Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Michigan Doctors Help

amyd

By amyd
in Doctors

Recommended Posts

amyd Newbie
amyd
Posted

Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

mandasmom Rookie
mandasmom
Posted
I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

Both the University of Michigan and The detroit medical center have childrens hospitals. Go to their web sites and look for a pediatric gastroenterologist..when you call to make the appointment ask if he or she has special knowledge of or interenst in celiac disease.

tabdegner Apprentice
tabdegner
Posted

I'm in the Southwest corner of Michigan and I go to Dr. Morrow at Grand River Gastroenterology. I've been pretty happy with him.

Q1821 Apprentice
Q1821
Posted

I just wanted to say I totally understand your problem with MI doctors, I lived there for 2 1/2 years and the doctors did nothing for me. They sent me all over the place and had me doing stool samples, getting a colonoscopy and then told me all I had was IBS. They wanted to put me on a bowl relaxer and medimucil, I was so mad! All I wanted was a clear answer, did I have celiac disease or not. Never got one, so I went gluten-free anyway and I've never felt better. Best of luck to you, it sounds like the "big city" doctors is where you want to be.

sickofit Newbie
sickofit
Posted
Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

sickofit Newbie
sickofit
Posted

People, including me, that have allergies have dark circles under their eyes. I'm "allergic" to dust mites, dander, etc., but also have food "sensitivities" and when I eat something too often (I have to do a rotation diet) or eat anything with preservatives, MSG, nitrates, sulfites, artificial colors or flavors, I looked like I haven't slept for a week. I could not get help from any regular doctors but did find at least some of this out by going to a naturopath that did blood work.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    3. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    4. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    5. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748
    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.