Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats


roo#9

Recommended Posts

roo#9 Newbie

Hey,

I was just wondering if you guys eat oats or do you cut them out, because I have heared that it is only oats that are grown around wheat that are bad for some celiacs. I have tried Scottish and Irish oats because they are not made with wheat, and I felt pretty good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Apparently, some Celiacs can eat oats, while others cannot. Many choose not to attempt it because of the Cross-Contamination issues. From what I understand, CC is a problem when oats are milled or otherwise process in the same facilities as wheat, barley, and/or rye, or on the same equipment as those grains.

I don't know if I can eat oats without problems, but until I can obtain a better level of healing, I dare not try.

Teacher1958 Apprentice
Hey,

I was just wondering if you guys eat oats or do you cut them out, because I have heared that it is only oats that are grown around wheat that are bad for some celiacs. I have tried Scottish and Irish oats because they are not made with wheat, and I felt pretty good.

I was wheat/gluten free for over a week when I tried oats, and I very quickly had symptoms, and the depression came back with a vengeance. I will not touch them now.

darlindeb25 Collaborator

I do not trust them either. I do not think they know enough yet about oats to say they are safe. Oats always made me ill anyways. I find it very hard to believe that a company can guarantee they are safe. That company would have to grow their own oats, mill them on their own property, and never, ever have wheat there for any other product just to prevent the cross contamination issue. Outside of that, I still do not trust oats.

I would also like to remind some of you. Sometimes, there are glutens that do not make you react outwardly, yet are still causing harm on the inside. Barley, in the beginning, did not cause an outward reaction in me.

Deb

tarnalberry Community Regular

oats have two entirely separate issues:

1) oats are uniquely subject to cross contamination. they are often grown in rotation with wheat, or nearby to wheat and then milled, stored, and transported in shared or co-located facilities. contamination from the seed-up, really. (really really - you'll get wheat seeds in oat seeds in cases like this and can't prevent one grain from growing in a crop with another.)

there are now, in the past three years or so, a handful of US and Canadian growers who specialize in wheat-free oat fields and production. they are more expensive, but the sift their seed, don't crop rotate with wheat, and don't co-locate with wheat facilities.

2) the oat protein, avenin, is molecularly similar to the wheat protein, gliadin. similar enough, that some people's bodies see it as one in the same, and whoosh - there goes the classic celiac reaction. studies trying to confirm the safety of oats have found that approximately 10% of the celiac population react to oats with the classic celiac autoimmune reaction. and there is currently no seriologic way to determine this, outside of an extensive oat challenge, followed by at least blood work, if not a biopsy if you're not highly symptomatic. (and we all know how wonderfully reliably that is.)

Guest j_mommy

I second some of the opinions above!!!

In teh end I'm just too leary of them to try it.....the cross contamination issues!!!!

I wasn't a big oat eater prior to going gluten-free so I don't miss them much.

Mango04 Enthusiast

I eat certified gluten-free oats in moderation. They don't give me any problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sixtytwo Apprentice

Oats give me pains in my stomach and boy, do I miss them. However, now I eat cream of buckwheat nearly every morning, I just don't seem to get sick of it----could be the sugar I put on it!!!! There is quite a big of fiber in it and it really starts my day our swell. It is available at most health food stores, but I have never seen it at the mainstream grocery stores and as usual/expensive. It ain't cheap to eat gluten free. Barbara

emcmaster Collaborator

I eat certified gluten free oats (glutenfreeoats.com) several times a week and have no problems whatsoever. I thank God that I am one of those celiacs that can handle oats, because they are a big part of my clean diet.

mamabear Explorer

I have no problem with oats. My favorite dessert is a no bake chocolate/peanut butter/oats cookie...heated and gooey.....thank goodness I don't have a problem with it!! :D

little d Enthusiast

I can eat oats when i make them for my family but sometimes i do get a reactions just really depends because my reactions vary everytime i eat something. At one time i believed that i had a total reaction with them because I would eat oatmeal with wheat or white toast and by 1pm total gas pain that would wake me up from a sound sleep and i would have to rush to the restroom. until i figured that it was the wheat or white toast that was making me react. then i switched to gluten-free bread and not a problem sometime yes sometimes no.

donna

aikiducky Apprentice

I've tried pure oats, but I didn't like the taste any more! :) I didn't have any problems though.

Pauliina

ArtGirl Enthusiast
I eat certified gluten-free oats in moderation. They don't give me any problems.

Same here. I only use a small amount added to other flours in baking or in meatloaf.

hlm34 Apprentice

I've done oats with no problems, outwardly or inwardly, my doctor checked. i am so happy to have oats. I am lucky that i am in the percentage that i am ok with them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.