Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Physically Feeling Better!

LoveBeingATwin

Recommended Posts

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sfm Apprentice
sfm
Posted

I actually thought a lot of people actually gained weight once their bodies started actually begin to absorb nutrients better. I did lose, at first, but only because I was only eating fruit, veggies, and meat. Once I discovered substitute breads, pasta, etc., I gained a little. :rolleyes:

Be patient - continue to eat healthy and your body will become healthier - maybe that will help you lose that little bit of weight that's frustrating you.. :)

Sheryll

ravenwoodglass Mentor
ravenwoodglass
Posted
Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.

Hang in there, excercise and watch the calories but don't go to extremes trying to limit them. It can take some time and your body may still be in the 'hey I am starving absorb everything you can' mode. For now enjoy feeling great and maybe take up an active hobby that you weren't feeling quite up to before.

Also as you become more fit remember that muscle weighs more than fat so try to judge by the fit of your clothes more than the scale.

Jenny1972 Rookie
Jenny1972
Posted
Three months ago I would not be able to say this but I am actually feeling GREAT eventhough I have only been gluten/dairy free for a couple months. However my scale is showing otherwise. I feel like I have actually lost weight, boy has that been DIFFICULT, but I am at the same weight. What gives? I know it will take time, but I am confused. I eat well, sometimes not very much at all.

I also want to know why everyone seems to think that since you are diagnosed with celiac you must be losing tons of weight..well I was at the other end. I GAINED. I had malabsorption really bad. I am hoping that I can lose this weight soon. It's not a bunch, I should be thankful for that, but I want it gone. I am wondering if my malabsorption is the problem. You would think that since I have eliminated the stuff that was making me sick I would hopefully be losing weight. Well just needed to vent, thanks for listening.

I wanted to ask the same Q. Been gluten free for 3 monthds.All my friends have noticed how thin I look and get I still weigh the same. Don't understand. All my trousers I brought at Xmas are all baggy and I feel lighter and get the scales don't reflect this.

Jenny

aikiducky Apprentice
aikiducky
Posted

Jenny, it's probably what ravenwoodglass said, you're developing a bit more muscle instead of fat, so you are slimmer even though you weigh the same. The best measure is how your clothes fit and how you feel, not what the number is.

Another thought I had is that if you were bloated before, maybe the bloat has gone down but your weight hasn't actually changed that much.

Bottom line, first get healthy, then start worrying about weight. Give your body a chance to heal and stabilize itself.

Pauliina

blueeyedmanda Community Regular
blueeyedmanda
Posted

I gained once going gluten free. I was always at 139 my whole life, then when I was sick I dropped to 110. Well, I went in for an appointment in November and the scale is above 139...by a few lbs...I am too ashamed to say how many but I can give you a hint it is greater than the number of all the fingers on both my hands. I have been trying to get into a healthy lifestyle, I don't really eat junk food or candy or drink a lot of soda's. I have started to work-out. My biggest problem has been portion control...Once I found the foods I liked, I was eating a lot more. Especially the Tinkayada pasta. I don't want my weight to go out of control either so I am doing what I can now. I have bought some south beach diet bars, there are two flavors which seem safe. The hardest thing has been seeing my coworkers doing real well on their diets and so I feel Fat right now. Some of clothes do not fit right like they used to. Enough of my rant.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Everybody,

I have had the same experience. I think once the dairy gets out of my system again though that will help. I am going to try The Zone again. My pants got loose within a few days of being on it. The plan is really about balance. Plus, it is really easy to do for those of us who are Celiacs on a gluten free diet.

Sincerely,

NoGluGirl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted
Dear Everybody,

I have had the same experience. I think once the dairy gets out of my system again though that will help. I am going to try The Zone again. My pants got loose within a few days of being on it. The plan is really about balance. Plus, it is really easy to do for those of us who are Celiacs on a gluten free diet.

Sincerely,

NoGluGirl

I would like to know more about the zone.

The first week i gained like 5 pounds being gluten free, but i have lost 4 of it the last 2 weeks, but i have lots more to lose. I was always like 120 til i had 4 kids in 5 yrs, and now with being celiac, it has been harder to lose it.

paula

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.