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Put Me Out Of My Misery...


SunnyDyRain

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SunnyDyRain Enthusiast

I am so frustrated with my body. Today is the third day in a row I am bloated, gassy and having D. I cannot figure out what is doing this to me.! I am ok everyday until I put something in my stomach. Look here:

Monday I started using new Toothpaste (AquaFresh Sensitive with whitening), this was to the replace the Colgate total I was using me last week that was making me feel like barfing. That was to replace the sensodyne that I just found out about gluten. However monday I felt ok.

Tuesday: Toothpaste, Coffee with silk soy milk. Salad with red wine vinegar as dressing. Butter free salt free popcorn, pork with and potatoes (both prepared by me in my home with all Gluten-free Casein-free ingredients).

Wendsday: Toothpaste Coffee with soy milk. French fries (baked at my home - nuked at work), Hotdogs, fried potatoes. some Trix.

Thursday: No TOOTHPASTE, NO COFFEE brown rice, dried cherries.

All three days my stomach started to get gassy and grumbly after coffee, but today I skipped coffee all together.. then it just started when i ate my rice. I am getting so frustrated. I just totally bindged on hot wings and blue cheese dressing! I shouldn't be eating casiens, but I am so frustrated that If I avoid them i'm still sick, so why does it matter if I avoid them? I'm sick no matter what. My boyfriend thinks this is all in my head that i'm worrying about what i'm eating, and make myself sick over it. He tells me over and over that I may just be sick that some people get gas and D without anything wrong.

I hate being sick I hate this.


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Guest j_mommy

Do you have any other stress(not stress about what you are eating or not eating)...life/work stress ect?????

Are you sure you don't have some kind of bug???

blueeyedmanda Community Regular

I used Crest toothpaste and Arm and Hammer peroxicare with no problems. I don't drink coffee so I cannot help there either.

The one thing that it could be, maybe you actually have a stomach virus right now, there is a nasty one going around, a lot of my coworkers have been sick with it and they all had the same symptoms you mentioned the gas, bloating, and the wonderful D.

Being sick does suck, a lot of people think that I worry too much and that is why I don't feel good. Sometimes, I wonder if they are right...if you have been recently diagnosed, maybe your body has not healed enough to tolerate all foods yet, so you can try keeping things bland for awhile and see if maybe that helps.

Hope you feel better soon :)

Guhlia Rising Star

IF your toothpaste were the culprit, you may still feel glutened even a day or so later even if you didn't use the toothpaste. Most people feel bad for a few days after a glutening. Especially if it's a repeated glutening.

I have no clue if your toothpaste is gluten free or not, just thought you might wanna think about that. Also, I agree w/ the others. It could definitely just be a stomach bug. Especially if it's lasted a few days.

tom Contributor

Sounds like me and my candida. It's very common for a celiac who got pretty bad.

Try replacing the vinegar-only dressing w/ fresh-squeezed lemon juice & extra virgin olive oil w/ salt/pepper and I like to add crushed garlic.

I also went sugar & sweetener free before finding the real issue, since it had become obvious sweet=pain.

I had to go on what I thought of as a 'chick diet'. I'm a man. But it was all salads & boneless skinless chicken breast & fish. No other meats as animal fat would feed the candida.

Now I looooooooove my salmon - broiled to perfection so it's not dried out in the least.

U should at least look into a strict anti-candida diet and try it to see how u feel. I felt better on day1, but I've heard ppl say it was for days or 1 week for them.

Loads of resources online.

We're all rootin' for ya.

P.S. Even the raw veggies sensitivity fits! Just the tiniest bit of invisible to the naked-eye bit of mold is trouble. But I was fine w/ some frozen, cuz of that flash-freezing they do so quickly after harvest.

The broccoli-caulifl mix is my fave. W/ salt/pepper & fresh-squeezed lemonjuice, it's great. It aint so great to me w/out the lemju.

CarlaB Enthusiast

tom's right. Bloated and gassy sounds like candida.

In the beginning of the diet, I had to eat very simply, and quite honestly, foods I didn't like (overcooked veggies, yuck). I needed soft foods ... lots of chicken soup -- homemade with veggies. I also ate eggs, other lean meats, lots of veggies.

After a time I could tolerate more. Now I find a bowl of raspberries to be about as sweet as I can handle.

Try eating simpler foods like you would after you've had the flu. Also take probiotics and avoid sugar and simple carbs.

tarnalberry Community Regular

do call on the toothpaste... there are two I know of w/ gluten, and that might be the other one I keep forgetting about


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SunnyDyRain Enthusiast

Things are still at it today, all I did use my toothpaste today, it didn't seem to bother me too much, but my coffee has made my tummy rumble. It has tons of sugar in it... so the candidia kinda sounds probable. Is it curable? Can it be tested for? Will do some research.

Last night my boyfriend had problems also, so he is convinced it's a bug. I'm still not sold. Actually he told me I gave him my celiac. Bah... I wish it was so easy!

I'm going to my parents house for the weekend again, I usally get sick there anyway (gluten filled house with people who don't understand how careful I need to be), Monday I will try a sugar free, gluten free, dairy free diet.

Oh, why is vinegar bad?

SunnyDyRain Enthusiast
Do you have any other stress(not stress about what you are eating or not eating)...life/work stress ect?????

Are you sure you don't have some kind of bug???

I always have stress in my life, I stress about everything all the time. If I don't have stress I feel naked. Right now I am stressing about trying to find a new job and my parents are planning on moving from Pennsylvania to Hawaii in a few monthes. Also that my boyfriend of 4.5 years STILL won't marry me and we are living in a tiny one bedroom apartment with a crappy tiny kitchen that makes food preperation impossible, and everytime he opens a damn beer he leaves the cap laying on the counter!

Yeah.. stress.. but It's normal... If i'm not pissed off at someone i'm not happy.

blueeyedmanda Community Regular
I always have stress in my life, I stress about everything all the time. If I don't have stress I feel naked. Right now I am stressing about trying to find a new job and my parents are planning on moving from Pennsylvania to Hawaii in a few monthes. Also that my boyfriend of 4.5 years STILL won't marry me and we are living in a tiny one bedroom apartment with a crappy tiny kitchen that makes food preperation impossible, and everytime he opens a damn beer he leaves the cap laying on the counter!

Yeah.. stress.. but It's normal... If i'm not pissed off at someone i'm not happy.

HMC is always hiring and your full benefits start they day you go to orientation.

SunnyDyRain Enthusiast
HMC is always hiring and your full benefits start they day you go to orientation.

Thanks for the Heads up, I have no medical experince, (other than i'm always sick!) and I looked through the jobs, only one I'd maybe be qualified for is Data Entry, but I'm really overqualfied for that. I have a VERY hard time finding jobs, I have a BA in Psych, so I deserve to get paid more than the average HS grad but I have no Experince in psych, all my experince is accounting and IT. I don't have a IT degree, so I don't qualify for real IT jobs, I don't have an accounting degree, so I don't qualify for most accounting jobs. I do have 2 interviews on tuesday, so we will see how things go. I'm worried both will pay little, or have no benefits.

blueeyedmanda Community Regular
Thanks for the Heads up, I have no medical experince, (other than i'm always sick!) and I looked through the jobs, only one I'd maybe be qualified for is Data Entry, but I'm really overqualfied for that. I have a VERY hard time finding jobs, I have a BA in Psych, so I deserve to get paid more than the average HS grad but I have no Experince in psych, all my experince is accounting and IT. I don't have a IT degree, so I don't qualify for real IT jobs, I don't have an accounting degree, so I don't qualify for most accounting jobs. I do have 2 interviews on tuesday, so we will see how things go. I'm worried both will pay little, or have no benefits.

They train for alot of their positions. I actually have an IT degree. Everything I learned, I picked up working in the Lab as a Specimen Processor. It helped me to take my new job.

SunnyDyRain Enthusiast

I did some reading at WholeApproach.com, anyone know if this is a reputable site?

I can totally see this being my problem now, Last weekend I ate SO much fruit and vinegar. I usally never eat much fruit, I just started now with it because I am Gluten-free Casein-free. I have also been lax on artifical sweetener ban, It started with a sneaky Jones Soda, then just snowballed into 3 cans of diet pepsi tuesday night.

This looks like a long process, If it came on quickly, can it leave quickly? I really am enjoying fruit as an alternitive to other snacks. Do I need to follow it for life?

I feel better (mentally) knowing there may be something else I can do to feel better! Also I will be seeing my doctor in a week or so and I'll bounce that off her.

dlp252 Apprentice

Yes, Whole Approach is a good site! Theoretically, you would not have to eat strictly for life with candida, but you definitely have to give it a good LONG course. And, in my opinion it is best to limit simple sugars regardless of a candida issue anyway.

Talking with your doctor is probably a good idea, though many don't "believe" in candida. Fortunately all my doctors do. There are tests that can be run...not sure which is considered the best though.

tom Contributor
Oh, why is vinegar bad?

It's fermented. Fermented things are as bad as straight sugar candida-wise as far as I'm concerned. Not sure if the process involved in each's badness is the same, I just found out very quickly that both made for more trouble and faster than anything else when I was at my "hey it's candida" point.

So no vinegar of any type. No alcohol. Nothing w/ vanilla extract (alcohol). Certainly no fancy cheese and I'd start w/ no cheese at all anyway. It'd be silly to do just ALMOST everything and still be having those symptoms, after that much effort.

It's not easy, but it is temporary. And the 1st day that u feel great u realize it's more worthwhile than I-dont-know-what, but it's pretty darn worthwhile. LOL :lol:

But all of this is speculation. It just 100% reminded me of me when I had candida.

No real downside to trying the diet asap - bummer that the wkend will be so diet-unfriendly.

You should be able to get at a minimum, a real good inkling about whether it's candida w/ the diet instead of making no changes and waiting for an appt.

Good luck this wkend & beyond!

Mango04 Enthusiast

Maybe you can start by cutting out the soy, coffee, sugar and dried fruit and just see if that helps. All of those things bother me (but I can handle small amounts of dried fruit).

I have heard that one brand of AquaFresh contains gluten. I don't know if it's true though and I can't find my source...

SunnyDyRain Enthusiast
Maybe you can start by cutting out the soy, coffee, sugar and dried fruit and just see if that helps. All of those things bother me (but I can handle small amounts of dried fruit).

I have heard that one brand of AquaFresh contains gluten. I don't know if it's true though and I can't find my source...

If cut out soy, I have no idea what I could eat. I use soy milk, i have tried other milks, and they don't work. I use soy sauce (gluten-free of Course) on my rice. I use Soy sauce on my chicken and pork. I snack on soy nuts and i'm not going to go into the soy hidden in the things i eat.

I think I saw an e-mail here from GSK saying sensodyne had gluten in it, but they reccomended aquafresh sensitive whitening as an alternitive, that is why I got it.

Mango04 Enthusiast
If cut out soy, I have no idea what I could eat. I use soy milk, i have tried other milks, and they don't work. I use soy sauce (gluten-free of Course) on my rice. I use Soy sauce on my chicken and pork. I snack on soy nuts and i'm not going to go into the soy hidden in the things i eat.

I think I saw an e-mail here from GSK saying sensodyne had gluten in it, but they reccomended aquafresh sensitive whitening as an alternitive, that is why I got it.

Do you think the soy could be what's bothering you then? :( When I eat that much soy I have all the symptoms you described in your first post of this thread. I know cutting out soy is a bummer. I actually miss soy more than I miss gluten and dairy :rolleyes:

tom Contributor
I use soy milk, i have tried other milks, and they don't work. I use soy sauce (gluten-free of Course) on my rice. I use Soy sauce on my chicken and pork. I snack on soy nuts and i'm not going to go into the soy hidden in the things i eat.

That's a lot of soy.

And potentially ALSO fits a candida theory. Somehow it's able to create cravings for exactly the things that are worst for you.

And soy sauce is in the 'fermented=no-no' category.

I'm in a no-soy test right now and found I like WestSoy's Ricemilk and, of all the crazy things, LivingHarvest's Hempmilk!! And I think Pacific Natural Foods' hazelnutmilk and almondmilk are fine for me too.

Gotta read all the fine print to avoid sweeteners. The ricemilk doesn't have any, but the others might have brown rice syrup which used to bother me but is ok now.

jerseyangel Proficient

If I can weigh in here--I'm thinking it could be the soy, too. Soy affects me in the way that you describe feeling. Coffee also gives me cramps and D. I can drink tea fine, though.

I don't know if I have a candida issue, but I'm definately intolerant to soy--it's not at all unsuual for a Celiac to be intolerant to soy.

I use Pacific Almond milk--the original and the vanilla. It's really good, and does not contain soy.

I would try omitting the soy, dried fruit and the coffee and see if you don't feel better.

There's lots of other things to eat--I am soy, corn, legume, dairy, tapioca and coconut free (as well as gluten) and I eat well. Let me know if I can be of any more help--it's hard giving up all of your familiar foods, but it's worth it to figure out what is making you sick.

SunnyDyRain Enthusiast

I'm willing to give soy a try, but I really need ideas then on how to flavor stuff. I probally use about 1/4 cup of soy milk a day in my coffee. I used to have problems with coffee, went to decaf, problems got better went back to half reg half decaf without a problem i that was before going gluten-free. i think that was the fact I was eating those yummy tastycake powered doughnuts with them.. who knows all bets are off on anything being safe for me anymore.

But soy sauce... what else can you put on rice? I only heard of 3 things on rice, butter(casien), gravy (gluten/msg), and soy sauce. I have reciepie for rice and shrimp but i can't affrod to eat shimp every day. I tried organic broths instead of water, and still the flavor is weak. I usally cook with soy sauce to add flavor (or cover up flavors that i tried to cook with that sucked REALLY bad).

I eat rice almost every day for lunch, I need some flavor.

Although on the plus side, cutting out soy sauce will probally help my BP, though i do use low sodium.

On a funny note... i just flipped out on my mom for buying me rice cakes and soy milk.... she really thinks i'm a paranoid hypocondriac now. they were quaker rice cakes.... and silk soy milk.

tarnalberry Community Regular

can't help too much with the coffee as I drink tea, but perhaps hemp milk? or dari-free? I know there's a soy free milk alternative out there...

as for rice, there are two things I'd suggest. one is letting your tastebuds adapt to less strongly flavored food. yes - they will. second, is pairing the rice with veggies (cooked) and meats that provide the flavor on their own, such as a sautee. but if you're looking for just plain rice that's not plain rice:

* earth balance non-dairy margarine (yes, it's casein free)

* bouillion instead of broth - use as much as you like

* herbs in addition to bouillion

* aromatics like garlic or onions

* curries and other savory spices

SunnyDyRain Enthusiast
can't help too much with the coffee as I drink tea, but perhaps hemp milk? or dari-free? I know there's a soy free milk alternative out there...

as for rice, there are two things I'd suggest. one is letting your tastebuds adapt to less strongly flavored food. yes - they will. second, is pairing the rice with veggies (cooked) and meats that provide the flavor on their own, such as a sautee. but if you're looking for just plain rice that's not plain rice:

* earth balance non-dairy margarine (yes, it's casein free)

* bouillion instead of broth - use as much as you like

* herbs in addition to bouillion

* aromatics like garlic or onions

* curries and other savory spices

hrm.. so there is non-dairy margerine you say.. awesome. I often wondered if there was one.. but didnt feel like spending half an hour looking at tub after tub of the stuff getting increasingly frustrated and having a breakdown in the store.

Now that you mention onions.. i have an idea.

I use a rice cooker to cook my rice... if I preheat it, add some butter and onions to the bottonm and fry them up and once they are cooked... i can add the rice and broth....

I have garlic juice i tried once,, had very little flavor, but stunk the apartment up for days!

Mango04 Enthusiast

Seasame oil and plum vinegar is really good on rice.

Or...when cooking white jasmine rice, replace half of the water with coconut milk. Cook the rice like you normally would, then add chopped cilantro at the end. Yum.

Or....add some lentils to your rice (do half lentils, half rice) and add olive oil, balsamic vinegar and sea salt after it's cooked. (I guesss all this vinegar wouldn't work on a candida diet. But, with all the soy you eat, that really might be the problem.)

You can still have every kind of herb, a high quality sea salt (such as celtic grey) will add tons of flavor to foods, and good olive oils help too. Sometimes I saute food in lemon olive oil. Chile pepper brings out tons of flavor in foods as well.

SunnyDyRain Enthusiast
Seasame oil and plum vinegar is really good on rice.

Or...when cooking white jasmine rice, replace half of the water with coconut milk. Cook the rice like you normally would, then add chopped cilantro at the end. Yum.

Or....add some lentils to your rice (do half lentils, half rice) and add olive oil, balsamic vinegar and sea salt after it's cooked. (I guesss all this vinegar wouldn't work on a candida diet. But, with all the soy you eat, that really might be the problem.)

You can still have every kind of herb, a high quality sea salt (such as celtic grey) will add tons of flavor to foods, and good olive oils help too. Sometimes I saute food in lemon olive oil. Chile pepper brings out tons of flavor in foods as well.

I'm noticing the soy alot now too.. Last weekend I ate alot of soy milk and icecream

I wonder if i could just get away with limiting soy, not eliminating, like no soy products, but no worry about soy ingrediants? I guess only time and eliminating it will tell.

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      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
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