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How About Probiotics?

The Lovebug

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The Lovebug Rookie
The Lovebug
Posted

I recently started taking probiotics but by the second day was having the old gas/bloating/cramping/nausea/diarrhea reaction which I used to get when consuming gluten. At first, I thought it was just the probiotics doing a job on my GI system, so I continued taking them for another day or so when it suddenly occurred to me to look at the list of ingredients for the capsules. I couldn't find anything on the label which was included in the list of no-nos on this website, but I stopped taking them anyway. Here are the ingredients: L. acidophilus, B. longum, digestive enzymes, Microcrystalline cellulose, gelatin, palm oil, glycerin, soy lecithin, pectin, magnesium stearate, silicon dioxide. Does anyone see anything in the ingredients which should be causing my trouble?

Thanks.

Sue

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Ursa Major Collaborator
Ursa Major
Posted

Maybe the soy lecitin? I've heard here that sometimes you feel worse before you feel better when taking probiotics. Maybe you need to try them for longer, or maybe you need to try a different brand to see if it works better.

Nancym Enthusiast
Nancym
Posted

It might be the digestive enzymes. I know someone else posted that their digestive enzymes were grown on wheat, yet the manufacturer didn't include that info on the label.

Guhlia Rising Star
Guhlia
Posted

Probiotics can be very hard on sensitive stomachs. I can't take them. They make me very ill, just like I'd been glutened, even if they're gluten free. I have no other intolerances.

Phyllis28 Apprentice
Phyllis28
Posted

I use Source Naturals Daily Essential Enzyes Digestive Aid. I find them at Wild Oats.

The bottle says "contains no yeast, dairy, egg, gluten, corn, soy or wheat. Contains no sugar, starch, salt, preservative or artificial color flavor or fragrance.

I don't have any problems with it.

hez Enthusiast
hez
Posted

I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez

Guest j_mommy
Guest j_mommy
Posted

I would call the manufactorer about it!

But When I started taking them I talked to my boss about it....she did say that I could possibly get D/bloating/gas ect from them as they are "flushing" the bad stuff out of my system! So it makes sense that you would feel yucky at first. But all of this depends on making sure your probiotics are gluten-free!

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The Lovebug Rookie
The Lovebug
Posted
  • Author
I statted taking probotics about a month ago and feel as if they are the best! However, mine say gluten-free on the bottle. I would try another brand that are gluten-free and see if you feel better. I swear by mine.

Hez

Can you tell me the brand of probiotics you are using and where you got them? Thanks.

Sue

hez Enthusiast
hez
Posted

Sue,

I picked up mine at Whole Foods in the refrigerated vitamin area. The ones I picked up are Mega Flora. I was feeling bad before I started on them and I fell so much better when I take them. My gi doc and I have no idea why they are working, we just know that they are. There were a ton of probotics that were gluten-free. Some were more expensive and some cheaper. I hope you feel better.

Hez

The Lovebug Rookie
The Lovebug
Posted
  • Author

Thanks. I'm no longer close to a Whole Foods, so I'm somewhat limited in what I can find. However, I did get online with www.drugstore.com last night and found a probiotic made by Natrol which is called Natrol Free. It claims to be gluten-free as well as free of many other allergens (wheat, dairy, etc.).

Thanks for all your comments and suggestions.

Sue

KAG Rookie
KAG
Posted

I have tried MANY MANY MANY different probiotics. I know that a lot of them are not dairy free and I have a big problem with dairy. Some have worked for me and some did not. I was just reading somewhere that not all types of probiotics will work for everyone. I think that it is definitely worth trying to find one that works for you.

The Lovebug Rookie
The Lovebug
Posted
  • Author

Just thought I would update all of you who offered comments and suggestions. I did email the manufacturer (I ordered them from drlark.com) and received the following response:

This product contains no added sugar (sucrose, fructose, lactose), salt

(sodium chloride), yeast, wheat, gluten or milk. There are also no

preservatives, artificial colors or artificial flavors.

I'm beginning to think it was the soy, and am about to go to another board, where I saw references to soy intolerance.

Thanks again.

Sue

rinne Apprentice
rinne
Posted

It might be the gelatin capsules, we've talked about this on the OMG 1200 pages + thread. Rachel has said that she does better when she opens the capsules and takes the supplement in water instead.

I know when I first got ill I couldn't tolerate anything in capsule form but I am now able to take a probiotic that is in a non GMO vegetarian capsule.

lovegrov Collaborator
lovegrov
Posted

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard

lovegrov Collaborator
lovegrov
Posted

The ingredients look OK although I'd still call the company. The primary lesson in the post is, however, do not just start taking or eating something without at least reading the ingredients. And if you're not sure once you're read the ingredients, call the company.

richard

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    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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