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What Symptoms Does Your Child Have When Glutened?


hannahsue01

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hannahsue01 Enthusiast

My daughter was never officialy diagnosed and had the full blood tests wich came back neg. She is five and had constipation, mood problems, always had a stomach ache, always hungry sneaking food, is only in the 5%, and so on. We put her on a gluten-free diet ourselves and saw improvment with everything except growth. When she would get glutened she would throw up. We just tested her with some cookies while she was off school this week without her knowing. She complained of a stomach ache and a bad headache wich she kept saying was getting worse throughout the day. She woke up this morning with quite a few mouth blisters. I was wondering if this is typical? I am still argueing with a few of our friends and family who says she doesn't have it and that they can grow out of it.....errr. I guess maybe I need some reasurance that I am on the right track with her....and if you think not let me know.


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ptkds Community Regular

I think you have found your answer. I have heard of ppl getting mouth blisters when they have gluten. My dd gets a bad stomach ache when she gets glutened. ANd my mom gets headaches when she gets glutened.

Just ignore what others say and keep her on the diet. The improvement on the diet is a test by itself, and it came out positive. So you can tell ppl that she has celiac disease, or at least a gluten intolerance. You are her parent, so you get to decide what she eats, anyway.

Good Luck!

ptkds

  • 2 weeks later...
purplemom Apprentice

I agree! When glutened...Our daughter gets headache, stomach ache, leg cramps, extremely moody, complains about everything, D (sometimes), dry sticky eyes, it is a nightmare....so anyway I think this disease can bring on all sorts of symptoms. Trust your instinct and don't let people break you down. You know your childs behavior better than anyone else. It cannot hurt her to be gluten free!

Best of luck

Cali

natalie Apprentice

My daughter gets clammy, sweaty, tired and vommits for a few hours. She also get really irritable for a few days after. Her legs get sore

Natalie

FeedIndy Contributor

My kids symptoms are all over the map with gluten. They can get a stomachache (older 2-no idea on the baby), headache (DD9), flushed cheeks (all 3), insane hunger (DD4), very tired (DD1) and become generally cranky, mean, angry kids.

ssjrobbins Newbie

I was thinking of posting this same question earlier today. Both of my children have been diagnosed with celiac disease through biopsy and we are very strict with their diet. I have recently started eating Gluten Free as well. I do not have any glaring symptoms but it doesn't hurt to eat the same way they do. Anyhow, we went to a birthday party for my niece on Saturday and my sister specifically prepared a gluten-free menu for myself, my kids and her (she is gluten-free as well). That night I had a migraine and the next morning my daughter (4) woke up not feeling well and had a slight fever of about 100.4 and then today my son (20 months) had a fever of 101.3 and was very clammy, sweating and I could tell just not feeling well. I hate to blame it on the food at the party, but I think it is ironic that the three of us all eat gluten-free and in the next two days were all feeling ill and my husband is fine.

My question is this....do any of your kids get a slight fever when they have been glutened?

Thanks!!!

girlfromclare Apprentice

My son gets overwhelmingly cross; everything upsets him... we can always tell when he has had some form of cross contamination because he will come in to a room and if someone even says hello, he is grumpy and crying... banging things around the place, generally a nightmare. He will also complain of stomach ache but it is never generalised... kind of all over so I think (as he is only 5) that he just cant voice exactly whats wrong - that he feels horrible all over. Thats my reading of it but boy does he get mean and cranky!!! We try to avoid cross contamination at all costs!!!

By the way I have read in tonnes of places on this board and on other sites that children (and adults) with celiac suffer from canker sores (or blisters) in the mouth... so sounds definite to me.


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
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    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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