Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Heart Palpitations And Anxiety

Gentleheart

Recommended Posts

Gentleheart Enthusiast
Gentleheart
Posted

I have palpitations and dizziness and feel jittery and anxious. According to my doctors, it is not heart related and I have no other diagnosed illnesses. We've really tested for a lot of things. Bloodwork is always good.

Everyone's first thought is that it is from stress. I do have stress. But so does everyone else. There is nothing I am struggling with that should push my body into such a state. It is as though I cannot tolerate the slightest stressful thing. I could see that being the case if I was still being poisoned by an offending food or environmental substance. But I sure can't find it if I am.

Does anyone have experience with this? Is it likely that I have either failed to identify an allergen or are inadvertantly still getting glutened? I am supposedly not allergic to chocolate. It's the only thing I eat (small amounts and always legal homemade recipes) that even remotely contains caffeine. My symptoms don't seem to follow its consumption, but it's the only thing I can think of that could be giving me such symptoms. I never use refined sugar, stimulants or alcohol. I'm stumped.

Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


super-sally888 Contributor
super-sally888
Posted

Hi,

Have you be thoroughly evaluated to rule out thyroid problems? Not just TSH, but full thyroid pannel. The first thing that came to mind would be hyperthyroid.

Any pattern to this? Ie after eating? After doing certain activities? In certain circumstances?

Maybe someone else will also have some ideas.

Sally

Jestgar Rising Star
Jestgar
Posted

I had this kind of reaction from eating beef. Maybe it's something completely unexpected like that.

Felidae Enthusiast
Felidae
Posted

I get heart palpitations from MSG, so I haven't eaten it in years.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author

Thanks.

I've had many full thyroid panels done. It never shows up as anything. I'm experimenting with eliminating chocolate starting today. It will certainly be ironic if it ends up being that easy. With so many allergies, I was excited to still have chocolate. But if it will stop these palpitations, I'll give it up in a 'heartbeat'. (pun intended)

whitball Explorer
whitball
Posted

Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

CarlaB Enthusiast
CarlaB
Posted

I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gentleheart Enthusiast
Gentleheart
Posted
  • Author
I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Are these blood and urine tests primarily? Are these prescribed tests by a doctor or do you order them yourself? I didn't like the sound of the spinal tap suggestion. What is the treatment if a person DOES have lyme disease?

Thanks...

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

Mine are primarily skipped beats. I have only rarely had an accelerated heart rate. I've worn the holter meter a couple of times and they never found anything they were concerned about. I know that pvc's are mostly harmless. They just FEEL so bad. I'm still testing the chocolate. Even if it's not the main reason, it maybe is enough stimulant to tip the scales. Stress is probably more involved than I want to admit.

CarlaB Enthusiast
CarlaB
Posted

The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

burdee Enthusiast
burdee
Posted

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Yes, I took an ELISA test a year ago and strictly avoid everything I reacted to. Interestingly, I also was sensitive to cane sugar, but I don't eat any. I wouldn't be at all surprised if it is one food I am not aware of that's still 'poisoning' me. That's just how it feels.

Thanks for the ideas.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

Thanks!

whitball Explorer
whitball
Posted

Who does this test? Does the Celiac doc order this?, Allergist?

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

burdee Enthusiast
burdee
Posted

I didn't have a 'celiac' doc. My own HMO primary care docs misdiagnosed me for 12 years. So I tested for celiac disease through Enterolab. However after 2 years of ongoing symptoms after I eliminated gluten, dairy and soy, I read a book "The IBS Solution" by a local celiac (he has celiac disease) naturopath, Stephen Wangen, ND. Most of his book is on his website at Open Original Shared Link He gave me the ELISA blood test for sensitivity to 100 different foods and the comprehensive stool test for bacteria, yeast and parasites. Those diagnosed 2 more food allergies, a Klebsiella (bad) bacteria and no bifidobacteria (a good bacteria which we're supposed to have).

BURDEE

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,081
    • Most Online (within 30 mins)
      10,442
    Rowan-Noctis
    Newest Member
    Rowan-Noctis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...