Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Symptoms


slowdown

Recommended Posts

slowdown Newbie

Hi,

I have a question about symptoms of celiac disease.

I have not actually been diagnosed as of yet. I had a positive blood test a few months back, and a biopsy about two weeks ago, which I am still awaiting the results for. My mother also has it, so when I began to notice symptoms celiac was one of the first things it was thought to be.

I have been having symptoms characteristic of celiac for the past year, including fatigue and digestion problems. I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Murph Newbie

Yes all that can be caused by celiac.

Since you've done all the testing, are u 100% gluten-free?

It's pretty hard at first, with so many sneaky sources of it. One of the early mistakes I made was not changing toothpaste.

slowdown Newbie

As far as I know I am pretty much eating gluten-free now, though I am not 100% positive on that.

As you said, there can be some sneaky sources of gluten. Now I figure I just need to get the hang of identifying the ingredients which I would not associate with gluten.

I never did think of toothpaste as a possibility though, I should probably check on that.

newlyfree Rookie
I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.

Hi - welcome!

Depression and anxiety are indeed associated with Celiac Disease. I'm sure some of the people on this board will know more about this than me, but what I've read says over 90% of the serotonin in your body comes from the intestines. Serotonin levels are believed to be directly associated with mood disorders.

So if something is affecting your intestines, it's also affecting your ability to produce serotonin, and your moods can swing, depression and anxiety can ensue. Luckily, a lot of people (myself included) experience tremendous relief from these symptoms after going gluten-free, but it can take a while for the moods to even out.

CarlaB Enthusiast

With a positive blood test, I would go gluten-free regardless of the results of the biopsy. The biopsy can prove celiac, but cannot rule it out.

All of your symptoms can be caused by celiac. It's a systemic disesase that can affect many bodily systems. It's not "just" a GI disease.

I hope you've started the diet!

Guest j_mommy

I was in your same position....blood test and then a month later biopsy. I held off doing the gluten-free diet until after the biopsy and then started. Since you biopsy is done I would go ahead with teh gluten-free diet!

Your symptoms definetly sound like celiac...plus you have the +blood tests!

I had made up my mind before I had the biopsy....after it I was going gluten-free reguardless what the biopsy said. Anything to feel better! My biopsy was +, I'm guessing your's will be too. Even if it's negative(and hopefully they took 5-10 samples as celiac can affect one area and not the next)...it wouldn't hurt to go gluten-free...to see if your symptoms improve!

Good Luck to you!

mftnchn Explorer

Hi, just an encouragement if you have started the diet, it just might take a lwhile to see the results. Hang in there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



slowdown Newbie

I had already started the diet after the biopsy; I wasn't going to wait for the results.

I have been on it for about a week or so now, but the only changes I have noticed so far is that the feeling of fatigue occurs less frequently...still a much welcome improvement though.

I realize that the repairs cannot happen all at once, but I am only young and I don't believe I have been suffering with it for too long.

I look forward to when the damage has been repaired and I get back to feeling 100%....I don't even remember what that feels like anymore :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,024
    • Most Online (within 30 mins)
      7,748

    Sunset Blue
    Newest Member
    Sunset Blue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.