Philly Gluten Free Cooking Spree

[SunnyDyRain]

I am sort of interested in attending this, but does anyone have any idea why it's so expensive? Do we get to eat the food? 50.00 bucks sounds really steep to go watch a bunch of people cook! Am I missing something?

The link...

Open Original Shared Link

[blueeyedmanda]

I want to go too! I know our favorite store is giving the food. I think it would be a lot of fun.

[SunnyDyRain]

I want to go too! I know our favorite store is giving the food. I think it would be a lot of fun.

I do think it would be cool to see what they come up with... but 50 bucks?

Perhaps they should let Celiacs in free?

Also the idea that there are 10 doctors in the Philly Area that know about Celiac is Amazing!

[blueeyedmanda]

I had mentioned this John awhile ago when I saw it in Washington, and I told him I wanted to go to the Philly one. We will be in Washington DC this weekend cause I have an oncology conference but I should be able to convince him to travel again. I think we get to eat all the food there. I better get some food out of the deal, for 50 bucks.

[SunnyDyRain]

I had mentioned this John awhile ago when I saw it in Washington, and I told him I wanted to go to the Philly one. We will be in Washington DC this weekend cause I have an oncology conference but I should be able to convince him to travel again. I think we get to eat all the food there. I better get some food out of the deal, for 50 bucks.

That weekend I'm actually going to be up north, so If i go i drive up there, drive down to philly, then drive up there, then drive back to Camp Hill.

Fun! But I have a GP appointment on monday up there, so it will be spaced out.

[mamaw]

I read the info from the website. It appears that for $50.00 you get to watch & cheer on your favorite doctors or area chefs. Get a cookbook & that's it.

I did e-mail the group to ask if any gluten-free food would be available for the attendees.... I'll post my findings as soon as I hear from them....

It looks like a fundraiser for the group.....

mamaw

[floridanative]

mamaw is correct. This event is a fundraiser and the attendess they really want there are doctors. They figure that people with Celiac already know way more about Celiac and gluten free food than most doctors, of any discipline. One of my own knucklehead ex docs told me flat out 'you know all the food you love, well you can't have any of it on the gluten-free diet and who would want that?' They think we can't follow the diet and that fact may be keeping some of them from even testing for it. Part of the money raised from the cooking sprees goes to the hospital of the winning dr. to start an awareness campaign, and some to the support group in that area. The VIP tix that are $100 get you some food and some Redbridge beer as far as I know.

I'm in charge of getting the docs signed up for Atlanta. I have four booked and need 6 more. If anyone reading this knows a doc affiliated with Grady - I'd greatly appreciated their contact info. The Atlanta event is at the Hyatt Regency downtown, on Oct. 27th.

[joelcontrol]

I WENT TO THE ONE IN NEW YORK

I AM NOT A CELIAC MY EIGHT YEAR OLD IS.

I VOULENTEERED TO HELP.

I WORKED HARD TO HELP SERVE THE FOOD.

THERE WAS FOOD SERVED AND WINE AND BEER.

THE FOOD WAS PRETTY GOOD. IN NY IT WAS OVER 200 PEOPLE.

MOSTLY CELIACS AND FRIENDS AND FAMILY.

I HAD A GREAT TIME. I THINK EVERY ONE ENJOYED THEMSELVES.

IT IS ALSO A FUNDRAISER. WHAT WOULD DINNER AND DRINKS COST YOU ELSEWHERE?

PLUS YOU SOCIALIZE AND FIND OUT dRS ETC

PS I THINK NY WAS SOLD OUT. LET US KNOW HOW IT WENT. IF I HAD THE ENERGY I WOULD GO FROM NY.

[mamaw]

This is the relpy I received today

Thank you for your interest in the NFCA Philadelphia Cooking Spree. The event is June 23 at the Hyatt Regency Penn's Landing from 7-10pm. The VIP admission is $100 and includes a copy of "Beyond Rice Cakes" and also a meet and greet session with the chefs and doctors as they prepare to cook before the event. The general admission is $50 and children are $35. There will be plenty of food for all to try, along with the new gluten free Redbridge Beer. This is a very fun event and a chance to meet other celiacs in your area. Heidi Collins, CNN anchor and National Spokesperson for NFCA will speak. For more information and to register, please go to Open Original Shared Link.

Once again, thank you so much for your interest. Please contact me if you have any more questions.

Thank you for contacting the National Foundation for Celiac Awareness with your question. We hope you continue to stay in touch with us as we discover new information almost daily about celiac disease. With your support, we will find a cure.

Sincerely,

Connie Maltin

Volunteer

National Foundation for Celiac Awareness (NFCA)

"The information above is not intended nor suited to be a replacement or substitute for professional medical treatment

or for professional medical advice relative to a specific medical question or condition. We urge you to always seek the

advice of your physician or medical professional with respect to your medical condition or questions. The above information

is not intended to establish a doctor/patient relationship with any physician. There is no replacement for personal medical

treatment and advice from your personal physician."

mamaw

[Judyin Philly]

I VOULENTEERED TO HELP.

I WORKED HARD TO HELP SERVE THE FOOD.

quote]

I'm so glad you posted...MY QUESTION IS............WHEN THE FOOD IS SERVED, ARE THE INGRED ON LITTLE CARDS ON THE FOOD?

SINCE I CAN'T HAVE DAIRY, CASEIN, SOY & TAPIOCA--HOW WILL I KNOW THE gluten-free FOOD IS SAFE.

ANOTHER FORUM SAID THE APPITIZERS ARE 'HEAVY' AND LEAVE ROOM FOR THE MAIN DISHES.

THIS WILL DETERMINE WHETHER I GO OR NOT.

JUDY

[blueeyedmanda]

We might be going, and I know my gluten free buddy and her husband are also interested. It would be nice to meet some people there.

[SunnyDyRain]

I may be tempted to go also... now that it seems worth it.. espically with the drive.

I would be worried about dairy also....so ingredients on cards would be nice.

[blueeyedmanda]

It sounds like it might be alot of fun, think of all the neat people we would meet too. People who have celiac and understand what we are going through and the struggles you have when you first start out.

[mamaw]

I know I will not be attending because of my poor health at the present time...plus I live near Pittsburgh so I would need to add the cost of an overnight stay ,gas at $3 bucks a gallon . It does sound like alot of fun & of course to meet others too......

I don't know about the recipe cards as that was not addressed in the feed-back I received from them in my previous post.....

hope you have fun ..

mamaw

[joelcontrol]

I HAD MADE THAT SUGGESTION AFTER SEEING NY EVENT. CONTACT THEM AND ASK THEM.

I THINK YOUR CONCERN IS VERY IMPORTANT.

[Judyin Philly]

HI ALL

MAMDA..LOVE THE CAPE MAY LITE HOUSE IN YOUR PICTURE.

I WROTE TO ASK ABOUT YOUR TRP BUT NEVER HEARD BACK.

GUESS IT WAS GOOD AS USUAL?

DID YOU GO TO BELLA VILLA RESTURANT?

OK I JUST SENT IN MY $$ FOR ME AND 2 OTHER FRIENDS.

ALSO DIANE ON LIST SERVE CALLED AND WAS TOLD THEY '''WOULD HAVE CARDS ON THE FOOD WITH THE INGRED'''

THAT' WHY I DECIDED TO GO.

WHO ELSE IS STILL GOING?

jUDY

[blueeyedmanda]

HI ALL

MAMDA..LOVE THE CAPE MAY LITE HOUSE IN YOUR PICTURE.

I WROTE TO ASK ABOUT YOUR TRP BUT NEVER HEARD BACK.

GUESS IT WAS GOOD AS USUAL?

DID YOU GO TO BELLA VILLA RESTURANT?

OK I JUST SENT IN MY $$ FOR ME AND 2 OTHER FRIENDS.

ALSO DIANE ON LIST SERVE CALLED AND WAS TOLD THEY '''WOULD HAVE CARDS ON THE FOOD WITH THE INGRED'''

THAT' WHY I DECIDED TO GO.

WHO ELSE IS STILL GOING?

jUDY

Judy, did you send me a PM? I haven't gotten any. I did reply in our Cape May thread, but I will just send you a PM and tell you all about it

I'll see if John and I could go, it sounds fun!

[Judyin Philly]

I think I saw you post on a thread and ask there but who knows what thread now..maybe was the cape may one.

how will i know you

will have to look for a handsome young couple...and a tag that says..blueeyedmanda...

yes really looking forward to it esp. since i can really eat safely here with the other intollerances listed.

Judy

Judy, did you send me a PM? I haven't gotten any. I did reply in our Cape May thread, but I will just send you a PM and tell you all about it

I'll see if John and I could go, it sounds fun!

[SunnyDyRain]

I won't be going, I decided against it for monetary and food problems. With me being sick and not knowing and not really having the money and the Drive to philly with gas prices and well.. i'm a little bit of a stick in the mud when i'm not feeling right. why else would I be surfing celiac.com at 11pm on friday night when the rest of my generation is out drinking and dancing (and doing god knows what!)

[blueeyedmanda]

I won't be going, I decided against it for monetary and food problems. With me being sick and not knowing and not really having the money and the Drive to philly with gas prices and well.. i'm a little bit of a stick in the mud when i'm not feeling right. why else would I be surfing celiac.com at 11pm on friday night when the rest of my generation is out drinking and dancing (and doing god knows what!)

I am in that generation and we are home every friday night. We are also sticks in the mud...and proud of it!

[SunnyDyRain]

Heh, well at least you both are stick in the muds! My b/f is out with his friends from highschool getting drunk, like they do every other friday night. I got my parents..wait they were in bed by 10...

I sometimes feel like the oldest 26 year old on the planet.

[blueeyedmanda]

John is unable to drink, just a shot will throw him into a sickness that can last for days. He had high doses of potent chemo 6 years ago, and his liver took a hit. If he was to drink regularly he would need a transplant within 10 years. I was never much of a drinker. I did it in highschool on the railroad tracks, and in the woods by the river. I outgrew the partying years ago.

Another reason to stay home is everything is so expensive, for two of us to go to the movies it is almost 17 for both tickets. Yikes!

John is already half asleep on the couch. We finished watching Norbit 30 minutes ago.

[SunnyDyRain]

John is unable to drink, just a shot will throw him into a sickness that can last for days. He had high doses of potent chemo 6 years ago, and his liver took a hit. If he was to drink regularly he would need a transplant within 10 years. I was never much of a drinker. I did it in highschool on the railroad tracks, and in the woods by the river. I outgrew the partying years ago.

Another reason to stay home is everything is so expensive, for two of us to go to the movies it is almost 17 for both tickets. Yikes!

John is already half asleep on the couch. We finished watching Norbit 30 minutes ago.

Wow, sounds like john went through some stuff. Glad that your both healthy today.

I drank all though high school, I agree it has gotten very old... but why.. other people still have fun with it.. do i not do it right? I have a taste for ammoretto sours.. but 2 of them and i'm loopy and sleepy. I agree it's really expensive for movies, but thankfully, we don't find many movies we need to see in the theaters. Last one was pirates... the one before that was miami vice? Unless you count Happy Feet in Imax. Ohh speaking of happy feet, June 30th there is a free showing of happy feet at Levitt Pavillion in Harrisburg! I guess they do alot of free stuff there...

Jeff is younger and less mature than me. He is 1.5 years younger, and had yet to leave his parents nest. Everyweekend when we go home, his mom does all his laundry for him and irons his shirts and cooks him food... Gah. just thinking of that makes me sick. On top of all that, his friends are younger than him, some are still in college! Hanging out with them is like the simpsons meet family guy meeting super troopers. Jeff will be a great man someday, when he gets done growing up.

[Kayaking Mom]

[Kayaking Mom]

I am sort of interested in attending this, but does anyone have any idea why it's so expensive? Do we get to eat the food? 50.00 bucks sounds really steep to go watch a bunch of people cook! Am I missing something?

The link...

Open Original Shared Link

HI --- I am just learning to respond to this group, so I am sorry that this is a late reply. I have attended this event in both NY and DC (I have children in both cities) and it was alot of fun. You get to meet so many people from your area with celiac. There is so much food to try along with what the chefs and doctors are creating. If you drink, there is also free Redbridge beer, and if not there are sodas and water. My husband, who is not celiac, had a fantastic time talking to the other guests and learning of their stories. This event is one where everyone is upbeat and having a great time - no complaining about being celiac. Money from the evening is used to raise celiac awareness in the community.

Wishing you good health and happiness.