Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations And Anxiety

Gentleheart

Recommended Posts

Gentleheart Enthusiast
Gentleheart
Posted

I have palpitations and dizziness and feel jittery and anxious. According to my doctors, it is not heart related and I have no other diagnosed illnesses. We've really tested for a lot of things. Bloodwork is always good.

Everyone's first thought is that it is from stress. I do have stress. But so does everyone else. There is nothing I am struggling with that should push my body into such a state. It is as though I cannot tolerate the slightest stressful thing. I could see that being the case if I was still being poisoned by an offending food or environmental substance. But I sure can't find it if I am.

Does anyone have experience with this? Is it likely that I have either failed to identify an allergen or are inadvertantly still getting glutened? I am supposedly not allergic to chocolate. It's the only thing I eat (small amounts and always legal homemade recipes) that even remotely contains caffeine. My symptoms don't seem to follow its consumption, but it's the only thing I can think of that could be giving me such symptoms. I never use refined sugar, stimulants or alcohol. I'm stumped.

Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


super-sally888 Contributor
super-sally888
Posted

Hi,

Have you be thoroughly evaluated to rule out thyroid problems? Not just TSH, but full thyroid pannel. The first thing that came to mind would be hyperthyroid.

Any pattern to this? Ie after eating? After doing certain activities? In certain circumstances?

Maybe someone else will also have some ideas.

Sally

Jestgar Rising Star
Jestgar
Posted

I had this kind of reaction from eating beef. Maybe it's something completely unexpected like that.

Felidae Enthusiast
Felidae
Posted

I get heart palpitations from MSG, so I haven't eaten it in years.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author

Thanks.

I've had many full thyroid panels done. It never shows up as anything. I'm experimenting with eliminating chocolate starting today. It will certainly be ironic if it ends up being that easy. With so many allergies, I was excited to still have chocolate. But if it will stop these palpitations, I'll give it up in a 'heartbeat'. (pun intended)

whitball Explorer
whitball
Posted

Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

CarlaB Enthusiast
CarlaB
Posted

I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gentleheart Enthusiast
Gentleheart
Posted
  • Author
I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Are these blood and urine tests primarily? Are these prescribed tests by a doctor or do you order them yourself? I didn't like the sound of the spinal tap suggestion. What is the treatment if a person DOES have lyme disease?

Thanks...

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

Mine are primarily skipped beats. I have only rarely had an accelerated heart rate. I've worn the holter meter a couple of times and they never found anything they were concerned about. I know that pvc's are mostly harmless. They just FEEL so bad. I'm still testing the chocolate. Even if it's not the main reason, it maybe is enough stimulant to tip the scales. Stress is probably more involved than I want to admit.

CarlaB Enthusiast
CarlaB
Posted

The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

burdee Enthusiast
burdee
Posted

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Yes, I took an ELISA test a year ago and strictly avoid everything I reacted to. Interestingly, I also was sensitive to cane sugar, but I don't eat any. I wouldn't be at all surprised if it is one food I am not aware of that's still 'poisoning' me. That's just how it feels.

Thanks for the ideas.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

Thanks!

whitball Explorer
whitball
Posted

Who does this test? Does the Celiac doc order this?, Allergist?

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

burdee Enthusiast
burdee
Posted

I didn't have a 'celiac' doc. My own HMO primary care docs misdiagnosed me for 12 years. So I tested for celiac disease through Enterolab. However after 2 years of ongoing symptoms after I eliminated gluten, dairy and soy, I read a book "The IBS Solution" by a local celiac (he has celiac disease) naturopath, Stephen Wangen, ND. Most of his book is on his website at Open Original Shared Link He gave me the ELISA blood test for sensitivity to 100 different foods and the comprehensive stool test for bacteria, yeast and parasites. Those diagnosed 2 more food allergies, a Klebsiella (bad) bacteria and no bifidobacteria (a good bacteria which we're supposed to have).

BURDEE

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    2. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    5. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,408
    • Most Online (within 30 mins)
      7,748
    Angela VT
    Newest Member
    Angela VT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.