Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have You Experienced This ?


deedub

Recommended Posts

deedub Rookie

i've been gluten-free for a few months now and still feel some effects an hour after a meal

-gurgle / stomach wants to flip sensation ( almost like an empty stomach hunger pang )

-a warm feeling in the abdomen that is not constant

-foul gas

i also get these symptoms first thing when i wake up in the am.

i'm certain there is no gluten in these meals that cause these symptoms.

i have also been tested for h. pylori and tested positive, but both docs i went to see said that i don't have to treat it, my choice since they felt it was not a problem.

any thoughts ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holdthegluten Rising Star
i've been gluten-free for a few months now and still feel some effects an hour after a meal

-gurgle / stomach wants to flip sensation ( almost like an empty stomach hunger pang )

-a warm feeling in the abdomen that is not constant

-foul gas

i also get these symptoms first thing when i wake up in the am.

i'm certain there is no gluten in these meals that cause these symptoms.

i have also been tested for h. pylori and tested positive, but both docs i went to see said that i don't have to treat it, my choice since they felt it was not a problem.

any thoughts ?

I have been gluten free for 4 months and i experience those same symptoms. I think it justs takes a ridiculously long time to get back to normal. Frustrating when you make the effort to take care of yourself and you still feel like poop. Just imagine how bad you would feel if you were still eating gluten with no diagnosis. I am just trying to be patient and ignoring some of the many symptoms us celiacs have. Take care and God Bless

Lisa Mentor

deedub:

Sometimes after you are gluten free you can find yourself sensitive to other things. It is often recommended here to go dairy light or eliminate it all together until your intestines can heal, Then add it to your diet and check for a reaction.

Be careful with your toiletries and cross contamination. Gluten is a sneeky sucker!

CarlaB Enthusiast

You can read about H. Pylori here: Open Original Shared Link

I don't know much about it, but I would read all about it if I were having symptoms and docs said it was unnecessary to treat. I would want to fully understand why. Unfortunately, we have to take charge of our own health ... doctors just don't always do a good job of doing that for us.

Yenni Enthusiast
You can read about H. Pylori here: Open Original Shared Link

I don't know much about it, but I would read all about it if I were having symptoms and docs said it was unnecessary to treat. I would want to fully understand why. Unfortunately, we have to take charge of our own health ... doctors just don't always do a good job of doing that for us.

I have never heard a doctor before NOT wanting to treat that bacteria. That is the one they believe is behind most ulcers.

Strange.

I agree with Carla that doctors don't always do a good job.

----------

My stomach was odd feeling for a long time after I stopped with gluten. I did have some other food intolerances too that I figured out and it seems it can take a long while to get better for some.

mftnchn Explorer

I had a positive h pylori as well that my doctor elected not to treat at first for a couple of reasons: Because I had already had courses of the antibiotics usually used to treat it during the lyme treatment I went through, so he felt it would not be that useful to repeat that treatment. Also at the time I got the positive results my gastritis symptoms (nausea) had improved somewhat.

Then my symptoms got much worse and he did treat it. He first used a combo of herbs and I was so sick that they switched to antibiotics plus pepto bismol. I was sick on that too, so decided to just hang in there through the course of it. Eventually I traced it to a probable allergy to bismuth which was in both treatment regimens. (Bismuth is also effective against the h pylori.)

He explained that pretty much everyone has h pylori in their system. He looks at the symptoms plus the level of antibioties in the body to this as an indicator of whether the body has been compromised and cannot maintain the fight with this. He also told me that my case would be pretty hard to treat given that I had already been on so many antibiotics.

The symptoms you are describing are not specific for ulcers or gastritis--so perhaps it is fine to wait and see on the h pylori.

Another option is the herbal approach with mastic gum and/or bismuth preparations. Mastic is very effective usually on the h pylori and not an antibiotic which is nice. You can read up on it on the internet.

Hope you feel better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,282
    • Most Online (within 30 mins)
      7,748

    William Errens
    Newest Member
    William Errens
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • numike
      69yo M I have had skin cancer basal  I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE
    • Wheatwacked
      Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom.  You likely have low vitamin D, another symptom.  Unless you get lots of sun.   Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies.  A lot of people have these symptoms just before an acute phase of Celiac Disease.  Each of the symptoms can have multiple causes that are not celiac disease,  but when you start having multiple symptoms,  and each symptom is treated as a separate disease,  you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is  a gastrointestinal disease and symptoms are only gastro related.  Wrong.  It is an autoimmune disease and has many symptoms that usually are disregarded.  I made that mistake until 63 y.o.  It can cause a dermatitis herpetiformis rash,  white spots on the brain.  It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen?  
    • trents
      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
    • numike
      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
×
×
  • Create New...