Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Rages


VioletBlue

Recommended Posts

VioletBlue Contributor

I ate something about three days ago, I do not know what, but the depression and rage came back with a vengance. I've been gluten free for almost three months now and thankfully the terrible depression and rage went away . . . until now. I've narrowed it down to either the over the counter pain reliever that TopCare swears is gluten free or some kind of accidental contamination at work.

How long does it usually take for the depression and rage to subside for those who have those symptoms?

Do other allergies cause this same phenomena? Does soy or corn or lactose allergies or intolerances affect the nervous system the same way? I can't keep doing this, it's just too devestating. How do other people manage to work and carry on with their lives through something like this? It wasn't so bad when it was a way of life, but now it's just so much worse. I want to be happy again! :(

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

I think a number of foods can cause adverse reactions like you describe. Years ago, I remember watching show about food allergies and children/behavior. Once I saw the segement, I realized how little I knew about these things.

They had a boy (about 7 or 8yrs old), playing quietly in a room , sharing toys with an adult, smiling...then they fed him peas (the mom had recorded it because the doctors did not believe peas could do this).

Within 5 minutes, this kid went berserk - shouting, angry, threw a chair, threw himself on the floor and sobbed then banged his head against the wall on purpose.

Yup ..........foods can cause a rage type reaction.

Sandy

celiacgirls Apprentice

Casein causes a rage reaction in my daughter even worse than gluten does.

UR Groovy Explorer

Hi VioletBlue,

Anything with dairy causes me to get really depressed for a couple days, but no anxiety with diary. Anxiety for me comes with Gluten & chocolate, which leads to angry feelings. My family & I decided a long time ago that I was only allowed to eat chocolate before bed & that way, "nobody gets hurt". Man, I used to be so full of rage. I hated being that way.

Again, everyone has different manifestations to different things.

Hope you feel better soon.

Kat

  • 3 weeks later...
LittleZoe Apprentice

Wow, I can't believe gluten can do this. I've been sooooooo depressed and exhausted the past 1.5 wks. I just found out today something I ate the weekend the depression came back had wheat in it! Could it possibly be making me feel this depressed and for this long? How long does it take you to feel better when it happens? I was feeling so good 2-3 weeks ago.

Yenni Enthusiast

I get just as weird on Casein as on Gluten myself. :angry:;)

loraleena Contributor

My co-workers son get anger from fructose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jitters Apprentice

For me its certain brands of coffee... some make me angry while others make me extremely sad.

  • 4 weeks later...
elye Community Regular

For our own selfish celiac purposes ;) , those on this thread should PLEASE go to the thread about getting in touch with Oprah, which started a couple of weeks ago. We've been trying for eons to come up with a way to get Oprah to finally listen and do an entire show on this devastating, common illness. Really attention-getting symptoms is likely the way. Some of your stories are eye-opening and if you sent them to her, it may finally happen!

mftnchn Explorer

Allergists who work with food intolerances have been aware of this for years; but not all allergists are.

My allergist has done a type of provocative food testing which is "titrated" for the dose that "turns off" symptoms. Children can then get this in a daily drop under the tongue.

At one point in my life, I was in his office daily for 7 weeks over a summer. Usually up to 6 people were being tested at a time, including my own very young children and other children as well.

You would see a whole variety of emotional and behavioral changes clearly related to these dosages which were changed every 10 minutes, and then would eventually go away with the correct dose.

My son did have one rage; he got very angry at his sister for no reason, I had to take him out and walk around with him outside for 10 minutes. He would get silly and giggly, very sleepy, grumpy, or hyperactive. My very young daughter would curl up in a little ball on a blanket and be unresponsive, depressed, sleepy.

There is a book out, sorry can't remember the author but it starts with a Th. First wrote about food intolerances and chemical intolerances. Some amazing stories in that book about psychiatric patients and food intolerances. Where a perfectly normal person after eating a food became crazy, suicidal. This was done in a controlled hospital environment.

angelbender Newbie

For me it was caffeine. I used to have what I called panic attacks (rages included for free) and I realized that when I gave up caffeine, they were 75% gone. Then when I went sugarfree, they were

gone gone gone all gone. Well I'm bk on sugar now but I only get a caffeine pop at the maximum of once a week......and I don't usually do that. My "panic attacks" don't seem to have reappeared even tho I'm going thru one of the most difficult episodes in my life......getting Celiac, getting laid off, feel terrible with Fibromyalgia and no job yet.......but hangin' in there with a positive outlook and surprisingly not getting too freaked out. Go figure. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,406
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.