Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I Still In So Much Pain?

Electra

Recommended Posts

Electra Enthusiast
Electra
Posted

I was diagnosed a while ago and seemed to do pretty good for a while. About every other week It seemed as though I had been cross contaminated and I had a little pain in my upper abdomin under my rib cage for a couple of days. Well I cut everything out except for fresh fruits, veggies, and meats and now I'm in almost CONSTANT pain. Under my ribs on both sides I get a constant aching pain, and when I drive in the car or sit/stand in one position for too long I get these stabbing pains in the same spot. The pain radiates around to my back but it stays on the sides and never goes in the middle. I'm petrified to eat now because I hurt so badly all the time. Everything I'm eating should be 100% safe, so why am I having so much pain all of the sudden? It seems to get worse with every passing day and I just can't handle much more of this. Is there something else that could be causing this pain? It's the same kind of pain I had before I found out I had celiac, so what in the world do you think may be going on?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


girlywhirly Newbie
girlywhirly
Posted

I have been gluten free for 3 months and I have experienced the same thing! However, I recently had an appt with an herbalist and discovered food sensitivities that I think are the culprit. A few of the things I cannot have are soy, dairy, any berries with little seeds (strawberries, raspberries etc...she said it's difficult for my irritated gut to digest them), nuts and some random fruits and veggies that are difficult to digest or that are very sugery. Also she said that my liver is quite congested (which I had guessed) so it was part of the painful problem. I have experienced some relief so far on my new diet. Once my GI tract shows signs of improvement she is suggesting that I do a cleanse. We are quite hopeful that this will start some healing and long term help I will keep you posted on my progess, and hope you find some relief from your pain soon!

ravenwoodglass Mentor
ravenwoodglass
Posted
I was diagnosed a while ago and seemed to do pretty good for a while. About every other week It seemed as though I had been cross contaminated and I had a little pain in my upper abdomin under my rib cage for a couple of days. Well I cut everything out except for fresh fruits, veggies, and meats and now I'm in almost CONSTANT pain. Under my ribs on both sides I get a constant aching pain, and when I drive in the car or sit/stand in one position for too long I get these stabbing pains in the same spot. The pain radiates around to my back but it stays on the sides and never goes in the middle. I'm petrified to eat now because I hurt so badly all the time. Everything I'm eating should be 100% safe, so why am I having so much pain all of the sudden? It seems to get worse with every passing day and I just can't handle much more of this. Is there something else that could be causing this pain? It's the same kind of pain I had before I found out I had celiac, so what in the world do you think may be going on?

Have you checked everything you come into contact with for gluten ingredients? Are you taking any meds or supplements that you have not checked yourself, call the companies yourself do not rely on anyone else. Be sure to read the entire label on supplements, some will add wheat or barley grass and still call the item gluten-free. For the pain have your tried taking a dose of pepto bismal, I swear by the stuff and usually one dose will relieve my pain. I get the same sort of discomfort you are referring to from CC, if you can reevaluate everything, not much fun I know but I have a feeling gluten is sneaking in there somewhere on you. If you have firmly established that CC could not be an issue then if it continues you should contact your doctor.

ravenwoodglass Mentor
ravenwoodglass
Posted
Once my GI tract shows signs of improvement she is suggesting that I do a cleanse.

Please, please, please use great caution with a 'cleanse'. These are not something that we normally benefit from and can be extremely dangerous for those of us with celiac. There are some of us who have been made extremely ill by these and they really have no benefit other than money for the companies that make them. Your body has ways of cleansing itself and you risk upsetting the natural flora and fauna of your digestive tract among other things.

aikiducky Apprentice
aikiducky
Posted

Electra, since cutting out everything else from your diet is there something in particular that you have started eating more of to compensate? Maybe you have started to eat more of something, a fruit or vegetable for example, that you happen not to digest very well, or are intolerant to.

Does the pain feel like it has to do with your digestive system? After all, at some point you might have to consider that it could be unrelated, and see a doctor...

Pauliina

Electra Enthusiast
Electra
Posted
  • Author

Thanks everyone for your replies. I have started eating some new product and I've cut those out since I first posted this and so far I seem to be getting better. One of them was Honey Ham and I think whatever they use to flavor it may have some CC in there somewhere. According to the label it's safe, and I've eaten it before with no issues, but I'm just not convinced it's safe at this point. The other thing I added was string cheese which should be safe, but I cut it out just in case. The only other thing could be my medicine, but I've continued taking that even though I cut out the meat and cheese and I'm still feeling quite a bit better. It's also time to take my B-12 shot again but I haven't been able to get in and get my perscription filled, so I'm wondering if I may feel pain towards the end of the month when that B-12 shot wares off (not that it lasts me that long lol).

The seeds issue is interesting because I have been eating a lot more watermelon (seedless, but it has the white seeds) and Kiwi and I was just thinking that it might be the Kiwi because I hadn't had that in a few days either, and when I usually eat it my stools end up soft again HMMMMMMMMMMM interesting thought. I'll have to keep that one in mind and cut out Kiwi next if the meat and cheese doesn't work.

Thanks again for all the advise and hopefully we all feel great soon!!

chatycady Explorer
chatycady
Posted

String cheese, any cheese, gives me terrible back aches and stomach pain. I thought I had a kidney stone once the pain was so sharp.

Hope you feel better now.

I doubt if it's lack of B-12. I use to blame all sorts of symptoms on lack of B-12, but now I realize it was gluten. Now I forget to take my B-12 shot, cause I have no symptoms and have lots of energy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted
I was diagnosed a while ago and seemed to do pretty good for a while. About every other week It seemed as though I had been cross contaminated and I had a little pain in my upper abdomin under my rib cage for a couple of days. Well I cut everything out except for fresh fruits, veggies, and meats and now I'm in almost CONSTANT pain. Under my ribs on both sides I get a constant aching pain, and when I drive in the car or sit/stand in one position for too long I get these stabbing pains in the same spot. The pain radiates around to my back but it stays on the sides and never goes in the middle. I'm petrified to eat now because I hurt so badly all the time. Everything I'm eating should be 100% safe, so why am I having so much pain all of the sudden? It seems to get worse with every passing day and I just can't handle much more of this. Is there something else that could be causing this pain? It's the same kind of pain I had before I found out I had celiac, so what in the world do you think may be going on?

WOW, I CAN'T BELIEVE THAT YOU ARE FEELING THE SAME EXACT WAY THAT I DO. I HAVE BEEN GLUTEN FREE SINCE 2-07, AND AS I WRITE I STILL HAVE THE STOMACH AND RIB PAIN. I DO EAT ALOT OF NUTS, AND I WONDER IF MY STOMACH JUST CAN'T TOLERATE IT YET. PLEASE LET ME KNOW IF YOU HAVE TRIED ANYTHING NEW THAT MAYBE HAVE HELPED YOU. :)

PeggyV Apprentice
PeggyV
Posted

I dont know if you have had a colonoscopy, but maybe you have diverticulosis and the nuts and seeds in fruit are bothering you.

PeggyV Apprentice
PeggyV
Posted

I dont know if you have had a colonoscopy, but maybe you have diverticulosis and the nuts and seeds in fruit are bothering you.

jmd3 Contributor
jmd3
Posted
Please, please, please use great caution with a 'cleanse'. These are not something that we normally benefit from and can be extremely dangerous for those of us with celiac. There are some of us who have been made extremely ill by these and they really have no benefit other than money for the companies that make them. Your body has ways of cleansing itself and you risk upsetting the natural flora and fauna of your digestive tract among other things.

I agree with ravenwoodglass!! Be very careful with this cleanse. I am wondering if pro-bitotics would benefit you much, much more. I take those, with the fos powder ( that feeds the good bacteria!) . My side pains have gone away....PLEASE be extra careful!!

Subhangi Newbie
Subhangi
Posted
WOW, I CAN'T BELIEVE THAT YOU ARE FEELING THE SAME EXACT WAY THAT I DO. I HAVE BEEN GLUTEN FREE SINCE 2-07, AND AS I WRITE I STILL HAVE THE STOMACH AND RIB PAIN. I DO EAT ALOT OF NUTS, AND I WONDER IF MY STOMACH JUST CAN'T TOLERATE IT YET. PLEASE LET ME KNOW IF YOU HAVE TRIED ANYTHING NEW THAT MAYBE HAVE HELPED YOU. :)

I Have that pain as well and massive swelling all the time in that rib under the rib area..., day in day out and I've been off gluten for 2yrs. Celiac sucks!!

Sincerely Celiac Sue

Janeti Apprentice
Janeti
Posted
I dont know if you have had a colonoscopy, but maybe you have diverticulosis and the nuts and seeds in fruit are bothering you.

PEGGY, DID YOU EVER NOTICE IF YOU GOT GLUTENED BY ACCIDENT, EACH TIME IT GETS WORSE?

THIS SUNDAY I HAD GLUTEN FREE PANCAKES(THEY WERE YUMMY) WITH SYRUP. THE SYRUP INGREDIENTS LOOKED HARMLESS. LATER THAT DAY, I STARTED TO FEEL THAT WAVE OF NAUSEA, AND THE NEXT DAY I WAS SO SICK. I CALLED THE FOOD COMPANY, AND SURE ENOUGH IT HAD GLUTEN IN IT. I THINK THESE COMPANIES SHOULD PLAINLY WRITE:CONTAINS GLUTEN!! BUT I JUST WANTED TO KNOW WHY IT GETS WORSE EVERY TIME YOU EAT GLUTEN.

THANKS, JANET

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,742
    • Most Online (within 30 mins)
      7,748
    MistyMoon
    Newest Member
    MistyMoon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.