Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Causing The Numbness


holdthegluten

Recommended Posts

holdthegluten Rising Star

I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

It could be from getting glutened. That went a way for me when I went gluten free. I will get the tingling if I get glutened. I hope it goes away for you soon. Wendy

Betty in Texas Newbie

I know how you feel I was having this for about a year and finally figured it out. I started taking 500 mg of B12 letting it melt in my mouth. About a month it has all gone a way. It was bad it would wake me up in the middle of the night and I would be shaking my hand trying to get the feeling back in it my husband thought maybe I was loosing it but he under stands . He is just so happy I finnaly found out what was causing it . I am 55 and found out I celiac 3 years ago lot of suffering. Hope this helps I dont go to a lot of Drs. I try to figur it out on my own since I don't have insurance any more since it went to a $ 1,000 a month could't afford that. But I will be fine and I hope you start felling better.

ravenwoodglass Mentor
I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.

This is a result of your glutening. The suggestion to start taking sublingual B12 is a good one. It should help. If your B12 levels are down, and different folks feel this lack at different levels, mine was still over 200 but I was having severe symptoms at diagnosis. My doc considered this an OK level but by looking through my old labs I discovered that it had been dropping from about 500 steadily over a couple years.

Also if your celiac presentation has neuro features often these will show up full force when glutened. These neuro features can mimic symptoms for disease like MS, in fact many of us go through a lot of tests for MS and some are misdiagnosed with it from the symptoms alone. It will resolve once the neurotoxin is out of your system.

Hopefully this will pass for you quickly. Try to eat as much whole unproccessed food as you can for a bit while you heal that will help. Feel better soon.

darlindeb25 Collaborator

When doing bloodwork, you must ask for a B12 count or they don't even check it. Then, if the doctor tells you it is in the normal range, then you probably need more. The normal range is much lower than your B12 should actually be. You can't really get too much B12, your body eliminates what you do not need daily. I take 2400mcg daily, the recommended daily 100% value of B12 is 6mcg, which is nothing. I take 40,000% of the daily recommended value. I do have neuropathy and I honestly think the additional B12 has slowed the progression.

Once you have a B12 deficiency, you will always need to take additional B12. I started out at 1200mcg and my B12 level at testing was 1237 with the ranghe being 200-1100. No one told me you must stop taking your B12 several days before testing to get a true level.

If the numbness and weakness continues, ask your doctor to order a nerve conduction test, or a doppler for neuropathy. It's fairly painless, just some little shocks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.