Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Diarrhea?

shanbr

By shanbr
in Coping with Celiac Disease

Recommended Posts

shanbr Rookie
shanbr
Posted

Do you get diarrhea even if you haven't eaten gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Karen B. Explorer
Karen B.
Posted
Do you get diarrhea even if you haven't eaten gluten?

Lots of things can cause D, not just gluten. Stress, viruses, spicy food and everyone has their own individual triggers too. Too much pancake syrup will do me in.

JNBunnie1 Community Regular
JNBunnie1
Posted
Do you get diarrhea even if you haven't eaten gluten?

Absolutely, not to mention the fact that it takes a while for your intestinal system to recover fully. You might try taking a broad spectrum probiotic, make sure it's gluten free. Any health food store will be happy to check for you, I take Flora's udo's Choice Adult Probiotic. That should help with your internal repair.

Ursa Major Collaborator
Ursa Major
Posted

I get diarrhea from gluten, rice, eggs and potatoes.

Guest j_mommy
Guest j_mommy
Posted

The first couple of days after going gluten-free I still had the big D. But now after a couple of weeks I haven't.

As Karen B said it could be a multitude of other things. Stress is a big one for me, smoking, soda ect......

If I have more than 1 glass of milk...I also get it!!!

Hope you feel better soon!!

dlp252 Apprentice
dlp252
Posted

Had diarrhea before going gluten free and still have it.

Been gluten free for over a year and a half and still have diarrhea...in fact it's getting worse in the last few months!

Nancym Enthusiast
Nancym
Posted

I'd say it's due to something else. For me I'm sensitive to other foods: diary, seeds, corn and probably other things. Or it might be something like small bowel overgrowth. Google that term and see if it makes sense.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SunnyDyRain Enthusiast
SunnyDyRain
Posted

Yeah...

I had a hard time figuring out what was happening to me, I was gluten-free but still getting the big D. I first figured out caisens, that helped me, then I had to relearn what is normal for bowel movements. My first lesson was if I eat fruit all day, I'll be on the toliet all night... I was upset thinking I was some weirdo who was intolerant to fruit. Then my boyfriend (who hates when I talk about my BM's) told me if anyone ate that much fruit that would happen. I was also told nuts don't digest, so don't freak out. I have also been accused of worrying myself sick over the gluten-free diet. Everyone thinks I overthink the diet and make myself sick from worry, but I think my worry is called for. Besides I worry the same amount everyday, If I was worrying every day...i'd be sick everyday!

Unfortunately my main symtom of Celiac was D, so I have to first eliminate normal causes of D, then if they check out, look for casien/gluten sources.

pedro Explorer
pedro
Posted
I get diarrhea from gluten, rice, eggs and potatoes.

Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

StrongerToday Enthusiast
StrongerToday
Posted

Fatty foods, even a small bag of chips, can do me in! :angry:

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

It could be a nightshade intoelrance - some folks with celiac disease have that.

Eggs, apples, most raw fruit, an abundance of OJ, an abundance of fried food and even champagne has give me the big "D" on occasion.

Karen B. Explorer
Karen B.
Posted

Just realized I forgot to mention overdosing on coffee, too much coffee will definitely cause it.

Yenni Enthusiast
Yenni
Posted

Yes, I can get diarrhea from other stuff too. Stress, if I eat a lot of rice, medication like antibiotics, chocolate..

Felidae Enthusiast
Felidae
Posted

In addition to gluten, tapioca and beef give me diarrhea.

tmk Explorer
tmk
Posted

i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

Walter S Explorer
Walter S
Posted

I have been gluten free for a few months now and I am still getting diarrhea all of the time! Also I now get nausea and vomiting which I din't get before. Next step for me is the elimination diet.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

I have to say my D is much different from the D I had before gluten-free. Before I had very little contol over it, and very little warning. Now I can feel it coming a few hours ahead of time. they arn't nearly as "violent". Before I would check where the bathrooms were when I went somwhere, now I can seem to wait till i get home before needing to go.

Does that make you feel any better?

lob6796 Contributor
lob6796
Posted

I get it from gluten, milk, soy, coffee, beef, and certain types of oils - like those chips with olestra. Too much fruit will do it, as will too many nuts. lol.. so much!

pedro Explorer
pedro
Posted

Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

lob6796 Contributor
lob6796
Posted
Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

I have to say that for some, the big D is the most life changing aspect. My father drives an oversize load truck for a living, and we live out in the middle of no where. No matter what the poor guy eats, he is stopping this ENORMOUS truck in the middle of a road, basically blocking off all traffic, and running off into the woods. Thank god we live out in the middle of nowhere. He used to work in Boston driving tractor trailers and he said if he had these symptoms back then he didn't know if he would be able to do his job. You can't exactly stop, drop and ...go in the middle of Boston. He is looking forward to getting through all the testing and getting his bathroom needs under control.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.