Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloodwork Back On Thyroids


num1habsfan

Recommended Posts

num1habsfan Rising Star

Hello! my name is Dara and i am posting this for Lisa because she is having problems with her computer/internet!

"This morning I got a call from the doctors office to come in today because he wanted to see me. So i went this afternoon and I had gotten the bloodwork back on my thyroids. The diagnosis is: I DEFINITELY have hypothyroidism. He told me that TSH level is supposed to be between 0.5 - 9.0, well mine is 21.63. So he put me on Synthroid and in 6 weeks gotta redo the bloodwork to see if it improved. If anyone can give me advice or explain what it all means that'd be great, since I know nothing about thyroids until now"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

Well firstly your Dr has it wrong re TSH. The recommended new range ( since 2003) for TSH is 0.3 - 3.0. You have probably suffered needlessly for years for your Dr to wait for a magic number to appear on his and the lab's old and out dated range.

Open Original Shared Link

Second - the TSH is a lousy test for HypoThyroid. Much better to test the levels of Free T4, Free T3 and Thyroid Antibodies to see what is actually happening.

Open Original Shared Link

And Synthroid is a synthetic T4 med. It relies on your body's abilty to convert it into usable energy ( T3). Now - the truth is - many folks don't do well on Synthroid. They don't convert. But cos the Drs never seem to test the FT3 level - they don't see this. Also for reasons unknown - the natural med Armour makes these folks recover much better. Dosing Armour works ina different way to dosing Synthroid , and you need to have a Dr that is experienced in this. Basically you dose until you are well and all HypoT symptoms disappear and wellness returns.

Open Original Shared Link

And if you switch the natural, 100 + year safety record, USP standard Armour .... you will need to understand this - cos many Drs don't.

Open Original Shared Link

mattj Rookie

Unfortunately, your doctor is only likely to dose you enough to get your TSH down below that 9, which is a ridiculously high upper range for TSH. You will still fall outside even the more widespread upper limit of 5, let alone the more recent recommended ranges.

loraleena Contributor

Georgie is right. The range is .3-3, it was never up to 9 only 5 in the past. Anything over 2 is suspect. I am on meds and my tsh is now very low (Looks hyper, but I am not). This is normal if on meds. The docs should be relying on how you feel when on meds. Also I would recomend taking Armour not synthroid. A lot of people do not get bettter on synthroid. Also not being on enough thryoid med can make you worse than before. Please read all info. at dr.lowe.com. Wonderful info and the docs I work with. Also check out stopthethyroidmadness.

loraleena Contributor

Georgie is right. The range is .3-3, it was never up to 9 only 5 in the past. Anything over 2 is suspect. I am on meds and my tsh is now very low (Looks hyper, but I am not). This is normal if on meds. The docs should be relying on how you feel when on meds. Also I would recomend taking Armour not synthroid. A lot of people do not get bettter on synthroid. Also not being on enough thryoid med can make you worse than before. Please read all info. at dr.lowe.com. Wonderful info and the docs I work with. Also check out stopthethyroidmadness.

num1habsfan Rising Star

OK so maybe I got the numbers mixed up...maybe it was 0.9 to 5.0. I was sitting there upset that I have yet another thing to add to my list of health problems and could have easily mixed up the 2 numbers. Thats not the whole point of me posting. He tested me for that T4 or whatever and that showed normal but this was way high. I have not had this problem forever, I remember be tested a couple years ago and it was normal. Also remember theres a HUGE differenece between American and Canadian health systems. We dont get to choose what we're tested for or when, and we'll never get detailed results on anything, and we have no choice on medication either.

Synthroid is not as bad as you guys are making it sound. I've heard from more than one person already who were on it and it made a huge difference. I'm not gonna try finding some natural thing, you have to realize I'm not from the US and there are not many options for anything here in Canada. For as much as I have been suffering in the last year and half, this is a relief that i finally have some medication to make me feel somewhat better, even if its not for my stomach.

I'm not trying to sound cruel...I know hypothyroidism isnt a huge deal, but its still a lot for me to handle. Like i said I've gone through so much in less than 2 years, and the last thing i needed was yet another disease added to my list.

I got this post made to get some help and hoped someone could describe hypo to me, instead I find nothing....

~ Lisa ~

loraleena Contributor

If Synthroid is working thats fine, but we just wanted to warn you of the things us and others have dealt with with doctors not knowing much about it this issue. Hypothyroidism is a big deal and can make you very sick. I don't think anyone down played that. We just want you to be as educated as possible regarding this health issue. Knowledge is powerful. Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Lisa, it is not true that there is no other choice than Synthroid here in Canada. Doctors haven't heard of Armour here. But they will prescribe desiccated thyroid, which is the same thing. I know, because that is what my doctor is prescribing for me.

And if your body is having trouble converting T4 to T3, then Synthroid is not going to help.

So, if you are not feeling much better soon, you will need to go back and ask to be prescribed desiccated thyroid (which is actually listed in the doctor's manual, while the brand name Armour is not).

Doctors in general are woefully ignorant about thyroid, and the dose you are getting is most likely way too low. You may, now that you know what one of your problems is, have to find a doctor who actually understands hypothyroidism and knows the correct dosages of desiccated thyroid. Plus, it is likely that you also have adrenal fatigue, which will need to be addressed in order for your thyroid medication to help.

And if you think that hypothyroidism is no big deal, you are very wrong. It can totally mess with your digestive system, by slowing it down completely. In fact, it slows down all of your bodily functions. It can completely ruin your life, because you have no energy at all.

Michi8 Contributor
OK so maybe I got the numbers mixed up...maybe it was 0.9 to 5.0. I was sitting there upset that I have yet another thing to add to my list of health problems and could have easily mixed up the 2 numbers. Thats not the whole point of me posting. He tested me for that T4 or whatever and that showed normal but this was way high. I have not had this problem forever, I remember be tested a couple years ago and it was normal. Also remember theres a HUGE differenece between American and Canadian health systems. We dont get to choose what we're tested for or when, and we'll never get detailed results on anything, and we have no choice on medication either.

Synthroid is not as bad as you guys are making it sound. I've heard from more than one person already who were on it and it made a huge difference. I'm not gonna try finding some natural thing, you have to realize I'm not from the US and there are not many options for anything here in Canada. For as much as I have been suffering in the last year and half, this is a relief that i finally have some medication to make me feel somewhat better, even if its not for my stomach.

I'm not trying to sound cruel...I know hypothyroidism isnt a huge deal, but its still a lot for me to handle. Like i said I've gone through so much in less than 2 years, and the last thing i needed was yet another disease added to my list.

I got this post made to get some help and hoped someone could describe hypo to me, instead I find nothing....

~ Lisa ~

Lisa, I think hypo or hyper, thyroid issues are a big deal...and become a bigger deal the longer it's out of whack. Now you may have an answer to some of your health issues...it's great that you will be treating it, and will hopefully have good results.

In terms of options for Canadian Health care, you have way more choices than you think. Yes you can request specific tests. You have every right to see the results and get a copy for your records. You have the right to have everything properly explained to you. And you have the right for a second opinion. Anything less, you should fire your doctor and seek out one that supports your needs and rights properly. I know that this is easier said than done, because physicians are in such short supply, but it is worth it to keep trying to find the right one.

Your options for drugs (in Canada) are virtually unlimited as well. We have access to all the same drugs...some are named or packaged differently, but are available nonetheless. Nice thing here is that were are not dictated by an HMO or other health plan that says we are limited in our choice of doctors or have to take generic forms of drugs.

You were given some great links about thryroid...do check out Open Original Shared Link it's a good resource. They have info describing hypothyroid, and options for treatment. At least give it a good read so that you understand the difference between treatment options.

Michelle

Jestgar Rising Star

Hi Lisa

I realize you have a lot to deal with, but once you've gotten used to realizing that it's part of your health regime now, hypothyroidism will not be a big deal. The risk are more long-term and only happen with untreated disease. Yours was recognized quickly and you're dealing with it so that's great.

I've taken synthroid for years and have never had a problem. Don't worry about demanding Armour until you've decided synthroid doesn't work - kind of the one thing at a time approach.

I know it seems like you're adding one more disease to your list, but really you've just defined, and are now fixing, one more issue. It's one step closer to being healthy.

Hang in there

Jestgar

Phyllis28 Apprentice

I hope you feel better soon.

num1habsfan Rising Star
Hi Lisa

I realize you have a lot to deal with, but once you've gotten used to realizing that it's part of your health regime now, hypothyroidism will not be a big deal. The risk are more long-term and only happen with untreated disease. Yours was recognized quickly and you're dealing with it so that's great.

I've taken synthroid for years and have never had a problem. Don't worry about demanding Armour until you've decided synthroid doesn't work - kind of the one thing at a time approach.

I know it seems like you're adding one more disease to your list, but really you've just defined, and are now fixing, one more issue. It's one step closer to being healthy.

Hang in there

Jestgar

Thank you for being so understanding..When i said that this was nothing/easy to deal with, I meant that compared to all the stomach issues I've been going through and trying to self-diagnose myself, this is minor compared to them. You also understand why I'm not gonna think about anything else but Synthroid, I need to stay on it for quite a while before i know how well it's working. And it was my doctor who said he'll be changing prescription if what I take now don't lower it enough...its a lot to deal with, but i can manage taking a pill a day, its better than having no treatment at all as its the case w/my other problems.

~ Lisa ~

~ Lisa ~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.