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Another One In My Family

confused

By confused
in Coping with Celiac Disease

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confused Community Regular
confused
Posted

Today my husband was working and he seen my cousin(who is a nurse), and she asked how i was. And my hubby was like ok considering, and she was like well what do you mean, and he goes she was just diagnosed as celiac. And she is like well that is the same with Gracie, she cant have wheat either. Gracie is my aunt, the sister of the ones that were just diagnosed with stomach and thyroid cancer. And she is like my little cousin is lactose intolerant.

This is just so weird, i wish my family was closer and would talk about their medical problems. I now for sure it came from my moms side of the family. My mom is still in denial, she says she wont change how she eats, which frustrates me. But she bought me tons of gluten free food. I kept trying to tell her to take some home and try it.

paula

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Nantzie Collaborator
Nantzie
Posted

My family is the same way. Nobody talks to each other. It wouldn't surprise me a bit if I found out that celiac was a known problem in my family for decades that nobody mentioned.

But, to be honest this disease really is isolating and humilitating in some respects. Then there's the psychological symptoms and mood changes that are often associated with celiac. There are things that people don't talk about to anyone. I think that families isolating from each other is part of what years of undiagnosed celiac takes from all of us.

Nancy

UR Groovy Explorer
UR Groovy
Posted

I found out a couple weeks after my elimination diet (confirming a problem with gluten) that my Uncle Jack (Father

sfm Apprentice
sfm
Posted
I found out a couple weeks after my elimination diet (confirming a problem with gluten) that my Uncle Jack (Father
NoGluGirl Contributor
NoGluGirl
Posted

Dear Paula,

My family is just like everyone else's on this forum. They are in complete denial. I would not care if their denial did not make me sick! I have been getting glutened like once a week for the past couple of months. The parental units have had bowel problems for years, and so has my brother. None of them will give up pastries or fast food.

Sincerely,

NoGluGirl

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