Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dying Without Dairy!


Guest AlabamaGirl

Recommended Posts

Guest AlabamaGirl

So about a year ago it was the gluten. Right after that I discovered that rice and buckwheat were also off-limits. Then apples and almonds and most other birch-related foods had to go. (Yep, apparently no rice milk or almond milk subs for me.) A few weeks ago my EnteroLab report came back ALSO positive for casein. Dr. Kenneth says to let it go forever. After hem-hawing around for a few weeks, I'm now on day 4 of casein free. Sigh ... I know many of you are in the same boat, and I never understood the big deal until now. However, I do vaguely remember constantly trying to convince myself that "it isn't really the gluten" and wanting it so bad it felt like torture, so I know this too shall pass.

My question is:

I don't know if I'm craving diary as much as I'm NEEDING fat. My body does better on a higher fat diet. I stay hungry all the time without it. I'm normal weight with great good cholesterol, very low bad cholesterol, and whose triglyceride level stays around 30 (normal is <170). My body seems to function well on fat, and now that my daily afternoon snack of Hagan-Daz is out, I'm hurting. I bought some avocados but they are a few days away from ripe. The EVOO on the salad is just not cutting it. I need my cheese (and cheesecake, and cream cheese, and cream, and creamy salad dressing -- the list goes on and on).

Anyone have any ideas of how I can get satiated??? Or will this constant hunger (craving!!!) also pass???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I am dairy free and know what you mean about missing cheese and cheesecake....

One source of fat that I like are ripe olives - I can snack on them just out of the can.

You can make a pudding with coconut milk instead of cow's milk. Coconut milk is also good in a fruit smoothie - run thru a blender.

No-grain baked products that use almond flour would also up the fat/protein. I have made some really good cookies with just almond flour with baking powder, butter and honey, from the book "Grain-Free Goumet" by Jodi Bager and Jenny Lass The cookbook also has muffins and bread (although they do use eggs in these).

Mango04 Enthusiast

I don't know much about birch-related foods...sorry if any of these are off-limits:

Coconut Oil

Extra virgin cold pressed organic is the best kind and you can use it as a sub for butter on/in everything.

Hemp milk and hemp tortillas

(the tortillas are higher in fat than the milk - but vanilla hemp milk (Open Original Shared Link is creamy and really good

If you can eat bacon, Applegate Farms makes a nitrite-free organic version that might be a good source of fat for you as well.

Can you eat cashews? You can put cashews in a blender with water, lemon, herbs etc. etc. to make dips and dressings.

mftnchn Explorer

I satisfied my craving with some peanut butter cookies if you can have the four ingredients: peanut butter, eggs, sugar, and vanilla.

Guest AlabamaGirl
I satisfied my craving with some peanut butter cookies if you can have the four ingredients: peanut butter, eggs, sugar, and vanilla.

Oh, please share your recipe! PB is becoming quite a good friend. I haven't found much for breakfast so I eat a lot of PB & bananas. And though I cannot cook with almond flour, pecan flour and lots of other nut flours are safe.

I'll be looking for that hemp milk! Maybe my local place can get it ... See, there is life after dairy. Please keep the tips coming. This is a great encouragement for me!!!

Another quick question: Do you all take a calcium supplement? If so, what kind? Thanks!!!

TrillumHunter Enthusiast

Can you have sesame? If so, try tahini. It's a paste of sesame seeds used in Middle Eastern foods. You can make creamy salad dressing to desserts with it. I can buy it in the regular grocery store in the ethnic aisle. It keeps forever at room temp and is high calorie. If you've ever had hummus it's used in that.

Monica

mftnchn Explorer
Oh, please share your recipe! PB is becoming quite a good friend. I haven't found much for breakfast so I eat a lot of PB & bananas. And though I cannot cook with almond flour, pecan flour and lots of other nut flours are safe.

I'll be looking for that hemp milk! Maybe my local place can get it ... See, there is life after dairy. Please keep the tips coming. This is a great encouragement for me!!!

Another quick question: Do you all take a calcium supplement? If so, what kind? Thanks!!!

I found it on another part of this forum:

2 C PB

2 C sugar

1 T vanilla (gluten-free)

1 egg

Bake 10 min at 350 degrees.

I couldn't believe I could make these without flour so added a 1/3 c or so of rice flour. But my guess is they would be fine without. Mine were crispy, and I like them that way!

Enjoy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



super-sally888 Contributor

Those PB cookies look soooo good. Will have to try them out.

I am also eating a high fat diet (healthy fats - my cholesterol is low overall, including the good cholesterol, though i haven't tested for a while) - about 50- 60% of my calories usually come from fat. Rice is out as well, so I find my grain choices pretty limited.

For fat: avocado, and coconut cream (this is loaded with fat)

Here in Philippines they mash up the avocado and add sugar and milk (but I reckon coconut cream - see below would do) and have it as a sweet rather than as a salad vegetable.

I haven't tried it, but I would think that coconut cream would make a wicked sorbet (do you have a home ice-cream maker)..... Also could make fruit icecream with coconut cream.

My standard breakfast is eggs fried or scrambled in coconut oil and bananas. Sometimes have sardines instead, or as well.

I found it on another part of this forum:

2 C PB

2 C sugar

1 T vanilla (gluten-free)

1 egg

Bake 10 min at 350 degrees.

I couldn't believe I could make these without flour so added a 1/3 c or so of rice flour. But my guess is they would be fine without. Mine were crispy, and I like them that way!

Enjoy!

Guest AlabamaGirl
For fat: coconut cream (this is loaded with fat)

I do cook with lots & lots of coconut oil. I tried a canned coconut milk and it was yucky -- very metallic tasting. It was just some I found at Publix so I'm sure there is much better out there. What is coconut cream? Is it the same as the milk? If anyone has any good coconut milk that they use, I'd love to know what & where.

I'm thinking I could add a little coconut flour to those pb cookies (instead of the rice flour) and that would work well too.

tarnalberry Community Regular

avocado - with tuna or in salsa or on a salad

hemp - in powder (in smoothies), seed (on salads, in baked goods), butter (on rice cakes or apple), or tortilla

coconut milk (there are ones in lined cans that are pretty good) - in smoothies, curries, soups, etc.

nut/seed butters (other than almond)

Byte Me Apprentice
I found it on another part of this forum:

2 C PB

2 C sugar

1 T vanilla (gluten-free)

1 egg

Bake 10 min at 350 degrees.

I couldn't believe I could make these without flour so added a 1/3 c or so of rice flour. But my guess is they would be fine without. Mine were crispy, and I like them that way!

Enjoy!

They will work great w/o flour! One of my favorite midnight mad munchies recipes (even years before going gluten free) was almost identical to this, 1 cup peanut butter, 1 cup sugar, 1 egg. they are unbelievably good, crisp on edges, chewy in the middle, and quick to make. They aren't quite as good the second day (if there are any left over, that is :P) but if you stick them in the microwave for just a few seconds they are just like fresh out of the oven.

diamondheart Newbie

I've had good luck using coconut milk instead of cream in some soup recipes. DH is so impressed, he can't tell the difference! I buy it at the health food stores. It's good in gluten-free oatmeal as well.

I haven't found anything good to substitute for cheese though, which bums me out! I love cheese!

Clarified butter or ghee is also safe. It's butter with all the milk solids removed. Some people may argue with you on this, but it's never given me any problems. It gives you a little butter taste, but doesn't work exactly like butter. I still use it on gluten-free bread, and it's satisfying enough.

Claire

Nancym Enthusiast

Were you trying to drink coconut milk by itself? That can't be good. :P It makes up into wonderful curry sauces, smoothies, even ice cream. Coconut cream is the first pressing of water with the coconut meat, further pressings yield what they call the milk. I've heard you can even whip coconut cream, like whipping cream, but haven't tried it.

Can you eat chocolate? That's a good source of fat. :)

I eat avocados, olives, nuts, coconut milk (usually made into soups and curries) and oil for stir fry and such, in addition to whatever fat comes out of my meat.

Ghee is very good, but it doesn't taste like butter.

I have to watch for seeds and seed butter, they give me the big D.

RiceGuy Collaborator

I've made pecan milk and walnut milk just by putting the nuts in a blender with mostly water. I like adding a bit of guar gum to smooth it out too. A bit of vanilla is nice as well. Add banana, berries, and/or whatever fruits you like for a really tasty smoothie. Probably would make a decent sorbet I guess.

For a dairy-free ice cream dessert, try Open Original Shared Link. I've not tried it but it does look really good. Thing is, it doesn't seem to be available everywhere. However, they do list the ingredients, so there's nothing stopping you from whipping up your own <ahttps://www.celiac.com/uploads/emoticons/default_smile.png' alt=':)'> Too bad that rice is out for you, or you might be able to have: Open Original Shared Link

Guest AlabamaGirl

Thanks for all your suggestions! You all have given me lots of good ideas. With a little extra effort (and some good leftovers from last night's dinner), I upped my fat intake today and am doing much better. The pb cookies sound wonderful -- will be making those tomorrow! I'm working on this and feel certain of eventual success. It's just something else to adapt to -- a challenge! Oooo, how i love those!!! :P

BRUMI1968 Collaborator

Coconut Cream is just the coconut oil and fiber and sugars and all that still in tact. I mix some with agave nectar to kill my post-dinner sweet tooth.

Also helping me with quittng dairy was eating sweet potatoes, because they are "creamy". If you mix them with coconut cream or olive oil or something, and whip them around, they are quite satisfying.

Guest AlabamaGirl

I just wanted to post and share, hoping it will help those who might be dealing with the same --

Exactly one week after going casein free, I'm beginning to see the light at the end of the tunnel!!! Whoo-hoo!

My cravings and hunger have subsided, and I feel back to normal in that department. Quite a few lingering symptoms that I attributed to CC or some kind of accidental glutening have *mysteriously* disappeared. Things are looking up! I'm feeling like I did after I went gluten-free (though admittedly it took me quite a bit longer to reach this realization regarding gluten): The benefits of abstinence are quickly outweighing the joys of eating it.

Right now I am planning to challenge dairy in a month or two, but I'm expecting to fail miserably. (The doctor just might be right, huh? :lol: ) I'm tempted to challenge to have that last little taste ... or I may say forget it and trust my body AND the test results. Coconut ice-cream, anyone???

A question & request (if anyone is still reading this post) ...

If you abstain from dairy, do you take calcium supplements? If so, what kind???

And, if anyone has any other recipes to share, please pass them along! Those pb cookies are divine! (You may pm me.)

Guest lizajane
So about a year ago it was the gluten. Right after that I discovered that rice and buckwheat were also off-limits. Then apples and almonds and most other birch-related foods had to go. (Yep, apparently no rice milk or almond milk subs for me.) A few weeks ago my EnteroLab report came back ALSO positive for casein. Dr. Kenneth says to let it go forever. After hem-hawing around for a few weeks, I'm now on day 4 of casein free. Sigh ... I know many of you are in the same boat, and I never understood the big deal until now. However, I do vaguely remember constantly trying to convince myself that "it isn't really the gluten" and wanting it so bad it felt like torture, so I know this too shall pass.

My question is:

I don't know if I'm craving diary as much as I'm NEEDING fat. My body does better on a higher fat diet. I stay hungry all the time without it. I'm normal weight with great good cholesterol, very low bad cholesterol, and whose triglyceride level stays around 30 (normal is <170). My body seems to function well on fat, and now that my daily afternoon snack of Hagan-Daz is out, I'm hurting. I bought some avocados but they are a few days away from ripe. The EVOO on the salad is just not cutting it. I need my cheese (and cheesecake, and cream cheese, and cream, and creamy salad dressing -- the list goes on and on).

Anyone have any ideas of how I can get satiated??? Or will this constant hunger (craving!!!) also pass???

There is rice ice cream, sour cream, cream cheese and cheese. All are very good when you can't have anything else!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,571
    • Most Online (within 30 mins)
      7,748

    Ygomez
    Newest Member
    Ygomez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.