because it made his plate gluten-free. Now, he complained about how it didn't sear right all night, but cooks are, if nothing else, complainers.

Anyway, I'm off to work with a non-gluten-free special I am sad to say. Still, it's an easy fix for anyone who needs it that way so I suppose there is hope even for me a gluten fanatic. ;)

debmidge Rising Star

Dear Concerned Cook: Thank you for taking the time to visit and discuss gluten-free meals with us. Please encourage all chefs/restaurant personnel to visit with us so that we can exchange info and ideas and come to an understanding of each other's parameters.

I recently had a great experience when I held my 25th wedding anniversary at a catering place (The Westwood in Garwood NJ). I spoke with the chef when I booked the party and he understood what I needed for my husband. They made my husband's meal 100% gluten free. I tried to make it very basic for them and not go overboard on what to make him. Just plain white meat chicken and mashed potatoes, he brought his own gluten-free bread. They helped make a very memorable experience wonderful.

Unfortunately, the diner we used to go to didn't seem interested in what consitutes a gluten-free meal...and we don't feel confident going there any more. We were pretty much weekly customers of the diner (good diner food).

Deb

kschmitz Newbie

Hello,

I am recently diagnosed with celiac disease and am new to this forum. I am also very concerned about eating out. A dietician I contacted recomended bringing aluminum foil whenever eating out and asking that my meat/fish be grilled on the foil. Has anyone tried this before?

ks

ConcernedCook Newbie

Deb-

It's good to hear that you had a good experience with that caterer. Typically, that kind of business is very careful when it comes to food allergy/illness issues and I'm sure that it helped to make it easy for them. In terms of the diner, well you win some you loose some (too bad you're loosing a good diner since they're hard to find). Honestly though, being a cook in a diner is probably one of the most difficult places to work because of the fast pace so I wouldn't count on them being as careful as they could be anyway.

ks-

I'm not too sure about the aluminum foil for a couple of reasons. First, I don't know if you're going to get any of the nice benefits you get from a grill (those nice dark char marks) because the foil won't make very good contact and will probably reduce the heat that the food is exposed to. So you may well be better off asking that it be cooked in a saute pan so then you at least get the nice browning thing going on. My second concern comes from the restaurant side which is that the foil might stick to the grill which could lead to a contamination issue down the road (aluminum foil in someone elses steak... not a good thing). Still, it could all work though I do admit that I will laugh like crazy at the first server who walks into my kitchen carrying a piece of foil. Also, most restaurants have thier own foil if you don't want to carry around your own so you can probably just ask for them to do it for you.

Anyway, I'll do a little experiment today before service and see if I can get the aluminum foil/grill thing to work with some level of success and without third degree burns on my part. Results to come shortly.

kschmitz Newbie

Thank you so much for trying the foil on your grill. I'll be waiting for your response as to the results you got.

ks

ConcernedCook Newbie

First off, I forgot to do the aluminum foil test last night. I promise that it will happen tonight.

Anyway, I'm still typing the recipes that started this whole post (transcribing 50 poorly written and/or just plain bad recipes so that they make sense and work takes a while) and have been looking at what other people have given me as recipes and it makes me wonder...

So here's the question, what do you want in a gluten-free recipe or gluten-free food in general? Not what do you want to know how to make, but do you want good food that doesn't contain gluten or do you want replacements for food that currently has gluten in it. Eg... do you want a gluten-free fried chicken or a nice chicken dish that doesn't pretend to be something else. Part of what brings this to mind is that I've played with alternative flours a bit in the past few days and while many of them will do an ok job they also tend to not be as good as wheat flour. I'm not saying that I wouldn't use the alternatives, but that I could probably make tastier food without trying to recreat already existing things.

I hope that makes sense.

tarnalberry Community Regular

This is my opinion (and since I'm not on the list of people asking for the recipes specificially, it's not even an opinion of a member of the target audience), but keep in mind it comes from someone who cooks, knows how to cook in short amounts of time, enjoys doing so, and is good at it.

I have a feeling a lot of us would find the diet easier and be happier if we focus on foods that are naturally gluten-free. Trying to make something that we remember and love as a wheat-based item gluten-free, is making something that isn't. There are A LOT of naturally gluten-free foods - pick up a regular cookbook and you'll find a lot of things you can eat with no modification other than leaving out the "serve with bread" step. But a lot of us aren't as familiar with those recipes if we don't go out and look for them. I don't feel denied in missing anything, I don't feel left out, or deprived in any way when I'm surrounded by very tasty, unquestionably gluten-free food. (The Chili Pork Stir-Fry I made last night... mmm... tasty! Takes only as long as it takes to cook rice.)

I know other people prefer to modify recipes they're used to, but I'm sure I'll keep pushing for people to expand their horizons and try things that are naturally gluten-free (and not expensive), 'cause I'm silly that way. :-)

debmidge Rising Star

Dear Concerned Cook: I was turned down by two other caterers before I found the one who would cook one meal gluten free. They rudely told me that they couldn't do that (cook one meal gluten free) -- both of these caterers advertise as a place for weddings, so they are equivalent to the place (The Westwood) who was able to do it. In retrospect I am very glad I went to The Westwood instead because in addition to the gluten free meal for my husband, the rest of the guests had great food that wasn't gluten free and great service. The Westwood couldn't do enough to make my 25th Wedding Anniversary a wonderful time.

Although the chef at the Westwood was somewhat familiar with gluten free food, in general servers and other non chefs are not. My husband is celliac, I am not. He hasn't set food in a restaurant since his diagnosis last Autumn. When I dine out with friends and family I ask the servers if they are familiar with celiac and I give them the CSA's restaurant card. I'd like to think I might be helping another celiac in the future by giving the server this info.

Jamesmommy Newbie

Could you please tell me how you can get one or a few of the CSA card's you are talking about??

Thank you,

Jamesmommy

Boojca Apprentice

I just want to say that we haven't tried eating out gluten-free yet....I'm working up the courage...but now that I know NECI is training it's students so well we're there!! I live her in Burlington and can't wait to take our son to his first dinner out!! ConcernedCook, you have just won a lot of business for NECI. They should give you a tuition break as a "finders fee"!! ;-) I'm letting our support group know as well as all my friends and family.

Tell all the restaurants/bakery that the best thing they could do is put a flourless cake in the dessert menu, or a fabulous parfait or something along those lines.

Bridget

debmidge Rising Star

The restaurant cards are from Celiac Sprue Assoc.

www.csaceliacs.org

The pricing is .25 cents each card

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    • KimMS
      Hello! I did a brief search on this and couldn't find recent posts, but feel free to direct me to something if I missed it! I have had a difficult time confirming which thyroid medications (specifically generic forms of Levothyroxine) are gluten-free and safe for celiacs. I am pretty confident the generic manufacturer Mylan is safe, and I have been taking this for almost two years. Recently (I think b/c of a recall), Mylan has not been available at my local pharmacies. The list I typically use for gluten-free drugs (http://glutenfreedrugs.com/newlist.htm) does not list any of the other manufacturers offered by pharmacies in my area (Accord and Macleod). When I do a search, sites tend to say these brands are gluten-free but I can't fully confirm, and other sites say that only Lannett and Mylan generic brands are safely gluten free. I have called manufacturers and they say "there are no gluten ingredients" but they don't have information regarding manufacturing/cross contact. In particlar, Accord said there is gluten present in the manufacturing facilities so they can't guarantee no cross contact. What recommendations do you have for finding levothyroxine that I can mostly be assured is safe for celiacs? It is tricky b/c I found one I was confident in but now I can't seem to get that manufacturer at any pharmacy near me. I don't want to be unnecessarily overly concerned about this, but since it is a medicine I take daily, I want to be pretty certain it is safe (I have both celiac and gluten ataxia so I need to be very careful with any gluten intake and cross contact.)      
    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
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