Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression


sleepy1

Recommended Posts

sleepy1 Rookie

I am new to this and not one that normaly talks about my problems but is depression a normality with celiac i have been down for so long and it's only getting worse i have an appoinment with my doctor wensday but i really just want to go to sleep and just not wake up in the morning sorry to put this on any of you but no one around here to talk to that even comes close to understanding anything about celiac most don't even know what glutten is I have only been glutten free since March 23 2007 so it hasn't even been a month yet will i feel better soon both physicly and mentaly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes, gluten is a neurotoxin and for some celiacs depression, especially the kind that comes on quick and leaves suddenly, can be a dominat feature for years before the GI stuff shows up.

The good news is that after the gluten reaction leaves your system this should be relieved without drug therapy, in fact many celiacs are not helped by meds but made worse.

My family now recognizes the clear connection, it is one of the first signs that we got something we shouldn't. It is an awful feeling but it passes.

Jestgar Rising Star

Yes! Depression was one of my big symptoms and I didn't even realize how bad it was till it went away. Hang in there and give your body a chance to remember how it's supposed to feel.

BamBam Community Regular

Yes, depression was a huge factor in my life. The one thing that you have to remember though, is you will feel better and better as long as no gluten gets into your diet. I didn't understand how much that meant until I searched the ingredient lists on my lotions, hair products, soap and makeup. I thought that was foolish, to have to worry about gluten in those items. Well, it is not foolish. I have done the best I can, but as far as I know I don't have any gluten in my life and my depression is gone. If I get gluten into my life, I do feel depressed again. I had the suicidal depression. I spent a week at a clinic several years ago dealing with my feelings, needs and emotions. Since I've been gluten and dairy free, I have no depression.

BamBam

yellowbird22 Newbie

I have had serious problems with depression and mood disorders all my life. At one point I was even diagnosed manic depressive. But that doctor was stupid because I am not manic depressive. Once I stopped taking all the meds I was on (which were actually making me worse) and changed my diet I started to get much better. I started eating really healthy (completly cut out sugar, reduced alcohol, didn't eat processed foods, cut down on meat, ate more veggies and fruits) but I was still eating gluten because I didn't know about the Celiac then. I was still depressed, just not crazy with manic symptoms. I have recently gone gluten free and now my depression is completely gone. It is really, really important that I also eat NO sugar in addition to no gluten. If I get even a little of either my depression comes back.

JerryK Community Regular

I'll cast a whole hearted yeppers to depression being caused by gluten. In my case it's within 4 hours of eating it and it lasts at least three days. It's like being drugged and now knowing it.

Now I'm not one that's been diagnosed with intestinal damage, so your results my vary.

sleepy1 Rookie
I am new to this and not one that normaly talks about my problems but is depression a normality with celiac i have been down for so long and it's only getting worse i have an appoinment with my doctor wensday but i really just want to go to sleep and just not wake up in the morning sorry to put this on any of you but no one around here to talk to that even comes close to understanding anything about celiac most don't even know what glutten is I have only been glutten free since March 23 2007 so it hasn't even been a month yet will i feel better soon both physicly and mentaly

i just got back from the doc. and he gave me lexapro for depression but not being the expert on celiac he could not say for sure if it was glutten free does anyone else take this or know anything about it he also took some blood to test my thyroid i don't know much about this anyone have any info. on this I also wanted to thank all of you for these forums i would be totaly lost without it

sleep1


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dionnek Enthusiast

lexapro is gluten-free, so is zoloft. Hypothyyroid often causes depression - I have Hashimotos (where my thyroid goes back and forth from hypo to hyper), but even with my thyroid regulated my depression didn't get better, so I just started taking 25 mg of zoloft per day, and it has really helped. I've heard that it can take a few weeks for the antidepressants to work, so don't give it up if it doesn't work right away.

heathen Apprentice

just be careful when you don't need the meds anymore. i was taking a small dosage of celexa to take off the edge pre-diagnosis, and just quit taking it when i the doctor told me i didn't need it anymore. i know better, but i didn't taper the dosages. instead, i stopped cold turkey. HUGE MISTAKE that culminated with me telling the bf that i needed a couple of months for my hormone levels to return to normal while simultaneously sobbing uncontrollably for no reason. not a fun time. so taper off--no cold turkey.

gfp Enthusiast
just be careful when you don't need the meds anymore. i was taking a small dosage of celexa to take off the edge pre-diagnosis, and just quit taking it when i the doctor told me i didn't need it anymore. i know better, but i didn't taper the dosages. instead, i stopped cold turkey. HUGE MISTAKE that culminated with me telling the bf that i needed a couple of months for my hormone levels to return to normal while simultaneously sobbing uncontrollably for no reason. not a fun time. so taper off--no cold turkey.

Thanks for saying that... I was going to post a similar warning..... and like many have said if you can actually find you can cure it by going gluten-free (or at least manage it much better) it might be better than using psychotropics....

Mtndog Collaborator

I'm in this club too! I had very severe depression before going gluten-free and although I still take meds, at least they work now! My depression was very treatment resistant but it has gotten SO much better in my 2 years gluten-free that I rarely even think about it anymore. :)

Of course, until I get glutened and then it's more mood swingy and grumpy and anxious than it used to be. It used to be a very dark pit of despair. :ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.