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Great Pamphlet For Celiac Newbies

lob6796

By lob6796
in Coping with Celiac Disease

Recommended Posts

lob6796 Contributor
lob6796
Posted

I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

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Yellow Rose Explorer
Yellow Rose
Posted
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

That is a great booklet. I am new at this and it was so helpful.

Thanks,

Yellow Rose

NoGluGirl Contributor
NoGluGirl
Posted
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

Dear kilcan,

Thank you for posting this! Some of these things I did not know we could have! Yay! More options! :) I am really glad I checked out this thread! There is always something you can learn! I have been gluten-free since August of last year.

It is important to me to make it as easy as possible.

Sincerely,

NoGluGirl

Lins Rookie
Lins
Posted

Thanks for this brochure! It's full of great information. I can't get into see my dietician for another month, so I am just plugging along, doing the best I can. I felt great the first week I went gluten free, but haven't felt good since. Not sure if it's part of my healing process, or if I am still getting gluten, or what. Anyway, thanks again!

ginghamkim Apprentice
ginghamkim
Posted

Thanks! This pamplet helped me figure out what glutened me last night! Sneaky French's Honey Dijon. Kim

little d Enthusiast
little d
Posted

Thanks

I printed it so I can take it to my Ortho doc on Monday for my foot, hopefully he will see why I want a bone density test, on top of braking my foot for the 3rd time. I am contemplating wheather or not to tell him about me testing negative for celiac disease or just tell him a lie and say that I am and hope that he will take my word for it.

Thanks again

Donna

kb8ogn Rookie
kb8ogn
Posted

Thanks so much for that info.....what a wonderful resource.

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bluejeangirl Contributor
bluejeangirl
Posted

I was reading the list for candy bars and Mars Almond bars were listed. I used to eat these years ago and loved them but I can't find them in the stores anymore. Are these still around? I'm so frustrated. I'm glad they're gluten free.

;)

Thanks for this booklet. Its great.

Gail

NoGluGirl Contributor
NoGluGirl
Posted

Dear ginghamkim,

The best advice I can give you is that if you are not sure if something is safe, do not eat it! So many things out there are not labeled clearly. I have a little present for you! I have a list that should really help. This is overwhelming. I went through this with myself eight months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

Ed-G Newbie
Ed-G
Posted
I found this printable booklet that has so much great info in it, I thought I would share!

Open Original Shared Link

That is a great site. I added it to my favorites.

Ed in MD

Ed-G Newbie
Ed-G
Posted

NoGluGirl,

I have to admit that that is a great starter list. I meant to say it earlier but time ran away from me.

Ed in MD

NoGluGirl Contributor
NoGluGirl
Posted

NoGluGirl,

I have to admit that that is a great starter list. I meant to say it earlier but time ran away from me.

Ed in MD

Dear Ed,

Thank you for the compliment! :) I am trying to simplify this for everyone. This can be so stressful. I also found out recently that Brillo Soap Pads are safe. I was so glad! I forgot to add that to the list!

Sincerely,

NoGluGirl

Betty in Texas Newbie
Betty in Texas
Posted

Thank you for taking the time to post this very helpful, why don't they have pamphlets in Dr's office's so people can learn about it and Dr's. They have a lot other pamphlets about other diseases I guess because they can't give a drug for it what do you all think it would bring a lot of awareness to the public. I was talking to this lady yesterday she have never heard of it but goes to the GE doctor every year for her stomach issues and colon because her Mother died at 20 with colon cancer so I was telling her to get checked she goes back in Aug. She said she going to look it up and learn about it.

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    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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