Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Been Glutened Over A Month?

Mtndog

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamabear Explorer
mamabear
Posted
OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

Sorry you are having such a rough time, Mtndog...I have had some long lasting glutenings. Usually they last 2 weeks or so, but I figure at least a couple have been strung together to last to a month or slightly longer. I haven't taken away dairy when it happens, because most of my dairy is yogurt and that usually helps me with its natural probiotics. I do make sure my vitamin intake is bumped temporarily then as I get the muscle/nerve twitches and cracks in the corner of my mouth. The extra B complex/folate and vitamin C helps that, too. I don't know if that will help you heal or not. It works for me. And figuring out what I ate that wasn't right! Not always so easy!!!! My last one was just over a month, so I had my serologies checked to be sure it had cleared up. They were normal, so my paranoia about it has abated now.....hope yours quits soon!!!

Jestgar Rising Star
Jestgar
Posted

Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Mtndog Collaborator
Mtndog
Posted
  • Author
Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Oh would that it were so!!!!!!!!!!!!!!!!!!!!! Thanks for the good wishes- yes, it was the Triple Clown of glutenings but this a.m. it actually feels more like stomach flu.

It's so weird how the symptoms are the same bit feel TOTALLY different.

gfp Enthusiast
gfp
Posted
I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

In my experience the quantity doesn't seem to matter.... it can but then every so often the tiniest CC can have me knocked for 6...

Another theory I have is our body stores up gluten in fat... (well around fat) and when we starve and start using the stored fat for energy we release the toxins... indeed we probably release lots of toxins so if your not eating then your using up your fat reserves and releasing the toxins stored away which can make you feel icky all by itself....

On the + side.... you are getting rid of these toxins... once and for all instead oif hiding them away...

emcmaster Collaborator
emcmaster
Posted

I had the same problem. I've been feeling 'off' for about 2 months after I know I got glutened at least 7 times over a week (holidays at the in-laws :blink: ). I think it's some other intolerances now, but it could just be taking you a long time. Who really knows with celiac!??!

missy'smom Collaborator
missy'smom
Posted

I'm sorry to hear that you're not feeling well. The same thing happened to me a while back. Ate out at a restaurant that can handle gluten-free. Got my dish and it looked like regular version so I had hubby try it and weren't sure so waiter checked and yup it was reg one so replacement came and I still got glutened. It took 1 week for the worst of it to get better but 2 more weeks for bloating, C depression, lethargy etc. to really improve. Now 3 weeks later I'm only starting to get back to where I was before. :angry: Made me wonder if 2nd try was still full gluten version. I made the mistake of going at a busy time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks all for your commenst and support. It is DEFINITELY the flu........ :blink::angry:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.