Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Anyone? Sick And Mystified


oceangirl

Recommended Posts

oceangirl Collaborator

Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free, a year gluten-lite and had been doing much better with more good days than bad. This siege began with introducing Perdue whole chicken (I cook ALL my food- do not eat out or even at friend's and family's homes- andeat just a few prepared products.) Our home is almost entirely gluten-free) I was having Amy's tomato/basil tomato sauce without apparent upset, I reintroduced Lara bars (banana) and had some Green Mountain Gringo salsa.

Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) and French wine. I did have some Cabot cheddar cheese which I'd reintroduced as well to no apparent ill-effect and a Pamela's shortbread cookie for lunch. I had a HORRIBLE night- feel like I'm back when I didn't know what was wrong with me! Is it possible the little styrofoam trays they put salmon in or the white absorbant pad that's in there could be a problem? I know, this is nuts but if anyone has any thoughts, I TRULY appreciate it! I had blocked out how awful it is to be this sick!

Thank you for any help!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Nothing looks out of the ordinary to me. Do you think you might have a stomach virus? My non-gluten intolerant son had a lot of stomach trouble last week ... sometimes it's easy to forget that we might just be "normal" sick.

DebbieInCanada Rookie
Hi.

I'm at the end of my rope with a over a week's worth of glutening and apparent re-glutening and cannot place a culprit. I am 10 months gluten-free...

Lisa,

Here is what I experienced - once I was gluten free for a period of time, I started getting those symptoms again. I did some more elimination from my diet, and found that corn was causing very similar symptoms to the gluten. Once I removed the corn products from my diet, I started feeling great again. So maybe something else is causing you to get sick again.

From the food you listed, it's hard to identify any obvious culprits. I would suggest looking at the most common allergens (corn, soy, eggs, dairy, etc), and try removing those for a period of time. If that makes a difference, try re-introducing one at a time to see if it causes a reaction.

Also, look at your other products - personal care, etc. for other sources of contamination.

Hope you can find a solution.

Debbie

chick2ba Apprentice

I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

oceangirl Collaborator
I've reacted many many times to Pamela's gluten-free cookies (several varieties; definite gluten reaction). It took me forever to suspect that they were gluten-ing me since it's a 'trusted' brand. I know other people don't react to those cookies, but my health has improved dramatically since removing them from my diet. Hope you feel better soon.

Thank you all so much for replying. Carla, I'm fairly certain it's not a "bug", although you're right that we need remind ourselves to sometimes when hearing hoofsteps to think "horses". Debbie- very sound advice and I will continue to "weed", although I am also corn, soy and mostly dairy-free. I think someone wrote on here once that they use corn in those styrofoam trays, I'm not sure. And, Chick, thank you for the advice about Pamela's. They are a treat thing every now and then for me and I don't THINK I've reacted before but I won't have any for awhile as I try to sort this out.

I very much appreciate all of your advice and I will weigh all of it. Sometimes on this end of the tunnel it's hard to believe you'll ever get back to the other side again, so your encouragement is great. I just went skating to pretend I'm not feeling nauseous and in pain. (It didn't work brilliantly, but, what the heck...)

Thank you!

lisa

miles2go Contributor

Lisa, just wanted to say hi from Orono. It sounds like you're going through similar issues as mine since gluten-free for 14 months. Some days are just terrific and then others are not and when we feel used to feeling well, it feels like absolute crapaliciousness. My cat eats gluteny cat food at times and that doesn't seem to bother me, even though I have to hold my breath around the bread aisle at the grocery store. I'm currently battling a sinus infection that didn't go away after the first course of antibiotics...second time in three years. Yeesh.

Hope you're feeling better soon, bake your own cookies, remember that multiple allergies can cause this and your hubby is a sweetie and maybe someday we'll have the gluten-free beer up here, too. :)

Lisa Mentor

lisa:

Perhaps a change in ingredient in your cosmetics. Also, someone mentioned an electric can opener with gluten goo on the blade. Have you introduced any new lotions, dish soaps... Some fruit juices contain gluten, where you would think that they would not.

I hope you feel better soon, or better yet, find what it is so that you can prevent getting sick.

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Lisa,

I am sorry you are having a tough time. The main thing that stuck out for me is the Pamela's cookies. I don't know what it is with them....I do well with her other products, and used to do well with her cookies....but I realized that I just cannot tolerate her cookies. I honestly don't know if its gluten or not....but they bother me consistently now.

You mentioned, "Last night we ate salmon, zucchini and summer squash with garlic and shallots and fresh basil (from a store) " .... are you saying the salmon etc was from like, the fresh prepared food section at the grocery store? I used to eat stuff from the nice places, and I would always get sick, even after talking to the people about ingredients, etc. I think they don't think about cross contamination, and it could be a source of problems for you if you are super sensitive.

Best of luck in finding out what the problem is....I hope you feel better soon!

Laura

miles2go Contributor

I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Mango04 Enthusiast
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

No but...farmed salmon is usually injected with coloring to make it pink (farmed fish eat unnatural diets that cause unnatural coloring). Some people are bothered by farmed salmon for that reason (whether or not that's gluten-related..I don't know :huh:) .

happygirl Collaborator
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

It is not possible to ingest gluten from an animal that is fed gluten.

darlindeb25 Collaborator

One thing that was not mentioned--the wine. Wine makes me just as ill as being glutened. I now realize I can not drink any alcohol. You may want to try not drinking or if you need--drink it again to see if it is the culprit.

oceangirl Collaborator
I'm mostly vegetarian and this could be the sinus infection talking, but is it possible to ingest gluten from animals that are fed primarily on gluten? Like farmed salmon?

Margaret

Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

oceangirl Collaborator
Thank you, Laura, Lisa and Margaret for your thoughtful responses! (Margaret, UMO is my alma mater sp? I love Orono) After reviewing my food log I am suspicious of Pamela's perhaps along with the cheddar cheese. (bummers about the cheese) No, the salmon is just freshly caught salmon BUT this time it WAS farm-raised and I have wondered about what animals eat as well. There's so many potential factors. Thanks, Lisa and Laura- my cosmetics are gluten-free last I checked, (Lancome lipstick, Fructis shampoo and I rinse with cider vinegar-great shine, great conditioner), Michael reviewed my food log and he suspects the Larabars, but I just don't see it- I think they might be rough and give IBS symptoms, but I don't think they are a gluten culprit. The issues I have with gluten are pretty unmistakable. I so appreciate all your kind words. Today I feel a LITTLE better, but it's the nights, after supper and after midnight that kill me. That's always been the case with this and I don't know why. Tra la, tra la... I'll keep trying to unearth the problem although many times I find I never really know for sure.

Take good care. Oh, and Margaret, I sure hope your sinus infection clears SOON! No fun!!!

lisa

Thank you Deb and everyone else, too! I will check out the wine; I will check on everything!

lisa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,809
    • Most Online (within 30 mins)
      7,748

    Ello
    Newest Member
    Ello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.