Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidentally Glutened

jkmunchkin

By jkmunchkin
in Coping with Celiac Disease

Recommended Posts

jkmunchkin Rising Star
jkmunchkin
Posted

I was accidentally glutened Friday night; to be honest I still can't figure out what it was. I didn't eat breakfast that day, for lunch I got pizza from Risotteria (I can't possibly imagine I got glutened from there) and for dinner we made stir fry at home. DH thinks maybe there was cross contamination in the water chesnuts or bamboo shoots we added; which makes sense considering they are manufactured in factories with soy sauce, ect. I also doubt it was Risotteria because I usually react anywhere from a few minutes to a few hours. Not usually 14 hours later, so I think it had to be something from the stir fry we made.

Anywhoo, Friday night sucked and I still felt pretty crappy most of Saturday but by Sunday morning I felt much better. Then all of a sudden last night when I got home I started having a horrible pain in my back, almost by my right shoulder blade. It literally started as I was sitting in the car driving home. I didn't lift anything heavy or make any odd movements, but figured I don't know, maybe I somehow pinched a nerve or pulled a muscle. Now I'm wondering if this could be from the gluteneing? But I was glutened Friday night and felt better by Sunday morning. What do you think? It still hurts today.

(Sorry so long winded. Just trying to give as much detail as possible).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

At one time I started getting the sort of pains you describe. They shifted around, eventually going into my arms, down my back, side to side, then into my legs. This went on for months though, so I don't know if it relates at all to your experience.

It would eventually turn out to be from nightshades, but I suspect they might not have become a problem had I started the sublingual methylcobalamin (vitamin B12) soon enough. Still I didn't manage much progress until I started taking a magnesium supplement. Then I really saw a profound improvement.

I hope your pains don't last like mine did.

alamaz Collaborator
alamaz
Posted

i have pain right under the right shoulder blade when glutened. i'm not sure if it's related to my peripheral neuropathy or not but i also get severe low back pain. once i'm better the pain goes away though. i also take a B12 supp. daily.

VioletBlue Contributor
VioletBlue
Posted
i have pain right under the right shoulder blade when glutened. i'm not sure if it's related to my peripheral neuropathy or not but i also get severe low back pain. once i'm better the pain goes away though. i also take a B12 supp. daily.

One of the symptoms of an accidental glutening for me is back pain. It usually comes 24 to 48 hours or so after the glutening though, after the diahrea has long gone. Kind of a one two punch. I've also come to realize the sciatica I've had most of my life is part of that as well. For me it starts out as sciatica in the lower back and travels down one leg and eventually works it's way out other limbs as well. I would guess that anything involving the spine, which this seems to be for me, has the potential to resonate throughout the whole body.

If it weren't all so painful I'd find this fascinating; putting together the pieces of the gluten puzzle to understand the last twenty or thirty years of my life and medical history. <_<

violet

MistressIsis Apprentice
MistressIsis
Posted

I had constant lower back pain when I was still eating gluten. Also hips and elbows would constantly hurt, nothing relived any of the pains...but I can't remember how long it took for that part of the fun to kick in...

heathen Apprentice
heathen
Posted

i get lower back pain, hip pain, and neck pain. it's no good.

mamabear Explorer
mamabear
Posted
I was accidentally glutened Friday night; to be honest I still can't figure out what it was. I didn't eat breakfast that day, for lunch I got pizza from Risotteria (I can't possibly imagine I got glutened from there) and for dinner we made stir fry at home. DH thinks maybe there was cross contamination in the water chesnuts or bamboo shoots we added; which makes sense considering they are manufactured in factories with soy sauce, ect. I also doubt it was Risotteria because I usually react anywhere from a few minutes to a few hours. Not usually 14 hours later, so I think it had to be something from the stir fry we made.

Anywhoo, Friday night sucked and I still felt pretty crappy most of Saturday but by Sunday morning I felt much better. Then all of a sudden last night when I got home I started having a horrible pain in my back, almost by my right shoulder blade. It literally started as I was sitting in the car driving home. I didn't lift anything heavy or make any odd movements, but figured I don't know, maybe I somehow pinched a nerve or pulled a muscle. Now I'm wondering if this could be from the gluteneing? But I was glutened Friday night and felt better by Sunday morning. What do you think? It still hurts today.

(Sorry so long winded. Just trying to give as much detail as possible).

Pain under the right shoulder blade or between the shoulder blades can be from the gall bladder.

If it happens again, and especially if you get nausea,abdominal pain,gas(gee...this all sounds hauntingly familiar)......it might need testing......like an abdominal ultrasound or nuclear biliary scan.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGluGirl Contributor
NoGluGirl
Posted

Dear jkmunchkin,

I am with GFMemphis on this. I had gallbladder trouble, too. That pain is very familiar!

The misery it can cause is unreal! I had mine removed several years ago. It turns out, Celiac causes it to go bad. :(

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.