Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overaeacting


Nikki2003

Recommended Posts

Nikki2003 Contributor

My mother inlaw was talking with my husband and he is also convinced from her that alivia who is 7 years old may have a tapeworm. I think they are way over reacting. She eats ALOT cannot usually satisfy her she is still losing weight. She takes food at night up to her room and hides the evidence under her bed. She does this everynight and she is on a sleep aid becasue she doesn't sleep well atall. And her hunger wakes her up. I have even tried feeding her shortlt before bed,And it doesn't help. Any thoughts on what could be going on? She is on a gluten free diet for celiac.

I am clueless.

Thanks in advance


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I see from your signature that she's been gluten-free since Dec. 06. It took me more time than that to slow down in my eating (I used to eat two or three times what my 6'2" hubby eats!!) and gain weight, and I didn't have any intestinal damage at all! Be sure all the gluten is out of her diet ... look for places it may be hiding ... hopefully, they will take their determination and help you be sure she's 100% gluten-free!!

BTW, hubby still calls me a Hobbit because I eat so often!!

2kids4me Contributor

uh, I hope she is kidding about the tapeworm, to get tapeworms she would have to eat a mouse, or bird....(they require a secondary host).

Yes, she may need more time for her intestine to heal, but if you have concerns, please contact her doctor and mention it.

What kinds of food do you feed before bed? Protein will help slow digestion and satisfy hunger over long term - so combining a protein + starch/ fruit /vege/yogurt/ may help.

Does she show any signs of lactose intolerance?

Sandy

shayesmom Rookie
uh, I hope she is kidding about the tapeworm, to get tapeworms she would have to eat a mouse, or bird....(they require a secondary host).

You can get tapeworms by playing outdoors, eating undercooked meat or through being exposed to a human that has tapeworm (via infected feces on toilet seat and improper hygiene). It's really not that far-fetched....but not incredibly common either. Open Original Shared Link. There are tests that can be run to rule this out.

I suppose that you could also have a blood check done to screen for elevated antibodies (in case she's accidentally getting gluten). Or you could look into other food intolerances like casein, soy and possibly egg. It's hard to gauge how "extreme" the eating habits are unless you physically write it down and begin to look at real caloric intake and the ratio of carbs, fats and proteins. Some combinations promote weight maintenance/weight loss while others promote weight gain.

With that said, I can tell you that my dd wasn't gaining weight due to a problem with casein and soy. And with casein...her sleep habits were atrocious. Within a few days of taking it out of diet, she was like a different child and her weight started to climb. She's still a peanut...but a peanut who is growing at a steady rate that is on the growth charts.

Generic Apprentice

It took me about 4 years to start not feeling hungry all the time and to actually start putting weight on. I could feel physically full but still have the hunger sensation.

Nikki2003 Contributor
It took me about 4 years to start not feeling hungry all the time and to actually start putting weight on. I could feel physically full but still have the hunger sensation.

-Laurie

thanks everyone. She and nicole have a follow up with the gi dr on the 19th to redo blood work. And they have another appt on the 21st for food allergy testing. Alivia's should be interesting because not always but often after she eats anything she breaks out in a rash.

celina

gfp Enthusiast

Sorry ... but if she's hiding food then is she perhaps also cheating on her diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nic Collaborator

For the first year my after my son was diagnosed he was like an eating machine. We used to call it the feeding frenzy. He would go from one thing to the next. We thought he just liked junk so we limited him to healthy foods only (yogurt, fruit, etc.) but he ate that the same way. I think his body was just catching up. Now, 2 years after diagnosis, he eats normally but has gained a total of 15 pounds in the past 2 years and has grown 6 inches. I would say he has caught up.

Nicole

Nikki2003 Contributor
For the first year my after my son was diagnosed he was like an eating machine. We used to call it the feeding frenzy. He would go from one thing to the next. We thought he just liked junk so we limited him to healthy foods only (yogurt, fruit, etc.) but he ate that the same way. I think his body was just catching up. Now, 2 years after diagnosis, he eats normally but has gained a total of 15 pounds in the past 2 years and has grown 6 inches. I would say he has caught up.

Nicole

all the food she takes is gluten free because she takes snacks and hides them under her bed, I totally gutted her room the other day so is she hides something I will find it.

But she went to the ped the other day and she was 49.6 lbs from 54 in nov. he wants her to eat a boost or protein bar a day or 2 a day and he wants to see her in 6 weeks to see if she is gaining or atleast maintaining the weight.

Thanks for all the info.

celina

ptkds Community Regular

Has she been checked for diabetes? Increased appetite is one symptom of type 1 diabetes

Just a thought. Good luck!

ptkds

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.