Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another One In My Family


confused

Recommended Posts

confused Community Regular

Today my husband was working and he seen my cousin(who is a nurse), and she asked how i was. And my hubby was like ok considering, and she was like well what do you mean, and he goes she was just diagnosed as celiac. And she is like well that is the same with Gracie, she cant have wheat either. Gracie is my aunt, the sister of the ones that were just diagnosed with stomach and thyroid cancer. And she is like my little cousin is lactose intolerant.

This is just so weird, i wish my family was closer and would talk about their medical problems. I now for sure it came from my moms side of the family. My mom is still in denial, she says she wont change how she eats, which frustrates me. But she bought me tons of gluten free food. I kept trying to tell her to take some home and try it.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

My family is the same way. Nobody talks to each other. It wouldn't surprise me a bit if I found out that celiac was a known problem in my family for decades that nobody mentioned.

But, to be honest this disease really is isolating and humilitating in some respects. Then there's the psychological symptoms and mood changes that are often associated with celiac. There are things that people don't talk about to anyone. I think that families isolating from each other is part of what years of undiagnosed celiac takes from all of us.

Nancy

UR Groovy Explorer

I found out a couple weeks after my elimination diet (confirming a problem with gluten) that my Uncle Jack (Father

sfm Apprentice
I found out a couple weeks after my elimination diet (confirming a problem with gluten) that my Uncle Jack (Father
NoGluGirl Contributor

Dear Paula,

My family is just like everyone else's on this forum. They are in complete denial. I would not care if their denial did not make me sick! I have been getting glutened like once a week for the past couple of months. The parental units have had bowel problems for years, and so has my brother. None of them will give up pastries or fast food.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

    2. - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

    3. - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

    4. - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

    5. - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,683
    • Most Online (within 30 mins)
      7,748

    Alaena
    Newest Member
    Alaena
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.