Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow, Could This Be True?


Pacer

Recommended Posts

Pacer Rookie

We have been a gluten-free household for about a week.

~~~Flashback: my younger son (6) - obvious GI symptoms which abate with gluten-free. Older son (8), apparantly asymptomatic except very low BMI and ++ on Enterolab. End flashback.~~~

Today my 8 year old said to me: " Gluten Free sucks, but it helps me feel better. ". My first thought was, he is such a people pleaser, he is just dutifully repeating the line he's been fed. But I asked how he feels better. He told me that he can now keep up in tag, and catch people he could never catch before. huh????

I was like "really??" and he said without a doubt, he runs faster. I did not probe much further but since I have gone jogging with my son many times, I can easily quantify this over the weekend. Is that even POSSIBLE?? I have always known my son gets fatigued more easily than some, but I attributed it to body type and asthma. (of course there is the whole continuum of body type and asthma relating to celiac, too). He has not read the celiac literature so he doesn't officially know about the fatigue thing.

if this is true -- if being gluten-free can help him find energy he never knew he was missing -- well, then maybe I won't complain so much about having to feed my family vile foods. I'll keep you guys posted. HEIDI


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

This is absolutely possible. His body is now probably beginning to get the nutrients that it so desperately needs to perform properly. The more well nourished his body is, the better it will work, including things like running and stamina. :)

Kellygirl Rookie
This is absolutely possible. His body is now probably beginning to get the nutrients that it so desperately needs to perform properly. The more well nourished his body is, the better it will work, including things like running and stamina. :)

Makes a lot of sense to me. My younger sister and I lived together up until this past year. She is a single mother - father just walked out.

I helped her raise him for the first 3 years. He was always so sick when we look back now, but at the time we didn't really notice how sick he really was. We both beat ourselves for it but he is healthy now and that is what matters.

In the four years since he was born we found out he has exyma, a severe peanut allergy, a lactose intolerance and he NEEDED his tonsils out, he started to get seizures when he was less than 2 years old and every time he got the slightest fever he would seize.

Apparently it is not common practice to take a 2 year olds tonsils out anymore it is considered dangerous. My sister fought with the doctors on this and begged them to take the tonsils out. He had the peanut reaction shortly after that and the doctors did end up taking his tonsils out after another burst of outrage from my sister.

After all of the re-shopping for food, diet change, his tonsils being removed, he is so healthy looking and well behaved and Happy. It really is amazing now to look back and think how could I not have seen all these problems. Given that I haven't had children and this was her first we didn't see a lot of things most parents would see.

He would only throw up his milk at night and we thought that maybe it was too cold, or too hot or that he needed something to eat. After all I have a lactose intolerance and If I drink milk I break out in hives and throw up curdled milk immediately. So every person responds different when they have something running through there body that doesn't agree with them.

I guess my point to all of this rambling is that if he feels better and he notices a difference, then he is probably right. We are all different and you don't realize something is making you sick, or slowing you down until it is taken away.

My nephew has not had a seizure since he had his tonsils removed. The doctors were against it but my sister begged them - Sometimes only a mother can see what will make the difference.

Good luck with the gluten free house and have fun on your run this weekend!

Kelly

Juliebove Rising Star

Could also be his age. I've been told by my daughter's dance teachers that age 8 is usually a big step in terms of muscle development and coordination.

mairin Apprentice

I would say it is true as well, and really surprising.

My daughter (turned 9 in March, and biopsy March 22, positive for celiac) now too has energy. She wasn't a lazy child but every day after school she begged to go home immediately, whereas her younger sister always wanted to play in the playground. Now my celiac daughter stays and plays, she joined running club, she plays more at lunch (her admission). She plays grounders with the other kids where before she just sort of walked around or stood watching.

She sleeps better too -- before going gluten-free she would stay up to all hours, she now is usually asleep by 9:30 - 10:00 (at least 1.5 hours than when not gluten-free).

Being gluten-free is definitely giving her lots more energy.

And I'm especially proud of her today as she made her first communion and decided on her own not to take the host -- I told her it was her decision and she said that she feels better being gluten-free (and note, she had no GI symptoms ever, except for being the farting queen).

Now perhaps we'll both take up running!

JennyC Enthusiast

I thought my 3.5 year old son had energy before...WOW was I wrong!!! Since diagnosis he has tons of energy. He doesn't want to go to bed as early and many times he has so much energy that he literally runs throughout the house and jumps up and down! :lol: It is so nice to see such a positive change in him.

2kids4me Contributor

Absolutely!!

About a week after going gluten free, my daughter asked to go for a walk, she wanted to explore...up til then, she was more of a slug, she'd go for walk if asked - but never her idea. I always thought she was just on the lazy side.

It started to rain but that didnt deter her...we kept going...we came to a hill - its quite big and a good climb (kids use it for sledding in the winter). She ran to the top, she'd never run to the top before! She had huge grin on her face, and held her hands up high "LOOK AT ME, MUMMY!"..Then it started to hail, she danced on the hill and I was the one trying to get her to come down! I cried as I watched, I was so happy . I had my girl back - I had this wonderful smiling energetic girl

Since then, I like walking in the rain... :)

Their little bodies dont have to deal with the onslaught of gluten every day....

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



little d Enthusiast

My little girl has always been on the slim side her energy well she goes ninty to nothin talking, singing, dancing all the time, but I still think that she may have a GI problem, she has the same as me when I was little. But since I have discovered the gluten-free world she has eaten some of the things that I eat, but she still eats regular food. She has put some weight and height on since last year. I would like to get her to eat more but she does not like a lot of gluten-free foods. We went to Whole Food last week a woman with her two kids offered her a gluten-free Vanilla wafer she didn't like I did it :angry: though I'm going to have to get some for myself and put them in her lunch.

Donna

Pacer Rookie

Thanks for all the stories and input everyone. We are moving, so it will be a few weeks before I can really test my son and see how he's running. However next Sunday we are doing a local celiac awareness walk. it's in Queens, NY. I may be able to tell a little from that.

I also called a couple of nutritionists today. I am truly drowning here - I need professional help, somehow. Its too hard, I am having anxiety attacks every time i put a meal down. I fele like I'm starving my kids. Nobody wants the food I'm giving them. I need someone whose job it is to know how to introduce foods to kids.

one point I'd like to just vent -- I've come to the conclusion that controlling your diet, removing your favorite foods.... has got to be one of the most difficult things anyone can do. How else can you explain people like Oprah, or Rosie who have $$ millions but can't seem to control their weight. I'm just getting tired of people telling me how "easy" celiac is. if it was easy to change your whole way of eating, there would be no fat people in the world.

Ugh - I will sign off - evenings are never a great time for me. I just feel so utterly overhelmed by this whole thing, I would do anything to make it go away. bad day.

shan Contributor

i don't know how long youu've been on the diet - my dd has been on it for 10 weeks - and i can tell you that though i am still stuck for what to give her for lunch, it does get easier!! i basically stopped feeling guilty if i gave her the same lunch a few days on the run!! she doesn't care so why should i?!?! i also try not to feel bad if i miss out a day on giving her a protein or veg - i know htat her snacks are way healthier than other kids her age!!

wowzer Community Regular

I'm glad to hear that your children are feeling better. It helps to be able to get better sleep. When I look back at myself as a child, I always had trouble getting to sleep. It sure is amazing what food can do for you and how it can also make you so sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,192
    • Most Online (within 30 mins)
      7,748

    teresa1955
    Newest Member
    teresa1955
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...