Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Causing The Numbness


holdthegluten

Recommended Posts

holdthegluten Rising Star

I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

It could be from getting glutened. That went a way for me when I went gluten free. I will get the tingling if I get glutened. I hope it goes away for you soon. Wendy

Betty in Texas Newbie

I know how you feel I was having this for about a year and finally figured it out. I started taking 500 mg of B12 letting it melt in my mouth. About a month it has all gone a way. It was bad it would wake me up in the middle of the night and I would be shaking my hand trying to get the feeling back in it my husband thought maybe I was loosing it but he under stands . He is just so happy I finnaly found out what was causing it . I am 55 and found out I celiac 3 years ago lot of suffering. Hope this helps I dont go to a lot of Drs. I try to figur it out on my own since I don't have insurance any more since it went to a $ 1,000 a month could't afford that. But I will be fine and I hope you start felling better.

ravenwoodglass Mentor
I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.

This is a result of your glutening. The suggestion to start taking sublingual B12 is a good one. It should help. If your B12 levels are down, and different folks feel this lack at different levels, mine was still over 200 but I was having severe symptoms at diagnosis. My doc considered this an OK level but by looking through my old labs I discovered that it had been dropping from about 500 steadily over a couple years.

Also if your celiac presentation has neuro features often these will show up full force when glutened. These neuro features can mimic symptoms for disease like MS, in fact many of us go through a lot of tests for MS and some are misdiagnosed with it from the symptoms alone. It will resolve once the neurotoxin is out of your system.

Hopefully this will pass for you quickly. Try to eat as much whole unproccessed food as you can for a bit while you heal that will help. Feel better soon.

darlindeb25 Collaborator

When doing bloodwork, you must ask for a B12 count or they don't even check it. Then, if the doctor tells you it is in the normal range, then you probably need more. The normal range is much lower than your B12 should actually be. You can't really get too much B12, your body eliminates what you do not need daily. I take 2400mcg daily, the recommended daily 100% value of B12 is 6mcg, which is nothing. I take 40,000% of the daily recommended value. I do have neuropathy and I honestly think the additional B12 has slowed the progression.

Once you have a B12 deficiency, you will always need to take additional B12. I started out at 1200mcg and my B12 level at testing was 1237 with the ranghe being 200-1100. No one told me you must stop taking your B12 several days before testing to get a true level.

If the numbness and weakness continues, ask your doctor to order a nerve conduction test, or a doppler for neuropathy. It's fairly painless, just some little shocks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748

    Nicole King
    Newest Member
    Nicole King
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.