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Itching..anyone Else?


Twister2

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Twister2 Contributor

Hi all! Does anyone else have intense skin itching WITHOUT a rash?? I itch like crazy for about an hour or so just about every day. I have no rash or anything, just itching that drives me mental!!


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Canadian Karen Community Regular

I get it in my scalp, constantly throughout the day.

There is no psoriasis or anything. Just itchiness. Drives me nut too!

I use Pantene shampoo and conditioner which I know is gluten-free, so that can't be it.

Just another thing I have to "grin and bear" in the Celiac world....

Karen

Happycat Rookie

I get it on my legs no rash or anything. (right now I have chronic hives) It has been happening for years.

Lisa

darlindeb25 Collaborator
:( yup--my sister and i have had that intense itching, especially after showering--no rash, just terrible itching, especially on our legs--i have been gluten free for 3 yrs now and the itch is gone--it did help us immensely when we bought water softeners, but it was still there----so, yes--it happens to many of us--deb ;)
kabowman Explorer

I always itch and used to attibute it to dry skin, now I think it has more to do with celiac disease. My back is the worst!

I switched to baby shampoo or Nutrigina for my shampoo because my head itches and that seems to help a little.

-Kate

CarolynM Newbie

My daughter itched a lot with no visible rash. Since gluten-free she has been better, only itching occasionally.

plantime Contributor

I have bad itch when I have a gluten accident. My skin gets dry and flaky, and just iiitttccchhheeesss!!! I use coco butter lotion, but the only thing that really helps is staying gluten free.


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MySuicidalTurtle Enthusiast

Itchy, itchy, itchy!

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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