Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Anyone? Sick And Mystified


oceangirl

Recommended Posts

oceangirl Collaborator

Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free, a year gluten-lite and had been doing much better with more good days than bad. This siege began with introducing Perdue whole chicken (I cook ALL my food- do not eat out or even at friend's and family's homes- andeat just a few prepared products.) Our home is almost entirely gluten-free) I was having Amy's tomato/basil tomato sauce without apparent upset, I reintroduced Lara bars (banana) and had some Green Mountain Gringo salsa.

Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) and French wine. I did have some Cabot cheddar cheese which I'd reintroduced as well to no apparent ill-effect and a Pamela's shortbread cookie for lunch. I had a HORRIBLE night- feel like I'm back when I didn't know what was wrong with me! Is it possible the little styrofoam trays they put salmon in or the white absorbant pad that's in there could be a problem? I know, this is nuts but if anyone has any thoughts, I TRULY appreciate it! I had blocked out how awful it is to be this sick!

Thank you for any help!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Nothing looks out of the ordinary to me. Do you think you might have a stomach virus? My non-gluten intolerant son had a lot of stomach trouble last week ... sometimes it's easy to forget that we might just be "normal" sick.

DebbieInCanada Rookie
Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free...

Lisa,

Here is what I experienced - once I was gluten free for a period of time, I started getting those symptoms again. I did some more elimination from my diet, and found that corn was causing very similar symptoms to the gluten. Once I removed the corn products from my diet, I started feeling great again. So maybe something else is causing you to get sick again.

From the food you listed, it's hard to identify any obvious culprits. I would suggest looking at the most common allergens (corn, soy, eggs, dairy, etc), and try removing those for a period of time. If that makes a difference, try re-introducing one at a time to see if it causes a reaction.

Also, look at your other products - personal care, etc. for other sources of contamination.

Hope you can find a solution.

Debbie

chick2ba Apprentice

I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

oceangirl Collaborator
I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

Thank you all so much for replying. Carla, I'm fairly certain it's not a "bug", although you're right that we need remind ourselves to sometimes when hearing hoofsteps to think "horses". Debbie- very sound advice and I will continue to "weed", although I am also corn, soy and mostly dairy-free. I think someone wrote on here once that they use corn in those styrofoam trays, I'm not sure. And, Chick, thank you for the advice about Pamela's. They are a treat thing every now and then for me and I don't THINK I've reacted before but I won't have any for awhile as I try to sort this out.

I very much appreciate all of your advice and I will weigh all of it. Sometimes on this end of the tunnel it's hard to believe you'll ever get back to the other side again, so your encouragement is great. I just went skating to pretend I'm not feeling nauseous and in pain. (It didn't work brilliantly, but, what the heck...)

Thank you!

lisa

miles2go Contributor

Lisa, just wanted to say hi from Orono. It sounds like you're going through similar issues as mine since gluten-free for 14 months. Some days are just terrific and then others are not and when we feel used to feeling well, it feels like absolute crapaliciousness. My cat eats gluteny cat food at times and that doesn't seem to bother me, even though I have to hold my breath around the bread aisle at the grocery store. I'm currently battling a sinus infection that didn't go away after the first course of antibiotics...second time in three years. Yeesh.

Hope you're feeling better soon, bake your own cookies, remember that multiple allergies can cause this and your hubby is a sweetie and maybe someday we'll have the gluten-free beer up here, too. :)

Lisa Mentor

lisa:

Perhaps a change in ingredient in your cosmetics. Also, someone mentioned an electric can opener with gluten goo on the blade. Have you introduced any new lotions, dish soaps... Some fruit juices contain gluten, where you would think that they would not.

I hope you feel better soon, or better yet, find what it is so that you can prevent getting sick.

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Lisa,

I am sorry you are having a tough time. The main thing that stuck out for me is the Pamela's cookies. I don't know what it is with them....I do well with her other products, and used to do well with her cookies....but I realized that I just cannot tolerate her cookies. I honestly don't know if its gluten or not....but they bother me consistently now.

You mentioned, "Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) " .... are you saying the salmon etc was from like, the fresh prepared food section at the grocery store? I used to eat stuff from the nice places, and I would always get sick, even after talking to the people about ingredients, etc. I think they don't think about cross contamination, and it could be a source of problems for you if you are super sensitive.

Best of luck in finding out what the problem is....I hope you feel better soon!

Laura

miles2go Contributor

I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Mango04 Enthusiast
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

No but...farmed salmon is usually injected with coloring to make it pink (farmed fish eat unnatural diets that cause unnatural coloring). Some people are bothered by farmed salmon for that reason (whether or not that's gluten-related..I don't know :huh:) .

happygirl Collaborator
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

It is not possible to ingest gluten from an animal that is fed gluten.

darlindeb25 Collaborator

One thing that was not mentioned--the wine. Wine makes me just as ill as being glutened. I now realize I can not drink any alcohol. You may want to try not drinking or if you need--drink it again to see if it is the culprit.

oceangirl Collaborator
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

oceangirl Collaborator
Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

Thank you Deb and everyone else, too! I will check out the wine; I will check on everything!

lisa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.