Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Symptoms After Eating Casein?


SUZ42

Recommended Posts

SUZ42 Explorer

I am wondering if eating casein can cause symptoms like gluten can? I have been gluten free and really try not to eat casein. The only time I do is with butter (on a potato), coffee cream and milk chocolate, and these are not daily. But the other day I got so sick with bloating, pain, gas. I reread my journal and the only thing I did differently the day before was eat cauliflour with about 3 tbs of cheese sauce. Could it be the casein in the cheese sauce? thanks everyone!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

It could be. Recently I tried some rice cheese (1 slice on a sandwich). The cheese was lactose free. I had an intestinal reaction later that night and for 2 days after. It was different than my normal gluten reaction, in that I did not have any anxiety or moodiness.

I've been dairy free for longer than I've been gluten-free. I don't know what I was thinking--but it was enough to tell me my body does not like casein!

hathor Contributor

Yes. Next question :lol:

Since you show an Enterolab result of casein intolerance, you shouldn't be so surprised that you had a reaction.

I was having only tiny bits of casein for some time since I was mostly eating vegan. OK, I would eat out & the veggies or the pasta sauce would have a little butter, cream, or cheese I didn't expect. I wouldn't send it back. I occasionally would eat birthday cake or goodies at Thanksgiving, etc. Rarely did I react (although I felt sick for days from eating a big slab of cheesecake -- what was I thinking? Of course, no one had officially diagnosed me with anything). But the occasional bits of casein were enough for a substantial antibody response.

I'm sure Enterolab told you that you should avoid every bit of casein as much as you should avoid gluten. Not to be a nag or anything ... it is your choice. Just don't be surprised if you react sometimes.

  • 2 weeks later...
jcc Rookie

My daughter with gluten sensitivity reacts to casein with gastrointestinal symptoms (stomach ache, gas, bloating, diarrhea). Apparently this is not uncommon. Thankfully, while she also had neurological symptoms with gluten, she doesn't seem to get neurological symptoms with casein (although some people do... I've heard of both seizures and peripheral neuropathy related to cow's milk).

Here is a March 2007 study about casein sensitivity...suggesting that about 50% of those tested also had casein sensitivity.

Mucosal reactivity to cow's milk protein in coeliac disease.

Patients with coeliac disease (celiac disease) on a gluten-free diet may still have gastrointestinal symptoms. On clinical grounds cow's milk (CM) protein sensitivity may be suspected. Here, using rectal protein challenge, we investigated the local inflammatory reaction to gluten and CM protein in adult patients with celiac disease in remission. Rectal challenges with wheat gluten and dried CM powder were performed in 20 patients with celiac disease and 15 healthy controls. Fifteen hours after challenge the mucosal reaction was recorded by the mucosal patch technique with measurements of local release of neutrophil and eosinophil granule constituents; myeloperoxidase (MPO) and eosinophil cationic protein (ECP). We measured the mucosal production of nitric oxide (NO) simultaneously. Six of the patients who reacted to CM were also challenged with alpha-lactalbumin and casein. In 18 of 20 patients gluten challenge induced neutrophil activation defined as increased MPO release and increased NO synthesis. Ten of these 20 patients showed a similarly strong inflammatory reaction to CM challenge. Six of the CM sensitive patients were challenged with specific CM proteins: casein and alpha-lactalbumin. Casein, in contrast to alpha-lactalbumin, induced an inflammatory response similar to that produced by CM. A mucosal inflammatory response similar to that elicited by gluten was produced by CM protein in about 50% of the patients with coeliac disease. Casein, in particular, seems to be involved in this reaction.

PMID: 17302893

Open Original Shared Link

This is similiar to past findings.. another often referenced study...

Antibodies to dietary antigens in coeliac disease.

Antibodies to gliadin (AGA) were found in 77 (94%) of 82 sera from patients with active coeliac disease (untreated and after gluten challenge). Although IgG AGA had a higher nosological sensitivity than IgA AGA (88% versus 67%), their nosological specificity was lower than that of IgA antibodies (87% versus 100%). The sensitivity of antibodies to casein, beta-lactoglobulin, and ovalbumin in active coeliac disease varied from 36% to 48% without significant difference between IgG and IgA antibodies. IgG and IgA antibodies to milk and egg proteins showed a specificity similar to that of AGA, although some IgA antibodies other than AGA were found in disease controls (Crohn's disease, ulcerative colitis, post-enteritis syndrome).

PMID: 3775259

Open Original Shared Link

SOY can do it too~

"Food-induced enteropathy: Cow's milk proteins and soy proteins can cause an uncommon syndrome of chronic diarrhea, weight loss, and failure to thrive, similar to that appearing in celiac disease. Vomiting is present in up to two thirds of patients. Small bowel biopsy shows an enteropathy of variable degrees with villous hypotrophy. Total mucosal atrophy, histologically indistinguishable from celiac disease, is a frequent finding."

eMedicine: Protein Intolerance

Open Original Shared Link

Cara

hathor Contributor

I wonder how they found people willing to participate in any study involving "rectal protein challenge." :blink:

Sorry, that makes me squirm just to think about it :o

jcc Rookie
I wonder how they found people willing to participate in any study involving "rectal protein challenge." :blink:

Sorry, that makes me squirm just to think about it :o

lol.... some people will do anything for $$. Maybe it was one of those studies where you get paid for participating ~

MySuicidalTurtle Enthusiast

Yes, I have reactions to casein like I do to gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

I get symptoms after cows milk casein but not after goats milk casein or sheeps milk casein. I am taking things carefully and not overdoing the goats milk cheese - even though I love it - but it does seem to be better for me.

  • 2 years later...
mhb Apprentice

I've been off gluten for 1.5 years and casein for 1 year, except of course the occasional screwup. I'd been hoping to reintroduce casein after a year, so I started with a goat milk yogurt (goat and yogurt forms supposed to be easier to digest). Well that was the end of it. Immediate reactions were slightly gurgling stomach, bronchial congestion and gas. Two mornings later loose stools. I don't know if it's lactose or one of the proteins, but before going dairy free I didn't have all these symptoms to it, just bloating, so I suspect it's a protein.

RollingAlong Explorer

Most of the recipes I've seen for cheese sauce contain flour. Are you talking a standard bechamel, or white sauce, flavored with cheese? But you made a gluten free version? Do tell....I'm not planning on using the cheese, just the white sauce.

Crimson Rookie

I had the same thought that RollingAlong had. Most cheese sauces can contain some kind of wheat or wheat derivative.

Before eating gluten again for three weeks last month, I could eat yogurt without issue. Now when I eat yogurt, I get immediate headache, dizziness and brain fog that lasts for a number of hours.

So, I'd say you can react in many different ways.

Usually when I eat rice now, it's gluten like, stomach gurgling, bloating, severe D... but without all the extra pain.

  • 3 years later...
brookevale Newbie

I realized after elimination that high levels of casein or sodium caseinate gave me splitting headaches. I stopped dairy altogether. I recently tried eating dairy again and although I don't get headaches, I have been having horrible neuropathy, muscle and joint pain. I am a very complicated case--have sphincter of oddi dysfunction (SOD), which I had surgery for. Ever since about two months after the surgery I've been getting this pain for the first time in my life. I tested positive for the celiac genetic marker, but negative for the antibodies and sprue. So, GI doctor says I don't have celiac. I went gluten free for nearly a year while I was very ill with SOD. It never made a difference for how I felt because I always felt like crap. I started eating gluten again back in August. I still have negative celiac blood tests. Not sure what to do/think. But, I do know beyond a shadow of a doubt that I have casein intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

    2. - Scott Adams replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

    3. - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

    4. - Scott Adams replied to Skydawg's topic in Related Issues & Disorders
      2

      Gluten exposure when trying to conceive

    5. - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,349
    • Most Online (within 30 mins)
      7,748

    WLynne
    Newest Member
    WLynne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
×
×
  • Create New...