Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Olfactory Hallucinations


BigRog

Recommended Posts

BigRog Rookie

Am I the only one?

The other morning I could swear I could smell english muffins, hot buttered english muffins.

Last night I could have sworn that I could smell toasted pound cake with ice cream on it.

Thes aren't the only times this has happened, just the two most recent. Not being able to eat gluten is bad enough, but starting the day smelling english muffins is not a happy way to start the day


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

No your no the only one. I don't get this anymore unless glutened. They were part of the neuro effects for me.

NoGluGirl Contributor

Dear BigRog,

I get that too! I was wondering about that! Sometimes, I smell bananas. It is so strange. There are other things I smell a lot as well, though. I have no idea what is causing this. I have been glutened at least once a week lately. I am paranoid careful, but my parents are not. I have had difficulty with this for a long time.

Sincerely,

NoGluGirl

  • 4 years later...
MrsMonteSS Newbie

I am getting these symptoms as well, I figured it was the Brain Fog. I could swear the time said 3:44pm, I got in the car and it was 1:44pm, I came back in the house, and it was 1:45pm. I have cut out all use of sugar, Gluten and am following a strict diet between Celaic and Candida. I was diagnosed last year with a healthy yeast issue, and didn't take it too seriously. I had my Celiac Panel yesterday and can't wait to get the results. I did eat Strawberries, and was told this is contraversial. I am unsure if I was Glutened or not because I also ate Gluten Free Boars Head Cheese twice, and this is not good for Candida. I did the Candida spit test this morning, and failed miserabley. I feel like I am facing both, so I am treating them both. I pray this gets better every day... For all of us! We are broke, and my husband is home caring for me, and our boys! We went from living one way, to me getting a cold in December, and everything changed! Hope all is well everyone :) RGG

zus888 Contributor

Unfortunately, I get this ALL THE TIME, except I smell chocolate chip cookies or dough. It's a sweet smell. This ONLY started for me since going gluten-free, and it hasn't relented since. Of course, it's only been a month, so hopefully, it'll go away soon. I'd sure appreciate it.

aeraen Apprentice

You all are lucky. All I get is stale cigarette smoke. :angry:

Hawthorn Rookie

I get smoke too, but bonfire smoke rather than cigarette smoke. Sometimes Cigars though (ew gross)

Also oranges is a common one, and sage and onion stuffing. For me it lasts only seconds. How long do these last with others?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tennisman Contributor

Once at a friends house they were non Celiac . He said he used to smell toast with butter sometimes in the morning . He was 100 % sure it his house was haunted. It freaked me out going there .

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.