Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Final Testing For Emmah


vampella

Recommended Posts

vampella Contributor

Her enterolab gene test should be arriving at the lab by 10:30 this morning.

Wish us luck.

Also someone wanted to know how much the shipping cost me to send it back, it's was only 33.81 for over night from Manitoba Canada to Dallas TX.

We had her monthly weight and height again yesterday and she's gained another 1/2 lb. She's now 28 lbs and 37 1/2 i nchs tall at 4. YAY EMMIE!! That's like 5 lbs or so thus far & I think 2 inch's.

Also, Emmah's Dr got the letter from that horrible gastro and he laughed at it very hard because I had seen him the next day fuming angry & told him everything that happened.

She told him which he found funny as hell that I DIDN'T know why We were there, not her *ya OK*, and in the top of the letter that the IGA levels were fine but go to the bottom of the letter and it Say's well I don't know what her iga levels are.

She also went on to cover her ass, she said" this does not mean Celiacs will not develop in the near future"

He also told me that in her letter that she was saying the reason she believed emmah didn't have celiacs was because firstly the neg ttg & secondly no indented buttocks. remembering she's already be gluten-free for 4 months before getting to the gastro. he said she was going by "old" symptoms from 20 + yrs ago. before tests were more accurate. he said children who had indented buttocks and such were so far gone by the time they were dx'ed that they had these symptoms which we rarely see now since getting the ttg and parents awareness. she was a weirdo and I LOVE how she covered her butt!

Emmah's been gluten-free for 5 months now & doing great.

Anyway, thanks for all your support, I don't know if I could've done any of this somewhat properly without you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vampella Contributor

She also said in her letter that she was against the gluten-free diet LOL I just laughed and said good for her.

ptkds Community Regular

Good luck!!

I can't believe that a GI dr thinks a child has to have an "indented buttock" to have celiac. So, would my dd's cute little dimples on her bum count?? :lol:

ptkds

blueeyedmanda Community Regular

Good Luck *hugs*

vampella Contributor

So enterolabs did get the tests yesterday. yay. Does it really take the 2-3 weeks to get the results????

it's just too darn long to wait.

Lindsay GFMom Apprentice
So enterolabs did get the tests yesterday. yay. Does it really take the 2-3 weeks to get the results????

it's just too darn long to wait.

It took 2 weeks to get our results. We sent them on a Monday and we had the results first thing in the a.m. exactly 2 weeks later on Monday. We did the full test tho--gluten, dairy, and gene.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Suze046 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Reintroduction of Gluten

    2. - oyea replied to Lions31's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Neuropathy still after 4 months gluten-free.. help

    3. - barb simkin posted a topic in Related Issues & Disorders
      0

      celiac, chocolate and alcohol

    4. - dixonpete commented on dixonpete's blog entry in Pete Dixon
      3

      Hookwormed status report

    5. - Jmartes71 replied to numike's topic in Food Intolerance & Leaky Gut
      9

      is my celiac disease gone?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,311
    • Most Online (within 30 mins)
      7,748

    James Forkovitch
    Newest Member
    James Forkovitch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Suze046
      Hi, so just to put you in the picture, I’ve had lots of digestive issues over the past 6 months, diarrhoea, constipation, gut ache, cramps, head aches, lost 2 stone in weight am perimenopausal.. need I go on. I know some of this is caused by stress and I’ve always had to watch what I eat so noting too processed of fatty and rich. I’ve had blood tests, stool tests gall bladder scan, repeated tests and nothing showed up (which is good) I tested negative for celiac back in March. I’ve just done 6 weeks gluten free and I have to say things got better. My doctor told me to reintroduce it so I did this 9 days ago but gently and I’m still keeping some gluten out of my diet. My question is how long can it take for a reaction because my diarrhoea constipation and cramps are back but only in the last 4 days and it started with a slight unsettling tum feeling first like it might kick off but not sure. So I’m wondering if this is just a coincidence or if it can take your body that long to react? Anyone else been through this? Advice needed! 
    • oyea
      I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns with small amounts of gluten.  I also get POTS (Postural Orthostatic Tachycardia Syndrome) when I eat gluten. My heart beats so fast in the middle of the night I can't sleep. I'm usually up for hours. 
    • barb simkin
      Anyone bothered  by chocolate and alcohol.  Found I cant drink  alcohol or eat chocolate  Anyone else
    • Jmartes71
      This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30 years.I was not informed by anyone about the condition other than its a food allergy. Long story short if it wasn't for this website.I would be so much worse. I have been glutenfree since 1994 and was diagnosed with many other foods in 2007. I have stayed away from those items, except dairy sometimes I'll cheat when I know I'll be home a few days.My work history is horrible thanks to my digestive issues. I had my past primary for 25 years and everything im going through, he danced around celiac disease. My last day of employment was March 08, 2023 I was a bus driver and took pride in that.I get sick easily and when covid hit me and I stopped taking tramadel to push to give my bloated body a break, I haven't " bounced " back.Though not that well before but worse now.I applied for disability because yet again I was fired solely on health, which by the way seems to be legal because no lawyer wants to help.I was denied and my primary stated let me fluff it up a bit.FLUFF IT UP A BIT?He has been my doctor for 25 years! All that Im going through was basically ignored and not put together. I switched primary doctor and seeing new gi and its EXTREMELY EXHAUSTING because they are staying all my test came back clean, good, its normal. Except THANKYOU LORD JESUS HLA DQ2 is positive that Itty bitty tiny little test of positive FINALLY VALIDATION RIGHT.No, Im still struggling and fighting its not fair
    • Joel K
      Since medical insurance is not affected directly by celiac disease on an ongoing basis (i.e. medication, medical devices, daily monitoring, home care nursing, etc), I rather doubt anyone would be denied a policy for having it as a pre-existing condition. I’ve certainly never been and I have two pre-existing conditions that are managed with diet alone and both are long-well-known by my doctors and via medical testing and procedures. Insurance is all about risk management, not health. 
×
×
  • Create New...