Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Come Out, Come Out And Show Yourself


pedro

Recommended Posts

pedro Explorer

Hi I was looking at the main page and I see more than 100 people logged on as guest. :ph34r:

Please don't be affraid. :unsure:

I've only been here for almost two months, the help, and support that found here is enormous. ;) Everyone is very humble and ready to help. From an advice to a prayer we are here for you. We all know what struggles and concerns one can have at the beginning.

Here you will make friends that will last forever.

So I encourage you to come out, here we all are like the three musketeers. "One for all, and all for one"

Take care. :lol::lol::lol:

Pedro


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

pedro Explorer
I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

Paula to funny :lol::lol::lol:

confused Community Regular
Paula to funny :lol::lol::lol:

Now you know why i dont take meds, i get goofy off of tyenol lol

paula

pedro Explorer
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

Paula

Good for you. We have enough with gluten. I told the doctor I am not taking anymore the librax, I like my hyperactivity.

Lisa Mentor

Okay Pedro, how did you find us? You start ;)

happygirl Collaborator

Pedro, well said :)

I think we all "lurked" for some point...I know I did!!!!! Even after I joined, it took me awhile to get going.

Happy that you have joined us...and hope that others will as a result of this post.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pedro Explorer

Okay

I found this site on a day that I was sooooooo tired and so sick and without any hope of solving any of my digestive issues. I was ready to belive it was all in my head. I google for support groups and this came out. It was destiny. You guys open my vision you gave me hope, I found thru one the postings about EnteroLabs, and the rest is history. Thru your experiences I've been able to share my story and educate inform many people about Celiac and gluten allergies.

You all are a blessing!!!!!!!!!!

I did plenty of lurking here. :ph34r::ph34r:

The first post is the hardest. the rest comes very easy, because you feel at home immediately here.

Pedro

little d Enthusiast

HI

Yes I was a lurker too and I was looking to a join something I applied to some other site but never got a response back and as soon as I put my info in I got the response back, Thanks to who is in charge of the sign up. I also have learned alot on here, alot more is making sense.

Donna

Canadian Karen Community Regular
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

LOL! Times like that, you need to alter your screen name to "Dazed and Confused"!!!! :lol:

chocolatelover Contributor

I don't even remember how I found this site...I just know that it's been such a blessing to me. I lurked for a long time, and then when I finally got up the nerve, it seemed like every time I posted I killed the topic! :blink: I still spend a fair amount of time lurking, but I really try to share my experiences, thoughts and recipes, etc. Anything to make it easier for others who are new or struggling or confused. It's been such a lifesaver to be able to hop on here whenever I want and pretty much be able to find whatever I need here. I've said it before and will say it again--I've learned soooooo much more from the people here than from almost every doctor I've been to.

It can also be a great soursce of entertainment at 2:00 in the morning when I can't sleep! :lol:

Guess I'd consider myself a double lurker, too. :ph34r::ph34r:

CL

loco-ladi Contributor

I was handed a list of foods my cousin could no longer eat, she didnt know why.

My doctor didnt offer any answers he sent me away with more pills that didn't fix anything.

I took "the list" to the local dietician who did a bit more research, I think she may have actually looked at it, she said that "most" of the things on my "list" contained gluten, but she didnt know if that meant anything.....

I did a search for "gluten" and ended up here after a bit, lurked for a while.... signed up..... lurked more...learned more...... researched more.....

Confronted my Dr numerous times, came away with more pills that didnt work......

Finally said screw the dr's and diagnosed myself.

2 months later feeling better, not 100% but a dang site better getting better daily even tho I dont always notice the daily changes.

Abbygail Newbie

The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Guest KG in FL
The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Why is lurking so bad?

Lisa Mentor
Why is lurking so bad?

Lurking is not so bad, it's just a kind invitation to join us. :)

wowzer Community Regular

I didn't lurk on here too long. I first found the site after looking up itchy rashes. I thought maybe I had DH. Then I had a biopsy that came back spongiotic dermatitis. I found the natural cure for it was a gluten free diet and it led me here.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,605
    • Most Online (within 30 mins)
      7,748

    LWceliac38
    Newest Member
    LWceliac38
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.