Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Loo Straight After Food But No D?


MinxyMandy

Recommended Posts

MinxyMandy Apprentice

Hi all,

I am on day 6 of eating gluten again and look about 8 months pregnant and feel awful.

I ate bread at first but if Candida then yeast would agrevate it. Now eating multigrain porrige and ryitas for lunch and tum is still massive and I get these crampy period type pains. Ive also noticed I do have BM but they arent D they are just big!!

Becuase I havent got D I am getting paranoid that maybe this isnt celiac??

I also get facial swelling does any one get that at all??

I am in an awful situation I have just started working for the NHS and they have told me to make myself ill ready for biopsy and I am worried about my new job. I have tried to go in and my boss doesnt really understand I dont thik as she said dont worry we will get you better here you are why dont use try these suppot tights they may help?????????? :blink:

Been to docs this am as off work and said what am I supposed to do I couldnt go in and start moving sick people etc as I fel to ill.. He gave me a certificate to stay off work for two weeks but I am so worried...

take care peeps

gluten day number 6 and counting ..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Firstly, I think you already have a diagnosis - via the diet!

Second, not having D doesn't mean much if anything. Everyone has their own unique set of reactions, and many have C, D, or neither. Try not to look for an exact match to any one person. You'll likely share various symptoms with different people.

If you want to continue to eat gluten, suppose you just have a tiny bit? From what I've read, the antibodies will remain for several days, so as long as the immune system is on the offense, I would hope a small amount of gluten would "keep the charge going" as it were. I'm not an expert in this, but that's my understanding.

MinxyMandy Apprentice
Firstly, I think you already have a diagnosis - via the diet!

Second, not having D doesn't mean much if anything. Everyone has their own unique set of reactions, and many have C, D, or neither. Try not to look for an exact match to any one person. You'll likely share various symptoms with different people.

If you want to continue to eat gluten, suppose you just have a tiny bit? From what I've read, the antibodies will remain for several days, so as long as the immune system is on the offense, I would hope a small amount of gluten would "keep the charge going" as it were. I'm not an expert in this, but that's my understanding.

Thanks rice guy...

I know you all prob think I am mad doing this but I am still doubting its celiac even whilst doing the gluten challenge as I was being treated for candida before I am aware I get different reactions with sugar & gluten!!!

Ive been cutting out sugar and yeast and when I do have them thats when i get major depression and really sick..however I did follow the anticandida diet for 7 months strictly and the bloat didnt go completley what so ever and she did say I must have a nother problem stopping it going ....

Mind you Ive only had a small bowel of wheat flakes this am bloating is massive got a really bad headache..but when I have lunch with a few ryvitas my tum gets so massive I feel like I am going to

explode.

Yeah I know what your saying about not eating much but I have been informed by the celiac society to eat 4 slices of bread (min) a day to damage the villi for 6 weeks. So, I dont want to go through all this and havent done enough damage seems silly to risk that aswell. Ive tried not eating anything gluten after lunch but still have the symtoms in the morning I suppose it continues longer than just the same day.

Have a nice day thanks for posting nice to feel people want to share this horrible mess we are all in.

Mand:)

gfp Enthusiast
I am in an awful situation I have just started working for the NHS and they have told me to make myself ill ready for biopsy
I think you should take legal advice... CAB for free? just to make sure you know your rights if this gets tough...

They might be doing you a favour or think they are or it could be a double edged sword... read on...to the end to prevent jumping to conclusions.

I'm pretty certain that they can't force you to eat gluten against your will, indeed worded the correct way it would amount to deliberatly poisioning someone. Bear this in mind...as you read on...

Celiac is a commercial business in the UK, the NHS pays way over the odds for gluten-free food for prescription, about 4-5 times the going rate in a supermarket for the same thing. Many NHS trusts are trying to crack down on the amount but not the cost???

Secondly CUK is a "charity" that shares office space, directors etc. with "The coeliac trading company" which is NOT a charity...

Don't take my word, you can do a search at companies house on the internet...

The directors are presumably paid as well for consultancy ...

CUK advises the NHS....

Next CUK only accepts biopsy proven coelaics... this flies in the face of current research...

Please take some time to read up.... these are real medical papers...

Open Original Shared Link

Also: Follow-Up to the Catassi Study -- Scandinavia

Colin, et al, published a follow-up study to the Catassi (Coeliac Disease in the Year 2000:Exploring the Iceberg - University of Ancona, Italy) in the Scandinavian Journal of Gastroenterology 28(7):595-8, 1993, which demonstrated that approximately one third of the patients from the Catassi Study who had raised antibodies but no villous atrophy, did have villous atrophy when tested two years later. These results raise the number of diagnosed celiacs from the Catassi, et al study to over 1 in 200.

Specifically this may be useful

Open Original Shared Link

Open Original Shared Link

"Neurologic manifestations of gluten sensitivity are a scientific fact, not a theological issue. Whilst the debate continues, we owe it to our patients to screen them effectively for gluten sensitivity with the simple widely available antigliadin antibody test so that we do not in the meantime deprive them of a harmless but potentially effective treatment in the form of a gluten-free diet."

In other words they could be damaging you, even giving you organ damage that is never repairable, neurological damage etc.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,177
    • Most Online (within 30 mins)
      7,748

    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...