Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Dairy?

TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have just had a horrible Easter. I ended up spending the day in bed, with massive upper stomach pain and nausea. I thought I must be getting sick. I have never felt this before, at least not celiac related since the beginning when I was first diagnosed. I havent felt nausea as a gluten affect in over a year. Now, the dairy thing.. I am not ready for this.. I am at an emotional break down phase.. I ate a special yogurt thing from Iceland this morning for breakfast, very creamy, very dairy. Then for lunch I had a small gluten free cheese pizza, and a tiny piece of cheesecake, we were having a late Easter dinner.

I wasnt feeling good, a sore throat and a headache, so I laid down twice to try and feel better, didnt want to miss Easter. Then the second time, I woke up after a short nap, with pain.. so much pain.. in my upper stomach, gluten always hits me lower stomach, without fail. Then the nausea hits.. omg, I must have a stomach flu..

My mom came and took Colin to dinner with the family and me and Gary stayed home. I remembered that I had reglan in my dresser from my previous doctor who swore I didnt have celiacs and that reglan would calm the nausea down, needless to say, the reglan didnt work for that.

but I took one today, and slowly I began to feel better, I was able to come downstairs and see Colin all dressed up in his Easter outfit.. then I realize, I am major constipated...

Could it have been the dairy?? once I fixed the constipation problem.. voila, I am better.. missed dinner, but they brought a plate home to me...

help anyone???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

One way to find out would be to avoid all dairy for a few weeks, then try some and see how it goes. I wouldn't think it should take very much dairy to cause a noticeable reaction if it's the cause of the symptoms you describe. So hopefully you won't need to have very much, and any symptoms might then be manageable, yet definitive.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thanks, will try that. I had a lot of dairy yesterday as you saw on my post of what I ate that day. Later in the day, I had chicken with goat cheese on it... and I was fine. I havent had any dairy today and feel fine, just sick.. head congestion kind.. sore throat.. sicky... just got out of bed! ahhh, days when the daddy is home, spoiled!

rsm Newbie
rsm
Posted

I have been gluten free for 4 weeks tomorrow, feeling much better but I can not handle dairy in any quantity over a teaspoon or two. I guess thats normal until you get healed up a little bit.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

yes, without a doubt that is normal. I experienced that when I first went gluten free, its been over a year now.. cant believe that, just feels like this is the way it has always been.. I was lucky.. I took to the diet easily and completely right away... never have cravings for gluten filled foods nothing.. even when everyone around me is eating it.. nah.. maybe its just b/c of the getting sick thing.. who knows? but now after over a year.. to hit the dairy thing.. taking me by surprise.. now I am getting glum about it.. not the gluten.. that is fine.. just the dairy thing...

anyone know?? does dairy do damage like gluten does to our system? I admit I never really read up on it, b/c I never experienced a problem.. I mean if I cant have it, I cant.. I will have to learn to deal with it.. b/c yesterday was NOT fun... but does it hurt our villi or anything??

Lisa Mentor
Lisa
Posted

Jumping in here and I'm not absolutely certain....My understanding is that dairy will cause symptons such as gluten, but will not do villi damage as gluten does.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thanks Momma.. you have always been quick to help and share what you know.. you have no idea how much that means to me.. you are a credit to this board!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

:D

Thanks Momma.. you have always been quick to help and share what you know.. you have no idea how much that means to me.. you are a credit to this board!!!!

:):);)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Ok, dairy experiment last nite... I guess I failed. My b/f gets Mickey D's every Monday nite usually, he bowls and gets home late and that is the day I make pasta and all the stuff he wont eat but me and Colin do... so he does his usual, brings me home a vanilla shake, sweet of him eh?

So, I drink not even half of it.. its actually too late at nite, too heavy.. never can finish it.. sooo, upstairs reading, the bubbles start in the gut.. lots of gas, then the D, just once, which is what I usually get when I havent gotten a major glutening or anything.. I am not sure if its the dairy, or did a crumby hand touch the outside of the cup and voila, in my mouth..

So, staying completely away from dairy today.. and so far I feel fine..

Judyin Philly Enthusiast
Judyin Philly
Posted

HI STEPHANIE

GLAD YOU FOUND CHOP...PREVIOUS POST.

I FOUGHT TOOTH AND NAIL AGAINST GIVING UP DAIRY/CASEIN BUT ALAS.......................I FEEL SOOOOOOOOO GOOD 7 WEEKS D/C FREE.

TRY TO GIVE IT A FULL WEEK AND I'LL BET YOU LIKE THE WAY YOU'LL FEEL.

HUGS

JUDY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    2. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
    5. Scott Adams
      - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Your situation is a classic p...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748
    Dakota4
    Newest Member
    Dakota4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.