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Upset Stomach Yet Again!

Walter S

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Walter S Explorer
Walter S
Posted

Hello everyone. I am a little down tonigh. I had a couple of good days near the end of this past week. I even had an appetite for the first timein months. That all ended yesterday (Sunday) morning. I had diarrhea when I woke up and I have pretty much had it since. It's MOnday nioght now and I keep getting struck with diarrhea. The only good part is that I am not in a lot of pain with it (while going or after going), but the need to go when I get hit has been extremely urgent. I have had some close calls! :(

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blueeyedmanda Community Regular
blueeyedmanda
Posted

Walter,

Sorry to hear you have been under the weather. "D" is never fun. I know I have had some close calls too, some too close for comfort. Hope you are feeling better.

Nantzie Collaborator
Nantzie
Posted

That's great that you've had some good days. I'm sorry you've gotten hit with something again. Those close calls are horrible.

Nancy

NoGluGirl Contributor
NoGluGirl
Posted

Dear Walter,

I can relate to the close calls, too. I had one of those the other day. :( Have you tried taking anything for it? Ammodium AD is mentioned frequently on here. I hope you can start having more good days, soon.

Sincerely,

NoGluGirl

pedro Explorer
pedro
Posted

Hi Walter, sorry you are not feeling good.

I can relate to that also. Can you take any mediction for the D, and you tolerate rice or apples or bananas, this is what the doctor tell us to give to the kids.

I hope you feel better, hang in there. There is light at the end of the tunnel.

Best regards to you.

bluejeangirl Contributor
bluejeangirl
Posted

I'm sorry to hear you don't get that many good days. Its taking me about two years now to figure out its just not gluten that bothers me. I remember reading one of your posts where you got sick and thinking its got to be something other then gluten since you seem to be so careful.

Hope you feel better soon. Maybe eat those same foods you ate during those two good food days again to see if you get the same results and add other foods alittle at a time and record the results.

Gail

Walter S Explorer
Walter S
Posted
  • Author

Thanks everyone. I'm doing a little better. There have been a couple days here and there when my appetite is back and I am hungry- that hasn't happened in ages. On those days I eat a little bit more. Not a ton of food, just a little more, and I tend to get very bloated and sick forn that tiny bit of extra food. It's annoyinh, I just have to stick to small bland portions still if I want to function. I'll be taking my class on a field trip on June 11th. I have absolutley NO IDEA what to do about bathroom stuff on that day! I may not eat the night before or the day of! Any suggestions to help with that?

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happygirl Collaborator
happygirl
Posted

Immodiums.

Lisa Mentor
Lisa
Posted

Walter:

Do a food journal, you're a teacher it should not be an issue.

Get one of those ugly composition books and do a daily journal. One page do breakfast, lunch and dinner...snacks included. Every page is a daily entry.

That is the best I know..to help you get to the root of your issues.

See what happens.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Walter,

I would definitely go with the others' suggestions here. Ammodium would be a good insurance policy against the runs. Plus, as bluejeangirl and Momma Goose mentioned, a food journal would be a smart move. You can do a rotation diet to see what you react badly to. Then, you can eliminate what you cannot tolerate. Sometimes, when we eat foods with a lot of ingredients, we have no idea what our system is reacting to. That complicates matters quite a bit.

Sincerely,

NoGluGirl

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      High DGP-A with normal IGA

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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